Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Location ?!

Hopeful1950

Recommended Posts

Hopeful1950 Explorer
Hopeful1950
Posted

I recently had a breakout. Just a few blisters in a couple of places, but one alarming new place.

Has anyone ever gotten a breakout on their genital area?

I went to the gynecologist and she ruled out everything else and said the thinks it is probably DH.

This is really disturbing, not to mention extremely uncomfotable. Why did I think this area was safe? :o

If anyone has had this experience, any suggestions for relief would be much appreciated.

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jenniferxgfx Contributor
Jenniferxgfx
Posted

I get spots absolutely everywhere. Nothing is sacred :/

ravenwoodglass Mentor
ravenwoodglass
Posted

Yea that is to me the most uncomfortable place for the breakouts. It is not like we can scratch there when it itches. :(

I found cool compresses to be the most helpful when that happens. I also stopped using scented panty liners for that reason as I seemed to get blisters from some of them.

Newsy Rookie
Newsy
Posted

I have to watch out for any G containg (paper) products, even one placed "down there"!

One might think a paper product would be safe but apparantly not, as I broke out all over from changing dryer sheets recently...made by the following co...

Here is a quote from their manufacturers site:

Our(maxi) pads are made of a combination of absorbent materials, polyolefins, adhesives, and a silicone-coated paper. The top layer is a non-woven polyolefin cover sheet. The absorbent materials consist of chlorine free wood pulp, and Lysorb, an absorbent gel. Lysorb, also known as SNAP (super absorbent natural polymer), is a polysaccharide derived from wheat. Polysaccharides are complex sugars found in many natural substances, like the fibers of cotton, wood, and wheat.

I don't care who says G can't be absorbed thru the skin. I know I have Celiac and DH, and I can't be in the same ZIPCODE as gluten. :angry:

salexander421 Enthusiast
salexander421
Posted

I have to watch out for any G containg (paper) products, even one placed "down there"!

One might think a paper product would be safe but apparantly not, as I broke out all over from changing dryer sheets recently...made by the following co...

Here is a quote from their manufacturers site:

Our(maxi) pads are made of a combination of absorbent materials, polyolefins, adhesives, and a silicone-coated paper. The top layer is a non-woven polyolefin cover sheet. The absorbent materials consist of chlorine free wood pulp, and Lysorb, an absorbent gel. Lysorb, also known as SNAP (super absorbent natural polymer), is a polysaccharide derived from wheat. Polysaccharides are complex sugars found in many natural substances, like the fibers of cotton, wood, and wheat.

I don't care who says G can't be absorbed thru the skin. I know I have Celiac and DH, and I can't be in the same ZIPCODE as gluten. :angry:

That's so crazy! I used to get really itchy from using pads, I started using cloth pads about a year ago and they don't make me itchy at all. Kinda makes me wonder! Thanks for sharing :)

  • 1 month later...
schelbo Newbie
schelbo
Posted

OH YEAH! I have it from front to back. What's worse is I have a chronic cough (diagnosed as asthma, not so sure now)and a very weak bladder. Imagine peeing on yourself every few minutes and now I'm finding the reason it's so bad down there is because of the PADS!!!!!!! OMG!!!!! It literally hurts to use the bathroom. Can this get any worse?

I'm embarrassed to go to my OBGYN! And I'm not gonna let my Derm look at my girlie parts. I won't even let my husband look. HELL, I DON"T WANNA LOOK MYSELF!!!!!

Is GOD trying me? I have contemplated suicide in the past, but I have a 10 yr old daughter and I would NEVER leave her!

I was self diagnosed a few days ago. Decided to use a flush from the health foods and stay away from G as best I can.

Looking back, I think I've had this since I was about 13. I'm now 40 and just figuring it out. My Derm diagnosed me with DH a few years ago but she didn't explain it. Went home, googled it and saw that it mentioned iodine, which is in all shellfish and I knew I was allergic to that, so I fugured I would stay away from seafood. NOT WORKING! A few nights ago it was so bad, I got up and googled the DH again and read in depth. A lightbulb went off when I found this site.

So many of my symptoms matched the test.

Two miscarriages in the past 8 month, gas (all my life), DH, fatigue, irritability (who wouldn't be?), constipation and unexplained sudden bouts of joint pain.

There should be laws demanding gluten be labeled as such!

Good luck to you. Please wish me luck too.

pricklypear1971 Community Regular
pricklypear1971
Posted

Sorry to hear you have it down there Schelbo. My suspected DH (supposed to have it biopsied but doubting my strength to purposely gluten myself) is under my arms - so my lymph glands swell, i get pit b/o when the scans form, I can't wear a bra without aggravating it and causing pain...and since I'm a D cup that limits my life quite a bit during flares.

Do you notice that friction aggravates your DH? I've just gotten to the point where I know what it is and got it into remission and then accidentally glutened myself...so I haven't been able to test the friction theory.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.