Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some More Results In


Meg123

Recommended Posts

Meg123 Explorer

I just had my biopsy taken (ie a few hours ago) and will get my results back next week, but he gave me a copy of the report.

It said that everything looked normal except that the 'Z line was abnormal at 40cms' and this was 'possibly from reflux'.

Does anyone know what a 'Z line' is?

He took the 6 biopsys but all looked normal. :unsure:

Anyway, I also got the results back from a faecal test which I'm hoping someone can explain to me.

I thought he was looking for malabsorption and this is what the report says.

Faecal Pancreatic Elastase

Faecal Elastase > 500 Ref range (>200) ug/g faeces

What was he looking for with this does anyone know, and does this mean mine was within normal limits?

I think I must be one of the pple who don't have celiac disease who get a positive blood test. since so far it's not looking good for a positive result.

Although my iron levels are ALWAYS low even on constant supplements, my B12 levels were ok. My folic acid levels were ok too, but then, Ive been on folic acid due to being fertile and married etc.

From what I've read on here and heard from celiac's the GI can usually SEE the damage and see white patches etc when doing the gastroscopy.

Thanks for your help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



maximoo Enthusiast

From what I understand the endo can have a 30% false positive rate. It cannot always be seen so thats a misnomer. They can only takes samples from a short section like 6 inches but damage could be elsewhere along the 20+ feet of intestinal track. So if you have antibodies most people will just go gluten-free & retest the blood every 6 mths if the antibodies decrease to normal limits then you know you are on the right track.Theres also a new article that was just posted a few dys ago that stated a minimum of 8-11 samples should be taken. I'm sure if you look under article thread you can find it.

Can't offer anything on yr othr tests but Im sure someone will come along who can,

Good Luck!

ravenwoodglass Mentor

If you had positive blood work you have celiac no matter what the results of the biopsies are. There is a up to a 30% false negative rate on both blood and biopsy so if one is positive it is positive.

The doctor can't tell by just looking at the tissue that was biopsied whether it is positive or negative. It needs to be looked at microscopically. Hopefully you are now doing a strict trial of the diet as with positive blood work you do have celiac or gluten intolerance.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,748
    • Most Online (within 30 mins)
      7,748

    NYC Sidewalk Repair
    Newest Member
    NYC Sidewalk Repair
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.