Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Awful Taste In Mouth

collgwg

Recommended Posts

collgwg Contributor
collgwg
Posted

omg i have this god awful salt taste in my mouth and i can not seem to get rid of it no matter what :(

is there such a thing as withdrawal and this may be one of the symptoms?

and what are the other symptoms i should look out for?

i am so new to all of this its all overwhelming today is day 1 :o

i went to the superstore last night and bought as much as i could with the money i had and my dh(dear husband(fly lady term) did his shopping and i am still standing in this section that i did not even knew existed and had no clue what to eat what to choose and freaking out over the prices, but i took a deep breath and bought few things,like cereal,tortillas,bread mix, natchos,soy beens,(look like green beens this is taking a big step for me as i DO NOT like veggies ) tried a recipe from on line that was ok but too greasy for my liking will have to tweek it another time lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Stop! Take a deep breath. Now jump up & down 5 times!

It doesn't have to say gluten free to be gluten free. Look on the " what's for dinner" thread and see what people eat. Ok....some of them are gourmet cooks & some of them seem to love Brussels sprouts and tofu. A lot of them ( us) just eat the same regular stuff from before. Leftover grilled chicken on salad. Chili. Steak & baked potatoes. BBQ pork and OreIda fries in the oven. Chicken tacos. Ice cream. I'm getting hungry!

I did make sure I had a pretty chain for my reading glasses when I went to the grocery. Some of the ingredients are really small. You can do it.

ravenwoodglass Mentor
ravenwoodglass
Posted

It can be easiest to go with as much whole unprocessed food as you can for a bit. Fresh meats and chicken, rice, potatos, fruit and veggies are all going to be safe in their natural state. Some companies are really good at labeling, Kraft and Unilever are two of them. If you don't see gluten listed it is gluten free. For pasta I usually get Thai Kitchen rice noodles. They cook really fast and are not as expensive as some of the specialty gluten-free brands. It can be overwhelming at first but you will get the hang of it.

collgwg Contributor
collgwg
Posted
  • Author

thank you both for your insite it will be deffentally considered

im finding that it is so hard to follow this life style i went out to night and the women in the house thought it would be funny to replace my smokes with potato chips that are full of gluten lol whats more deadlier smokes or gluten lol both pretty near up there lol

and i took my dip that had no gluten and my gluten free corn chips and what did every one do but dip their gluten laden foods in my dip

they laughed at me when i told them now the dip is contanimated and said i was full of bull that gluten can not be transfored like that gurrr i wish they all knew how really hard this is

kareng Grand Master
kareng
Posted

thank you both for your insite it will be deffentally considered

im finding that it is so hard to follow this life style i went out to night and the women in the house thought it would be funny to replace my smokes with potato chips that are full of gluten lol whats more deadlier smokes or gluten lol both pretty near up there lol

and i took my dip that had no gluten and my gluten free corn chips and what did every one do but dip their gluten laden foods in my dip

they laughed at me when i told them now the dip is contanimated and said i was full of bull that gluten can not be transfored like that gurrr i wish they all knew how really hard this is

Ask them- have you seen toast crumbs in the jelly? Broken chips in the dip?

I have a hot cheesy dip I bring to things. I have a small oven safe bowl and the bigger oven safe bowl. I put some in each. I make a personal bag of chips and carrot sticks. Then I let them have at the big bag of chips & big bowl of dip. I have my nice private, safe bowl & chips.

Coinkey Apprentice
Coinkey
Posted

thank you both for your insite it will be deffentally considered

im finding that it is so hard to follow this life style i went out to night and the women in the house thought it would be funny to replace my smokes with potato chips that are full of gluten lol whats more deadlier smokes or gluten lol both pretty near up there lol

and i took my dip that had no gluten and my gluten free corn chips and what did every one do but dip their gluten laden foods in my dip

they laughed at me when i told them now the dip is contanimated and said i was full of bull that gluten can not be transfored like that gurrr i wish they all knew how really hard this is

What you do is openly pick your nose in front of them, wipe it off on your shirt then stick your finger in the dip and say, "What... you said stuff can't be transferred in this manner. It's only a little bit of booger and I wiped it off, there's no contamination in the dip- go on... eat it!"

sa1937 Community Regular
sa1937
Posted

What you do is openly pick your nose in front of them, wipe it off on your shirt then stick your finger in the dip and say, "What... you said stuff can't be transferred in this manner. It's only a little bit of booger and I wiped it off, there's no contamination in the dip- go on... eat it!"

Well that would certainly get your point across! :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


collgwg Contributor
collgwg
Posted
  • Author

What you do is openly pick your nose in front of them, wipe it off on your shirt then stick your finger in the dip and say, "What... you said stuff can't be transferred in this manner. It's only a little bit of booger and I wiped it off, there's no contamination in the dip- go on... eat it!"

thats too funny im sure that would get the point across

  • 1 month later...
IrishHeart Veteran
IrishHeart
Posted

What you do is openly pick your nose in front of them, wipe it off on your shirt then stick your finger in the dip and say, "What... you said stuff can't be transferred in this manner. It's only a little bit of booger and I wiped it off, there's no contamination in the dip- go on... eat it!"

AWESOME!!

I cannot wait to do this the next time my family gathers!!! :lol:

Diane-in-FL Explorer
Diane-in-FL
Posted

thank you both for your insite it will be deffentally considered

im finding that it is so hard to follow this life style i went out to night and the women in the house thought it would be funny to replace my smokes with potato chips that are full of gluten lol whats more deadlier smokes or gluten lol both pretty near up there lol

and i took my dip that had no gluten and my gluten free corn chips and what did every one do but dip their gluten laden foods in my dip

they laughed at me when i told them now the dip is contanimated and said i was full of bull that gluten can not be transfored like that gurrr i wish they all knew how really hard this is

These women are stupid and mean. Are they relatives or roommates? Can you avoid them? They don't get it and it appears that they don't care. You need support, not sabotage. Ergh! They need to come here and read what cc can do.

IrishHeart Veteran
IrishHeart
Posted

These women are stupid and mean. Are they relatives or roommates? Can you avoid them? They don't get it and it appears that they don't care. You need support, not sabotage. Ergh! They need to come here and read what cc can do.

I agree!

jackay Enthusiast
jackay
Posted

What you do is openly pick your nose in front of them, wipe it off on your shirt then stick your finger in the dip and say, "What... you said stuff can't be transferred in this manner. It's only a little bit of booger and I wiped it off, there's no contamination in the dip- go on... eat it!"

Love it! I don't think I'd have the nerve to do it.

domesticactivist Collaborator
domesticactivist
Posted

Did you eat pine nuts perchance? There is a thing called pine mouth that gives a metallic taste for a couple weeks.

I get a horrible taste in my mouth - I had chronic bad breath and the horrible taste until we'd been on GAPS for a while. Introducing foods in, I realized that it is directly related to cheese. My bad BO is also cheese. If I have a tiny amount of cheese I'm ok. But if I have a slice I'll wake up the next day with the AWFUL taste and bad BO, and they last a few days at least. (I'm fine with yogurt and haven't tried fresh milk or cream).

sb2178 Enthusiast
sb2178
Posted

Brussels sprouts are awesome, unless they are frozen. (keep in mind, though, that I don't like tomatoes. Which is, according to many people, very weird.) And you can eat actual green beans. Edamame are pretty good, but green beans are just fine.

So, I kind of didn't have dinner today, but last night I had an egg and greens sandwich on gluten-free bread. Basic fried egg with mustard greens from my garden, a little mustard, two slices of bread. There was something else on my plate too... hmmm... oh, leftover asparagus and kidney beans. Pretty basic. I don't usually have bread, but I splurged at a gluten-free bakery Thursday. Normally, I'd have a baked potato/sweet potato with the above egg.

Couple of meals:

1. baked beans, rice, and veg (pick one, frozen is usually really easy)

2. egg, sweet potato, and veg

3. tuna salad, gluten-free crackers, and veg

4. pork chop, applesauce, and baked potato

If you're still eating dairy, drop it. Dairy gives a lot of people reflux, which can make your mouth taste weird.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough...
    2. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    3. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    4. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    5. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,911
    • Most Online (within 30 mins)
      7,748
    Cici123
    Newest Member
    Cici123
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.