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Ways Of Coping With Glutening....

glutenfreeinminnesota

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glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted

I have known of my Celiacs since November 2009...and I swear the glutenings feel worse every time it happens (luckily they are few and far between). When I get glutened I am up for trying anything! Today I got CC'ed and it was one of those bad, bad days :( So I was researching like crazy other ways to help this pain. I have tried ginger tea, but didn't really notice anything different and the taste to me is not good at all....?

So, I see there's an Enzyme? I know nothing about these, I don't know what it's called, or if there are different kinds? Advice anyone?

Then I found that marijuana can help? So I researched medical marijuana, and celiac disease is apparently covered along with many other digestive diseases and syndromes...but not in Minnesota. So that won't be an option for me for now, but has anyone tried this? Does this really work?

Any other ideas?? I can't believe I lived with this crap (literally haha) and pain for years, unknowingly poisoning my poor intestines....any advice is great! Thanks!!

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josh052980 Enthusiast
josh052980
Posted

I think we all cope with it different, as the symptoms tend to vary from person to person. It kinda becomes a game of trying things that seem like they might work, and finding what works best for you.

When I get glutened, I feel like I have the flu for a good portion of a day, and then feel either achy all over my body, or lightheaded, or both. I lose my appetite, and be really irritable for a day as well. Digestive-wise, I'll have nausea, lower abdominal cramps, and get really bloated feeling.

There are a few things that seem to help me, being Junior Mints and Vernor's. Don't ask me why, but they just seem to work for me.

txplowgirl Enthusiast
txplowgirl
Posted

I have recently discovered something called K2 incense, you find it at a head shop, where they sell bongs and other things like that. You smoke it like the other, it is just herbs not the real stuff. I almost forgot, it does have something called synthetic cannabis. It dosen't show up in a blood test, but it is illegal in some states. You need to check to see if it's allowed in yours because it does cause impairment. It gets rid of my fibro pain and my glutening pains but don't plan on going anywhere or doing anything. I like it because it dosen't cause the munchies and I can still walk a straight line, lol, it just makes me numb all over. Just a suggestion, it's up to you. Good luck

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

Thanks for your suggestions!! I will have to try the Junior Mints thing as they are delicious!! I have never heard of K2, but I will look into that as well. Hopefully I can find something!! I have a very bloated tummy tonight :(

rgarton Contributor
rgarton
Posted

I found rubbing rose oil into my stomach, massaging clockwise helped alot and sipping black sweetened tea stopped all nausea and doesnt taste as bad as ginger tea! I do not like ginger tea at all. And just relaxing! Just lie down on the sofa and chill out reading or watching something, staying warm as well! I find if im cold i feel so much worse, being anemic i do often feel cold! Hope this helps!

  • 2 weeks later...
glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

I found rubbing rose oil into my stomach, massaging clockwise helped alot and sipping black sweetened tea stopped all nausea and doesnt taste as bad as ginger tea! I do not like ginger tea at all. And just relaxing! Just lie down on the sofa and chill out reading or watching something, staying warm as well! I find if im cold i feel so much worse, being anemic i do often feel cold! Hope this helps!

Thank you!! I will try the black sweetened tea.

Kate79 Apprentice
Kate79
Posted

Depends on the symptoms... I get terrible migraines w/nausea and appetite loss and irritability/emotional craziness (go figure). If I lived in a med marijuana state, I would definitely go that route - but I don't, so a dark room and a cool compress are the best I can do. And I don't think MJ would help w/diarrhea, gas, bloating - might work on stomach pain, though.

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Skylark Collaborator
Skylark
Posted

OMG don't mess with that K2 stuff! :o It has cannabis-like designer drugs in it. The drugs have never been tested, nobody knows if they are safe. As soon as the government makes one illegal they invent another. You are a guinea pig for completely untested drugs. If you find pot helpful for fibro, see about getting the natural stuff for medical use.

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I get mostly GI symptoms from gluten so I use Pepto Bismol and Immodium.

notme Experienced
notme
Posted

i stop eating b/c i have no appetite. also soooo tired. hot tea with sugar and lactaid.... hopefully a nap then i will feel progressively better but my digestion will be messed up for 4-5 days no matter what i eat. also feels like i am hit by a truck. i like the junior mints idea :)

Salax Contributor
Salax
Posted

It depends on the symptoms. MJ has helped me with the pain, nausea and general sick feeling. But I also have discovered that I now get dizzy with glutening. And I have taken dramamine to combat that, it helps and even with the nausea. I think many of us have had to try different things to see what works. You may have to try until something works for you. I hope you feel better. :)

notme Experienced
notme
Posted

oh, yeah, and have been self mj'd for years even before my dx, so i believe there is truth to it's medicinal qualities. it does help, even if it's an attitude adjuster. i get really irritable when i have been zapped, so it keeps other people from killing me. eventually, when i feel better it helps with the appetite. i agree with skylark - don't mess with that synthetic sh*t. get the kind God makes. if you can't find it, ask a senior citizen ;)

  • 1 month later...
glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

Thanks all for your replies!!! I won't try synthetic stuff....I am not much into ANY drugs, but was wondering about MJ....maybe someday they will legalize it ;) For now I will stick to my tea, pain relievers and immodium! And maybe some MJ someday....

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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