Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

#*@($ !#*^% Doctor!

thleensd

By thleensd
in Doctors

Recommended Posts

thleensd Enthusiast
thleensd
Posted
  • Author

Speaking of "safe" and clean...We make our bread and the only place we eat out is in an entirely gluten-free cafe. I got lucky-- there is one about 45 minutes away. Just awesome. The first time I ate there, I started to cry....I knew I would be able to eat and not get sick :D

Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe!

Can I ask what state/country you're in?

JER due to BDA ... being dicked around? :lol: We kill me. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


thleensd Enthusiast
thleensd
Posted
  • Author

My dog's veterinarian spends more time with her than most of the doctors have spent with me.

Yep, JER.

HA! Totally. I wish my doc was my cat's vet!!

IrishHeart Veteran
IrishHeart
Posted

Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe!

Can I ask what state/country you're in?

JER due to BDA ... being dicked around? :lol: We kill me. :lol:

:lol: :lol: :lol:

I am in upstate NY! :)

mushroom Proficient
mushroom
Posted

HA! Totally. I wish my doc was my cat's vet!!

No, no - you have to let someone in the family be well treated :P

IrishHeart Veteran
IrishHeart
Posted

You know...my cat's Vet is so loving and caring and leaves no stone unturned when figuring out what ails her....I want her to be MY doctor... :lol:

thleensd Enthusiast
thleensd
Posted
  • Author

No, no - you have to let someone in the family be well treated :P

Oh wait.... haha... I guess I should've been more specific. I wish that my cat's vet (who is awesome) was my doctor, too! lol! :P

IrishHeart Veteran
IrishHeart
Posted

Oh wait.... haha... I guess I should've been more specific. I wish that my cat's vet (who is awesome) was my doctor, too! lol! :P

I thought that was what you meant...! :lol: :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

No, no - you have to let someone in the family be well treated :P

Thank you for a good belly laugh! Love your sense of humor. :D

cassP Contributor
cassP
Posted

Me, too...that's when they reach for the pad to write antidepressants and anti-anxiety scripts :rolleyes: ....like that's the answer.

And I totally agree about the whole foods approach. Helped me immensely.

omg TOTALLY!!!!! when i broke down in front of my PCP, telling her that i KNEW that Synthroid was not the right medication for me, she was like " uh... i think there's something else going on here"... she wanted to explore antidepressants!!!!! <_<

i went into a walk in clinic months ago, sobbing- i was in so much pain- my stomach muscles were spasming- it was a STABBING pain.... i told the doc i wanted muscle relaxers.... he was resistant, but instead wanted to push Percocet or Lortab on me- maybe 10 years ago i would have jumped on that- but i was like "NOOOOOOO i dont need to mask the pain and i DONT NEED CONSTIPATION... i NEED MY MUSCLES TO RELAXXXXX" haha turns out i needed Vitamin D, which my doc never explained.

now im almost out of my Xanax .25 that i take twice a week after ive been gasping for air all day- and my Endo doesnt want to give me any, and wants to send me to a pulmonologist- I DONT NEED A PULMONOLOGIST!!!!!! i NEED some relief when im suffering panic attacks from swinging to hyper to hypo and back again... GEEZZZZZZZZ... nurse said i could have meds for palpitation- i said "i CAN HANDLE THE PALPITATIONS, i CANNOT HANDLE THE SUFFOCATING " :angry::angry::angry:

uh.. can u tell im suffering from JER today?

cassP Contributor
cassP
Posted

OMGGGG "BDA"????? u guys are HILARIOUS!!!!! i love it... yes i sometimes suffer from JER & BDA :lol:

someone please send this thread to all of our doctors LOL

Roda Rising Star
Roda
Posted

I buy bob's red mill gluten-free flours. I do consider myself one of the super-sensitives, though. I feel special? :P

>>

Just thought I would throw something out there for you to chew on. I went 8 months chasing down what my problem was starting in Jan. 2010. From every aspect I was gluten free. I was suffering from epigastric/RUQ pain, diarrhea, reflux, fat malabsorption, etc. I didn't think it was gluten cc because that wasn't what my symptoms were before. Many tests later my GI wanted to put me on steriods since my gliadin Igg was still positive. I refused and told him that I would look again at what I was eating and pretty much start from scratch. He did give me a RX for creon which I took for about 3 months during the time I decided to do this. It helped a lot (the RX). What did I discover? I am sensitive to ANY Bob's Red Mill gluten free products. Why? I believe that there is a low level of gluten free oat cc and that was getting me. I knew at 7 months into the gluten free diet I couldn't handle gluten free oats. I reacted so bad, but never gave the cc from then any thought until Aug. 2010. I also found that some main stream products that I previously ate I was no longer able to. I tested out the Bob's again in Jan. of this year and ate some gluten free baked goods from a dedicated gluten free bakery in FL where they used Bob's flours. Within 2-4 days all my symptoms came back and I didn't get over it for a good week later. Just a week ago I caved and ate a few cool ranch doritos with my youngest son. We both paid the price for that one. I started feeling bad the next day but the big D and bloating started 2 days later. My little boy was complaining of a tummy ache too that day and he was having bad mood swings. We are both on the mend now a week later. My reactions have changed. Before I would just get horrible reflux, bloating and constipation. I never thought I would say this but, the former reactions were easier to deal with.. :unsure::P:lol:

IrishHeart Veteran
IrishHeart
Posted

OMGGGG "BDA"????? u guys are HILARIOUS!!!!! i love it... yes i sometimes suffer from JER & BDA :lol:

someone please send this thread to all of our doctors LOL

I don't know, Cass....I met some pretty humorless jerkwads the past few years...I don't think they would get it!! :lol: :lol: :lol: :lol:

IrishHeart Veteran
IrishHeart
Posted

i NEED some relief when im suffering panic attacks from swinging to hyper to hypo and back again... GEEZZZZZZZZ... nurse said i could have meds for palpitation- i said "i CAN HANDLE THE PALPITATIONS, i CANNOT HANDLE THE SUFFOCATING " :angry::angry::angry:

uh.. can u tell im suffering from JER today?

CASS! This is what happened to me for 2 years. I am not saying you are the same as I am, but I just want to tell you...I was put on Synthroid for "hypo" (I was exhausted, losing hair and FAT and puffy. My TSH was 5.3 one day 4.3 the next week....) then, I zoomed to HYPER and jumping out of my skin...my brain buzzing with anxiety and trembling. Heart bursting out of my chest. Insomnia. RAPID weight loss (90 lbs.) plus all the celiac symptoms..It took me a long time to convince another doctor to check my thyroid antibodies...LOW. I was on meds for NO GOOD REASON!!...for 2 years. Turns out, the unDxed celiac was bouncing my TSH all around...but 2 endos could not agree with ME that I was WORSE for taking the meds. :blink:

I went off the meds a year ago and my thryoid functions normally..a steady 2.4 TSH and T3 and T4...normal..

Just my experience but anytime someone posts with this hyper-hypo fluctation, palpitations and feeling of suffocating...I just feel so bad because I had it too. Hope you level off and soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
    2. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    3. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    4. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748
    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.