Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease With Other Medical Conditions


Karl Otto

Recommended Posts

Karl Otto Explorer

:blink:

First off, I was originally diagnosed with Celiac Disease, then, my oldest son. Now, my youngest son has been diagnosed with Celiac Disease through his most recent panel of blood test at the Childrens Hospital in Denver CO. For me it was not too difficult to accept this condition. My oldest son and youngest son, are finding it very difficult to changer their eating habits around. It is also very hard to find food groups to eat from as well. Foods that do not contain gluten are very limited with them. My oldest son has and youngest son are also being looked at and examined for Hyperinsulinism Hypoglycemia as well. I have it at present time together with Celiac Disease. It is a big storm coming down on us as a family at this time. I have my diet all worked out for me but, the sons do not have it worked out for them yet. So, right now we as a family have not been coping with this disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Karl Otto Explorer

B)

How many hear have other medical condition in addition to Celiac Disease? I was recently diagnosed with Hyperinsulinism Hypoglycemia in addition to the Celiac Disease. I have known all my life to have this condition but, was never really able to prove it until now. My older family member knew, I had some medical problems since birth but, they never really had a name for it. I was never abled to tolerate wheat gluten but, my mother made me eat it anyways back in the days since we were as poor as church mice. I also had a problem with hypoglycemia all my life right straight through the US Army and afterwards as well. I would loose weight and gain weight practically over night and some years I would be a thin and boney as a rail other years, I would be very over-weight. The last 10 years I have been very under-weight and stayed that way. I have had papitations as well as light heart attacks, and sudden heart attacks. All this was due to my diet and low blood sugar situation. My current doctors diagnosed me with Hyperinsulinism Hypoglycemia and Celiac Disease as well. I am now on a bland diet and it seems to be helping out allot but, it may be too late for me to live much longer according to the doctors. I am so glad that my children have been diagnosed and found out their condtion while they still have time to get everything under control in their lives, instead of having to wait so long as I had to do.

cassP Contributor

ive got Celiac, Hashimoto's, and Grave's.

why would your conditions make u not live too much longer???? i understand hypoglycemia, but i dont know anything about the other condition?

my blood sugar is so much more stable since going gluten free. and also i try to eat fat &/or protein with every meal- otherwise my sugar will drop.

i also suspect that i may have been starting to develop Interstitial Cystitis- but i dont feel that anymore since going gluten free.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,224
    • Most Online (within 30 mins)
      7,748

    Sherre Skeen
    Newest Member
    Sherre Skeen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.