Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok. Help...


notme

Recommended Posts

notme Experienced

diagnosed 10 months ago and have been gluten free ever since. OH my gosh, what a huge difference in my quality of life! and put on 20 lbs so i don't look like skeletor anymore. i am still thin but putting on about 2 lbs a month so i'm feeling like i'm making progress. lately i have been just: TIRED. especially after eating? anyone experience this? i had been misdiagnosed for 25 years prior to getting celiac dx and going gluten-free. my thinking has been so much clearer (i actually did my taxes in one day this year lol) my digestion is continuing to improve. i have been cleaning (YAY!) could the cleaning solvents be affecting me? maybe i am over-doing it?? i am still tweaking my diet a little at a time (making minor adjustments, dealing with getting glutened/cc'd, going back to keeping a food journal if i can't figure something out) i have been trying to get to bed earlier but i still end up sleeping wayyy late and needing a nap after eating. i have been stressing about the almighty dollar since i am still not up to working. could stress be doing this to me? are my intestines taking up my energy to heal? also - the Wierdest Dreams Ever - could this be making me tired?? any help/experience(s) would be helpful. thank you all once again. husband is looking over my shoulder, saying "uh-oh" because i started a topic lol he knows i'm serious. he says "thank you" too.

ps - i totally hijacked somebody's thread the other day any i sincerely apologize. feel free to retaliate. i deserve it :( sorry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

I've been suffering extreme fatigue for a year and a half with no answers so far. Most doctors immediately suggest my thyroid so that is something you should look into. Secondary food intolerances are another possibility since you get tired after eating. B12 levels are something else to look into. Also are there any other symptoms? Could you have a virus like mono?

bartfull Rising Star

This may not be related, but then again, maybe it is...I have only been gluten free for a couple of weeks now, and I have been having waves of fatigue wash over me, especially shortly after eating. A friend told me I should hold off on the fruit and carrots until later in the day because they make my sugar spike, followed by a steep fall.

So for the past couple of days I have been eating lots of protein for breakfast and lunch, then have my fruit in the evening. I am not so tired now, and after having a nice juicy peach after supper, I get so sleepy I go to bed and sleep like a baby. I thought maybe after I had healed i could go back to eating fruit any time, but maybe not?

notme Experienced

my dr checked all my levels last september (had to reschedule my check-up in may and the next appointment they had is for september) and they were all good, even my b-12 was good and iron was slightly elevated. i gave myself a little pat on the back for being strict with my diet (never thought i would be successful at it!) i took it as a good sign that i was finally absorbing nutrients. my skin (complexion) isn't blotchy like it used to be before dx and my muscles are gaining tone. i don't work out but i chase 2 two-yr olds and a 7 yr old for exercise lol. i skipped dairy for about 6 months and discovered that soy is not my friend so i avoid it. i am still not drinking regular milk (i use lactaid instead) and am only eating mostly hard cheeses and greek yogurt. recently i am giving peppers a rest unless i completely can't resist but they just make me uncomfortable - not like getting gluten: the gift that keeps on giving.... what are other symptoms of thyroid? i have had mono before but i had other symptoms other than exhaustion. blahhh i have a stack of recipes in front of me and beautiful peaches that are ready to be dessert. and no energy. :(

notme Experienced

hmmm. sugar spike. i never considered that at all! last night we had beet greens fresh from the garden for dinner. and i do like my fruit (and everything is coming into season so i have been trying to take advantage of that) strawberries were on sale so my son brought over about 4 qts and we pigged out on them the other night. i am not a 'sweet eater' a big splurge for me is 1/2 cup of ice cream or *one* andes candy lol. i was hoping the fruit would give me extra energy :) and vitamins :) but i suppose what goes up must come down. maybe i am bottoming out? i should know this stuff b/c my kid is type 1 diabetic lol...

txplowgirl Enthusiast

Hey hon, I have a feeling you need to drop ALL dairy for a while, it causes me fatigue. Also a side note. I have hauled strawberries and they are shipped in containers packed with wheat straw!. Unless you grow strawberries yourself or get them from an organic farmers market they are a big NO NO!.

notme Experienced

Hey hon, I have a feeling you need to drop ALL dairy for a while, it causes me fatigue. Also a side note. I have hauled strawberries and they are shipped in containers packed with wheat straw!. Unless you grow strawberries yourself or get them from an organic farmers market they are a big NO NO!.

i think you might be right. my energy levels have been off since i started back with dairy. ugh. i am the biggest cheese lover! well, i did it before; i can do it again. it's wierd because whatever i am eating it feels like it takes all my energy to digest?? stupid junk body... :/ back to the food journal.

o. my. gosh! wheat straw. who would think to ask that question :) i guess no strawberries for me - i was thinking of going to a berry farm to 'pick your own' but i think i might just try to grow them. that way i'll know :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.