Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ways Of Coping With Glutening....

glutenfreeinminnesota

Recommended Posts

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted

I have known of my Celiacs since November 2009...and I swear the glutenings feel worse every time it happens (luckily they are few and far between). When I get glutened I am up for trying anything! Today I got CC'ed and it was one of those bad, bad days :( So I was researching like crazy other ways to help this pain. I have tried ginger tea, but didn't really notice anything different and the taste to me is not good at all....?

So, I see there's an Enzyme? I know nothing about these, I don't know what it's called, or if there are different kinds? Advice anyone?

Then I found that marijuana can help? So I researched medical marijuana, and celiac disease is apparently covered along with many other digestive diseases and syndromes...but not in Minnesota. So that won't be an option for me for now, but has anyone tried this? Does this really work?

Any other ideas?? I can't believe I lived with this crap (literally haha) and pain for years, unknowingly poisoning my poor intestines....any advice is great! Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


josh052980 Enthusiast
josh052980
Posted

I think we all cope with it different, as the symptoms tend to vary from person to person. It kinda becomes a game of trying things that seem like they might work, and finding what works best for you.

When I get glutened, I feel like I have the flu for a good portion of a day, and then feel either achy all over my body, or lightheaded, or both. I lose my appetite, and be really irritable for a day as well. Digestive-wise, I'll have nausea, lower abdominal cramps, and get really bloated feeling.

There are a few things that seem to help me, being Junior Mints and Vernor's. Don't ask me why, but they just seem to work for me.

txplowgirl Enthusiast
txplowgirl
Posted

I have recently discovered something called K2 incense, you find it at a head shop, where they sell bongs and other things like that. You smoke it like the other, it is just herbs not the real stuff. I almost forgot, it does have something called synthetic cannabis. It dosen't show up in a blood test, but it is illegal in some states. You need to check to see if it's allowed in yours because it does cause impairment. It gets rid of my fibro pain and my glutening pains but don't plan on going anywhere or doing anything. I like it because it dosen't cause the munchies and I can still walk a straight line, lol, it just makes me numb all over. Just a suggestion, it's up to you. Good luck

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

Thanks for your suggestions!! I will have to try the Junior Mints thing as they are delicious!! I have never heard of K2, but I will look into that as well. Hopefully I can find something!! I have a very bloated tummy tonight :(

rgarton Contributor
rgarton
Posted

I found rubbing rose oil into my stomach, massaging clockwise helped alot and sipping black sweetened tea stopped all nausea and doesnt taste as bad as ginger tea! I do not like ginger tea at all. And just relaxing! Just lie down on the sofa and chill out reading or watching something, staying warm as well! I find if im cold i feel so much worse, being anemic i do often feel cold! Hope this helps!

  • 2 weeks later...
glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

I found rubbing rose oil into my stomach, massaging clockwise helped alot and sipping black sweetened tea stopped all nausea and doesnt taste as bad as ginger tea! I do not like ginger tea at all. And just relaxing! Just lie down on the sofa and chill out reading or watching something, staying warm as well! I find if im cold i feel so much worse, being anemic i do often feel cold! Hope this helps!

Thank you!! I will try the black sweetened tea.

Kate79 Apprentice
Kate79
Posted

Depends on the symptoms... I get terrible migraines w/nausea and appetite loss and irritability/emotional craziness (go figure). If I lived in a med marijuana state, I would definitely go that route - but I don't, so a dark room and a cool compress are the best I can do. And I don't think MJ would help w/diarrhea, gas, bloating - might work on stomach pain, though.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

OMG don't mess with that K2 stuff! :o It has cannabis-like designer drugs in it. The drugs have never been tested, nobody knows if they are safe. As soon as the government makes one illegal they invent another. You are a guinea pig for completely untested drugs. If you find pot helpful for fibro, see about getting the natural stuff for medical use.

Open Original Shared Link

I get mostly GI symptoms from gluten so I use Pepto Bismol and Immodium.

notme Experienced
notme
Posted

i stop eating b/c i have no appetite. also soooo tired. hot tea with sugar and lactaid.... hopefully a nap then i will feel progressively better but my digestion will be messed up for 4-5 days no matter what i eat. also feels like i am hit by a truck. i like the junior mints idea :)

Salax Contributor
Salax
Posted

It depends on the symptoms. MJ has helped me with the pain, nausea and general sick feeling. But I also have discovered that I now get dizzy with glutening. And I have taken dramamine to combat that, it helps and even with the nausea. I think many of us have had to try different things to see what works. You may have to try until something works for you. I hope you feel better. :)

notme Experienced
notme
Posted

oh, yeah, and have been self mj'd for years even before my dx, so i believe there is truth to it's medicinal qualities. it does help, even if it's an attitude adjuster. i get really irritable when i have been zapped, so it keeps other people from killing me. eventually, when i feel better it helps with the appetite. i agree with skylark - don't mess with that synthetic sh*t. get the kind God makes. if you can't find it, ask a senior citizen ;)

  • 1 month later...
glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

Thanks all for your replies!!! I won't try synthetic stuff....I am not much into ANY drugs, but was wondering about MJ....maybe someday they will legalize it ;) For now I will stick to my tea, pain relievers and immodium! And maybe some MJ someday....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,348
    • Most Online (within 30 mins)
      7,748
    jimiiiii
    Newest Member
    jimiiiii
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.