Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Ever Just Not Care?

Janelson

By Janelson
in Coping with Celiac Disease

Recommended Posts

Rikki Tikki Explorer
Rikki Tikki
Posted

Hi and welcome to everyone:

I spent eight weeks at my mom's because I was so sick I couldn't carry on anymore, so many of you are new to me. Anyway, I put on 20 lbs. while I was there!

It is very hard, so much of our lives involve food, going to someones house, out to eat, just sitting around talking.

I think most of us went through all of the emotions you are feeling. It does get better though, just one day you will get done being angry and see that there are so many worse diseases.

What I am trying to say is I think it's normal to be angry at first, but I promise it will pass.

Not that there won't be times when you think it sucks, maybe even cheat as I did, then you will get so tired of being sick and the way it drains your body that you will realize that it's just not worth eating that gluten stuff. It can feel overwhelming, but that's why we are here, to help and support each other.There were many people on this board that helped me see that. It will just come to you one day and then it will be ok.

Remember for each of us that get a diagnosis, thousands are either having silent damage or are so ill and don't know why. Probably being told by their doctors that it's all stress, IBS or in their head. I think that's what makes me grateful, for many years I really believed it was all stress. While I wish I didn't have it I am also grateful that at least I know why I was so ill.

Hey, there is a new topic, what is everyone grateful for?

If you just want to talk just email any of us and we will get back to you!

It appears I just went on and on, I just wanted to welcome all the new people. :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ianm Apprentice
ianm
Posted
Hey, there is a new topic, what is everyone grateful for?

<{POST_SNAPBACK}>

celiac disease or gluten intolerance was the best thing that ever happened to me. I went through 36 years of pure hell because of it but now I am being rewarded for sticking it out. I used to be obese but I am now down to 160lbs and actually have abs. I got rid of a dopey wife who just couldn't accept my disease and traded her in for a wonderful new girlfreind. I almost lost my job but now I have so many great things happening career wise. The opportunities being presented to me are almost overwhelming. I now have so much energy that most "normal" people can't keep up with me. My girlfreind says... Ummmmmm I can't talk about that here. :lol: :lol:

When I finally figured out what the problem was I heartily embraced the gluten-free lifestyle and have never looked back. Discovering you have celiac disease means that you have been given a second chance at life. Embrace it now because you may not get a third chance. I am not very religous but God does provide a path for your life but it is up to you to find it and follow it. This doesn't mean it will be easy but you will be rewarded for your efforts.

cmom Contributor
cmom
Posted

I normally do very well on my gluten-free diet and accept it as my life. However, last week I had my "non-caring" moment. I was fixing taco salad, thought I still had a packet of gluten-free taco seasoning, but didn't. My dear husband, who is very supportive, went to the store to get me a packet. We live in a small town and the selection is very poor. He came home with Taco Bell seasoning in which the first ingredient was wheat flour. Poor husband didn't think of reading the label on that. He felt bad but I was so aggravated that he couldn't just go to the store and pick up something for me that I used it and ate it with the rest of the family. Also, lately, it has bothered me when we've been away from home and couldn't just pull in to any restaurant and get something to eat like everyone else does. But I know I will overcome! :lol:

Rikki Tikki Explorer
Rikki Tikki
Posted

Good Ianm, I am glad everything is going good for you! What is everyone else grateful for?

Guest nini
Guest nini
Posted

I was obese prior to my dx and now after losing 80 pounds I am well on my way to being the healthy slim looker that I know I am! That's what I'm grateful for!

Oh and the fact that my daughter will not have to go through years of being sick with no one knowing what was causing her symptoms and not calling her a hypochondriac because they couldn't find a physically apparent reason...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.