Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Caffeine


GFreeMO

Recommended Posts

GFreeMO Proficient

I know that this is probably not celiac related but does anyone else have problems drinking caffeine? I get very nervous and very uncomfortable and anxious when I drink any caffeine. If I have a cup of coffee in the morning, I am anxious all day from the caffeine. I avoid caffeine now but I met a friend this morning for coffee and I ordered what I thought was decaf tea and after drinking it, I noticed that it was regular tea and I have been anxious ever since from the caffeine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alex11602 Collaborator

I know that this is probably not celiac related but does anyone else have problems drinking caffeine? I get very nervous and very uncomfortable and anxious when I drink any caffeine. If I have a cup of coffee in the morning, I am anxious all day from the caffeine. I avoid caffeine now but I met a friend this morning for coffee and I ordered what I thought was decaf tea and after drinking it, I noticed that it was regular tea and I have been anxious ever since from the caffeine.

I honestly can't remember if caffeine made me anxious since it's been over a year and a half since I had it last, but I do know that it hurts my stomach really bad. I can get away with maybe one sip of my husband's soda, but any more then that and I'm done.

txplowgirl Enthusiast

I had to cut the caffine out myself because I finally realized that it caused shakeing on my insides, heart palpataions, insomnia and fatigue. Found that out in doing an elimination diet.

Jenniferxgfx Contributor

Oh em gee. I canNOT do caffeine any more. One can of soda and I'm up for days. It's comical at this point. Caffeine is just not happening any more.

The funny part is that I used to be a coffee junkie. I loved caffeine and worked better with it, drank pot after pot in a day with no sleep problems. Oh, to be young again. ;)

GFreeMO Proficient

Well, i'm glad that Maxwell House makes a decaf! :D

Next time I go to that coffee shop, i'm getting hot water and bringing my own tea bag.

domesticactivist Collaborator

Both my parents and one grandparent had to cut it out due to heart issues being caused by it.

I realized on my own, way back in high school it wasn't right for me - heightened my anxiety and didn't keep me awake, actually made me all foggy.

I drank it in extreme moderation (so yummy) for some time as an adult, but realized even one cup a week would get me addicted and withdrawal is no good. So I had cut out coffee.

Then I had a week where I had a chai latte every day for a week (not realizing that duh, it was black tea!) and it triggered the worst hypomanic episode I've had in years (I used to struggle regularly with mania and depression, in my late teens/early 20s). That was a wake up call for me that caffeine in itself is not a good thing for me AT ALL. I could have a half cup of decaf a couple times a week with cream without negative effects.

This past year I had two horrible experiences where I had a little bit of coffee that someone else had put non-dairy creamer in. It made me super sick - vomiting, terrible abdominal pain, migraine auras, headaches, and brain fog, so that made staying away from coffee that much easier.

Now I'm well and truly off the stuff!

annegirl Explorer

Yep, caffeine is a no go for me now. Coffee will make my joints hurt like there is no tomorrow (yeah, I'm only 28) and I get a massive dose of insomnia. Just plain caffeine in tea (can't have any pop because of corn) makes my hands hurt and I get jumpy. I've transitioned everything to decaf, except for coffee which is just out.

I have a theory on this actually. I don't really think anyone should drink caffeine. I think it does affect all of us in different ways etc. It's just that we are more conditioned to pay attention and listen to what our body is telling us after ingesting something. We also have already begun working on the self control to not eat or drink something that makes us sick. So we're more apt to cut something out that causes discomfort.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.