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Completed Endoscopy


jemms

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jemms Apprentice

Had my endo done today and the photos of the stomach and esophagus came back normal. the doctor said that it looked good. I am waiting to see what the biopsy shows. Is it normal to have the stomach look good but the biopsy show damaged villi?

Also, he said that since I have the antibodies for Celiac's to start with the gluten free diet and see a dietician. I want a definitive yes or no. This is driving me nuts!!Thanks so much!!


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mushroom Proficient

You have to wait for the microscopic report; damage is often not visible to the naked eye.

ravenwoodglass Mentor

Since you have antibodies you already have a definate yes even if the biopsies are normal. Damage can be patchy or can be in an area that is beyond the reach of the scope. Do follow your doctors advice and start the diet strictly as you do need to be on it.

jemms Apprentice

thanks so much for your replies!! I am so grateful for this forum!

maximoo Enthusiast

Jemms: How was it? How long were you under? Was your throat sore afterwards? How was the anesthesia administered, pill, mask, shot?

raven: What is the point then of having an endoscope then? just to see if villi is damaged? but then Dr might snip an undamaged section. With over 20 feet to choose from as you say its quite possible not to get an accurate sample. I am more on the side now of not having my kids get the endoscopy. I don't think its worth the risk and the time the more I learn.

jemms Apprentice

Maximoo,

It was painless and an overall good experience. I had an IV put into my hand and they administered the anesthesia when I got wheeled into the procedure room via the IV. I think I was only out for about 35 minutes. I had no problems afterward with a sore throat. All went well. :D

ravenwoodglass Mentor

raven: What is the point then of having an endoscope then? just to see if villi is damaged? but then Dr might snip an undamaged section. With over 20 feet to choose from as you say its quite possible not to get an accurate sample. I am more on the side now of not having my kids get the endoscopy. I don't think its worth the risk and the time the more I learn.

For a long time the only way to diagnose was the endo and some doctors still see it as the 'gold standard'. More doctors are starting to diagnose with just positive bloodwork and response to the diet. Sometimes a ped or GP will give the diagnosis once the persons health has returned as they usually see the full effects of the impact over the years whereas a GI doctor may only see the person once before the endo and once afterwards. Personally with positive bloods I would just consider myself diagnosed. However the endo can be useful as a 'baseline' with doctors able to check if damage is still present after a few months on the diet. Although with positive blood work healing on the diet can also be checked by seeing if the antibody levels have gone down. IMHO it is up to the person to decide if they want to have the procedure done. There are downsides and upsides to it.


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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