Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh For The Love Of Mike


NoodleUnit

Recommended Posts

NoodleUnit Apprentice

Massive rookie error just now. Fancied an easy meal tonight, so I picked some Uncle Ben's Sweet and Sour. Felt the symptoms come on before I'd finished the plate :( It had no mention of anything gluten wise at all, but on their website it's rather confusingly indicated as not gluten free. The only thing I can imagine that contains gluten in the ingredients is the vinegar.

I'd been doing okay today too. Now I have a night of neurological hell ahead of me, not to mention the next few days. I've been having trouble with other things like dairy and nightshades, but this is the first time in weeks I've been glutened. Have I just reset the healing process to square one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

Just a minor setback. No biggie. We all make mistakes. Back in the saddle! ;)

For me, I notice that if I do get glutened on accident, the worst thing that I can do is stress about it. It makes things worse.

Feel better!

kareng Grand Master

I have not heard of Uncle Ben's Sweet & Sour. In the US vinegar is apple based unless it says malt. Are you in another country? If it lists soy sauce, that could have wheat in it...Just looked at the UK website and the Sweet & sour sauce clearly lists wheat twice.

NoodleUnit Apprentice

Can you point me to the link kareng? The ingredients on the bottle make no mention of wheat all, in any form.

NoodleUnit Apprentice

Actually, found it. Open Original Shared Link

The sauce I had ( original ) has no mention of wheat, spicy does though.

lynnelise Apprentice
Open Original Shared Link
NoodleUnit Apprentice

Thanks :)

The spicy one does list wheat, my one doesn't, yet if you go here:

Open Original Shared Link

... then the sauce is listed as not gluten free. All I know is I have very definitely been glutened. Even the back of my eye is burning.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Can you point me to the link kareng? The ingredients on the bottle make no mention of wheat all, in any form.

Your right that was the spicy. My old eyes didn't see that tiny print. The regular doesn't list wheat. Odd. You would think they were the same except for some extra peppers.

bartfull Rising Star

Probably made in the same vat as the spicy. Cross contamination.

NoodleUnit Apprentice

Probably made in the same vat as the spicy. Cross contamination.

Makes sense to me. Would explain why they don't check that gluten free box, for sure.

Thanks for the replies folks :)

  • 1 month later...
NoodleUnit Apprentice

:(

I got done again today. Was assured by the waitress that the chef had said a sausage on my breakfast plate was gluten-free ( the rest of it couldn't have had gluten ), within 20 minutes I was starting to feel glutened, hours later I'm in a fairly bad way with GI symptoms, can't feel two fingers on my right hand ( it's almost as if my pinky and the next finger are taped together ), feel nauseous, extremely agitated ( like I've had waaay too much coffee - anyone else get that? ) and simply can't think straight.

Worse, my partner, probably rightly, thinks I was stupid to have the sausage in the first place, so now I'm in the dog house. I just can't seem to get my head round the idea that I really do have this condition.

Brooksbelle Newbie

Newbie here too!

My mistakes have been (in chronological order) Rice Krispies (malt!), Fried Green Tomatoes (breading--DUH!), Modified Food Starch (tricky).

The learning curve is steep--but I'm getting there. Reading a little bit every night to educate myself. Conclusion? Gluten is in about 95% of processed foods. :blink:

ravenwoodglass Mentor

:(

I got done again today. Was assured by the waitress that the chef had said a sausage on my breakfast plate was gluten-free ( the rest of it couldn't have had gluten ), within 20 minutes I was starting to feel glutened, hours later I'm in a fairly bad way with GI symptoms, can't feel two fingers on my right hand ( it's almost as if my pinky and the next finger are taped together ), feel nauseous, extremely agitated ( like I've had waaay too much coffee - anyone else get that? ) and simply can't think straight.

Worse, my partner, probably rightly, thinks I was stupid to have the sausage in the first place, so now I'm in the dog house. I just can't seem to get my head round the idea that I really do have this condition.

Most sausages are gluten free. Perhaps there are some with gluten but I don't know of any offhand. The problem was more likely, IMHO cross contamination from the grill. Many places cook eggs, pancakes, french toast, bacon and sausage all on the same grill. Even though the grill is usually scraped that would not be enough to prevent CC. It is best if we ask that our food be cooked in a seperate clean pan. There are also some places that add a bit of pancake batter to their scrambled eggs to make them fluffier so if you should order scrambled eggs someplace make sure they don't do that.

kareng Grand Master

Most sausages are gluten free. Perhaps there are some with gluten but I don't know of any offhand. The problem was more likely, IMHO cross contamination from the grill. Many places cook eggs, pancakes, french toast, bacon and sausage all on the same grill. Even though the grill is usually scraped that would not be enough to prevent CC. It is best if we ask that our food be cooked in a seperate clean pan. There are also some places that add a bit of pancake batter to their scrambled eggs to make them fluffier so if you should order scrambled eggs someplace make sure they don't do that.

Actually, I have heard from people in the UK that many sausages are not gluten-free. In the States they almost always are gluten-free.

NoodleUnit Apprentice

Yeah, unfortunately in the UK you have to be very careful, most sausages are padded out with wheat in some way. There are specific Free From varieties, but otherwise best to avoid it. Which is why I'm annoyed that the chef obviously wasn't switched on. I've been there before and they've always done me right, but this time it was a new chef.

Fairy Dancer Contributor

You'd be surprised what they stick gluten in in the UK including the humble banger! Fortunately I rarely consume sausages whether I am eating gluten free or not as I prefer my meat to look as meat should...like err..meat...

kareng Grand Master

gluten free or not as I prefer my meat to look as meat should...like err..meat...

:lol:

Fillers in sausage or hot dogs Is considered cheap and poor quality here in the US.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    Jane02
    Newest Member
    Jane02
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.