Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prilosec And Other Acid Inhibotors

prisjo

Recommended Posts

prisjo Newbie
prisjo
Posted

I have celiac desease plus acid reflux. Recently I started experiencing symptoms of viatimin deficieny because I was taking a prescription of 40 mg prilosec prescribed by my dr. Has anyone experience this and if so what did you do. Also I would like to know the best brand of vitamins to take that are gluten free. If this has already been discussed just pooint me to the post as this is the first time I have posted anything on this site. Thanks

Prisjo

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Syl Rookie
Syl
Posted

Sorry to hear about the vitamin issues, in the same boat myself. Finding the root cause of the acid reflux and not just covering up the symptoms with medication is the most important thing you can do. Unfortunately the majority of conventional doctors will send you away with PPI's no matter what symptoms you're having so you need to be assertive and attempt to find out WHAT is causing the acid reflux so you can determine the right approach. As you've experienced yourself these drugs taken over the long haul will only add to your problems (unless you have an ulcer, which they can then help the healing process by stopping the acid.) There are many changes you can make like eating smaller meals, avoiding acidic foods like tomatoes, coffee, etc, and you could try taking a tablespoon of Braggs Apple Cider Vinegar diluted in water with every meal. This helps increase production of acid in the stomach which is what you want so that food is properly digested. The action of PPI's kills the stomach acid therefore leading to a low production, and the problems eventually snowball :(

As far as a good gluten free multi, I'd recommend Country Life Liquid Multi-vitamin. It's the one I was recommended when I first came on here 9 months ago and it was a huge help in regaining my energy and helping the healing process. It's very complete and if purchased online it's about 15-20 dollars which is good considering you'll get a month or so out of it.

cap6 Enthusiast
cap6
Posted

I have been on 2 Prilosec a day for over a year & half. Knowing how bad they can be for you over the long haul I have tried to wean off but every time the acid has become so much worse, feels like pure acid pouring down my throat. Three weeks ago I started to take pure liquid Aloe, 2 oz two x's a day and have weaned down to just one Prilosec a day. So far.... feeling good and no acid! Almost afraid to cheer too loudly but it may be working and I would rather be doing something natural. Figured i would give it a month before starting to wean off of the 1 Prilosec a day. Maybe Aloe would help you. The health food store suggested it to me.

prisjo Newbie
prisjo
Posted
  • Author

I have celiac desease plus acid reflux. Recently I started experiencing symptoms of viatimin deficieny because I was taking a prescription of 40 mg prilosec prescribed by my dr. Has anyone experience this and if so what did you do. Also I would like to know the best brand of vitamins to take that are gluten free. If this has already been discussed just pooint me to the post as this is the first time I have posted anything on this site. Thanks

Prisjo

Thanks Syl

I get alot of info about Celiac, but generally there are no specifics as to what really works. My doctor took a blood sample to see if I have B-12 deficientcy, but also schudled me an appointment with a neuro guy. I would have rather found out about the B-12 before going to another Dr who may or may not know about Celiac. Ah such is life.

prisjo Newbie
prisjo
Posted
  • Author

I have been on 2 Prilosec a day for over a year & half. Knowing how bad they can be for you over the long haul I have tried to wean off but every time the acid has become so much worse, feels like pure acid pouring down my throat. Three weeks ago I started to take pure liquid Aloe, 2 oz two x's a day and have weaned down to just one Prilosec a day. So far.... feeling good and no acid! Almost afraid to cheer too loudly but it may be working and I would rather be doing something natural. Figured i would give it a month before starting to wean off of the 1 Prilosec a day. Maybe Aloe would help you. The health food store suggested it to me.

Well Cap6 I have just invested in a supplement drink that is supposed to be loaded with good things for Celiacs, but it looks and tastes like sludge and is a funky green color. lol So I guess aloe is probably not something I would add right now but thanks for the input. P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      8

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

      Thanks this is helpful!
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    3. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    4. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748
    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.