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Very Angry

Laurie H

By Laurie H
in Coping with Celiac Disease

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Laurie H Newbie
Laurie H
Posted

A friend posted this on my facebook page. Open Original Shared Link

I was interested until #5. She clearly states that when you heal your gut you can start eating gluten again. I got into it with her on her blog, telling her about celiac and how it's genetic. She does not believe it's genetic because so many people are newly diagnosed rather than 10 years ago. DUH.

I didn't know where else to pots this, but she is clearly uneducated. She spouted off about Gut and Psychology Syndrome book, which, if I'm not mistake, does NOT say you can start eating gluten again, just that you can heal your gut.

Anyone here care to take this on? It's the fact that she publishes this information with is WRONG. Imagine if you're newly diagnosed. I had a student who almost DIED at 8 months because of celiac disease. I can't believe that someone would put this out there!

Sorry for the rant.

Laurie

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  • Replies 51
  • Created
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Takala Enthusiast
Takala
Posted

The world is FULL of deliberately malicious food trolls on the internet.

You would be surprised who is behind some of it. And it's not somebody living in their basement with nothing else to do.

There is big $ money in the industry right now for medical and genomic research. Also in treating the side effects. They want it, and they don't want people to just eat safely and be healthy. They even love to cite their so - called peer reviewed scientific experts. (Which can be easily debunked) I've in the past gotten into it with a few of them, and concluded they are either not disclosing their financial interests and are on the take, or are just sadistic.

Delete the content and block the person if they persist in spreading the misinformation. Let them mess up and discredit their own work, but don't waste time on letting them mess up your own blogging. You can also leave a note about how that particular identity is spreading misinformation about celiac and gluten intolerance. They like to change names often.

love2travel Mentor
love2travel
Posted

Laurie, no apologies are necessary. That really incenses me, too. It actually makes my blood boil to think that this type of false information runs rampant out there - it could potentially be so misleading. Grrrr. It is unreal how we fall so short on education!

Last month I was at a very interesting celiac conference. The speaker was a leading celiac specialist in Canada (she is an gastroenterologist). Whilst she was amazing, there were a few supposedly gluten-free vendors outside the door selling their wares prior to and following the lecture. That is fine and dandy but one table was serving their dips with gluten pretzels on top of gluten-free crackers and the dip containers were communal! So, I imagine those who were there who did not know better were potentially sick from it. Gluten pretzels? Double dipping? Cross contamination amok!

No wonder sometimes the celiac "society" can get a bad name - there is so much misinformation and blatant lies out there. I really feel your pain.

Welcome here, by the way. I think you will find a lot of useful information and wisdom here. :D

txplowgirl Enthusiast
txplowgirl
Posted

Hi Laurie, I would definetly block her posts and/or I would give links and comments on "yes you can heal the gut but you can not eat gluten ever." Just my opinion.

cassP Contributor
cassP
Posted

"autoimmune disease like celiac is not a life long sentence" ?!?!!!!!!!!!!!!!!!!! this Sarah economist girl is a few fries short of a happy meal :blink::lol: Lord have mercy

wow- someone should send a link to this thread- to that sarah girl- maybe she MIGHT learn something... MAYBE or not???? wow...

txplowgirl Enthusiast
txplowgirl
Posted

"autoimmune disease like celiac is not a life long sentence" ?!?!!!!!!!!!!!!!!!!! this Sarah economist girl is a few fries short of a happy meal :blink::lol: Lord have mercy

wow- someone should send a link to this thread- to that sarah girl- maybe she MIGHT learn something... MAYBE or not???? wow...

Oh brother, I couldn't help myself, I had to go read it and I wished I hadn't. She has no blastin clue what she's talking about. She has misinterpreted the book to what she thinks she wants it to say. This is one of those people that you can talk till you're blue in the face and she will still refuse to believe you even if you throw facts in her face. <_<

RL2011 Rookie
RL2011
Posted

Throughout our human existence whether as a group (mob) or individually we have always picked on people who are different or weaker. Everyone needs to move away from the fringes of society whether it be farleft or far right. What I mean is we all should be more tolerant of differences in others as well as their handicaps or inadequacies. And the same thing goes with a person with celiac disease or other handicap or difference. Don't be bothered by a friend, family member or anyone who is ignorant. Either drop their dumb butt from your social circle or help educate them. But do notlet them dictate your mood; don't give anyone that power over you.

Bestrong willed, strong minded and don't hesitate to state your mind in a constructive way even if you have to call a spade a spade. I always give everyone at least a second chance and if they continue being ignorant then I rethink my relationship with that person and remove them from my close circle of friends and place them in the stupid crowd. None of my close friends are in the stupid crowd.

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IrishHeart Veteran
IrishHeart
Posted

It's woefully ignorant people like this who make it harder than this has to be for all of us. sigh...okay,I read her "article" and my first thought is X&^%*&^%$! ---for the 999th time!!--- there is no such thing as a gluten "allergy." :angry: That was just one glaring error I found in her piece and her lack of valid sources makes me cringe. Oh that's right!!--it's a BLOG, which means you can say anything you want without worrying you may actually be wrong. :rolleyes:

Is anyone familiar with this doctor's book about gut healing she keeps citing? Does this doctor really state that celiacs can resume eating gluten once they "heal their gut"?

I cannot imagine she would!

You did a good job trying to correct her, Laurie!!! ---but she is holding fast to her "belief." We could bombard her with information, but I have a feeling she is not going to budge.

I always laugh when someone says "why is gluten -free and celiac so 'popular' now?" Popular? :blink:

It's because it took so many of us--sometimes a lifetime--to be diagnosed. It's this kind of misinformation about celiac and gluten intolerance that kept so many of us from being heard and taken seriously in the first place.

Laurie H Newbie
Laurie H
Posted
  • Author

I'm sorry, I wasn't clear. I was just upset. My friend posted it asking if someone could really heal from this. I set her straight and then went to read the article as well as the comments. I was really upset. Then, of course, was posting from my phone with auto-correct, and ended up making some funny comments there. This woman is a fruit loop. I was hoping someone could try to set her straight. Has anyone read the book though?

WinterSong Community Regular
WinterSong
Posted

That article was horrible. I began looking through the comments a bit, but it just made me too upset.

WinterSong Community Regular
WinterSong
Posted

Haha I flipped a bit and posted a comment. I fear it is a losing battle with this nut.

kareng Grand Master
kareng
Posted

Haha I flipped a bit and posted a comment. I fear it is a losing battle with this nut.

I thought about posting:

" where did you get your MD?". " post your sources". But I figure, it's her site, she'll just erase opposing comments.

kareng Grand Master
kareng
Posted

Ok. I posted this. I hate to "count as a view" on her page. She can show advertisers how many people read her & get money.

Could you please state some of your published sources, besides one persons book, that supports your theory that Celiac is

WinterSong Community Regular
WinterSong
Posted

Ok. I posted this. I hate to "count as a view" on her page. She can show advertisers how many people read her & get money.

Could you please state some of your published sources, besides one persons book, that supports your theory that Celiac is

Oscar Apprentice
Oscar
Posted

Sarah ain't playing with a full deck. She does have the Joker, for sure.

She will spread her misinformation to anyone who will read it, and there is really nothing we can do about it.

The internet is full of sites that are full of SH*T and this is obviously one of them. :blink:

:angry: :angry: :angry:

kareng Grand Master
kareng
Posted

Haha, that's pretty brilliant.

You'll get that same treatment here,if you start spouting crazy theories like:

"25 jelly beans a day cure Celiac & split ends!"

You know there is no real cure for split ends! :P

kareng Grand Master
kareng
Posted

Sarah ain't playing with a full deck. She does have the Joker, for sure.

She will spread her misinformation to anyone who will read it, and there is really nothing we can do about it.

The internet is full of sites that are full of SH*T and this is obviously one of them. :blink:

:angry: :angry: :angry:

Oscar! Watch that dirty mouth! :D

WinterSong Community Regular
WinterSong
Posted

Huh, for some reason I can't post a reply on her page anymore. Did she block me? lol!

kareng Grand Master
kareng
Posted

Huh, for some reason I can't post a reply on her page anymore. Did she block me? lol!

She's had the last word which is " read the book". :unsure:

WinterSong Community Regular
WinterSong
Posted

Although, I did write:

"If you have a cure for Celiac, the medical community and I would love to hear it because we

cassP Contributor
cassP
Posted

OMG, is she for real???? she is from another planet- like i am speechless... and her replies to me really PISSED ME OFF- she is insane!! and it looks like u cant reply anymore, or at least i couldnt.

i stated a simple truth that it's part genetics and part environmental triggers- and she said- i sounded as ridiculous as all the people trying to explain autism's rise. wtf? it's just basic common sense-

and Stage 4 cancer is an autoimmune disease??? omggggggggggggggggg this woman

whoever posted earlier is right- this is someone that you cant communicate with at all- she's hearing something else- she probably misread that book she refers to, too. Lordy

cassP Contributor
cassP
Posted

Although, I did write:

"If you have a cure for Celiac, the medical community and I would love to hear it because we

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

She's not goign to get it. This is a quote from her profile info: "I am a 40-something, Wife and Mother of three. I hold a Bachelor of Arts in Economics (summa cum laude, Phi Beta Kappa) from Furman University and a Master of Government Administration from the University of Pennsylvania. In 1997, I left my ten year career designing and implementing financial systems for corporate and governmental clients to become a Mom

cassP Contributor
cassP
Posted

u know- i wanted to retweet her link- but then i thought- is she really worth anybody's time?

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

u know- i wanted to retweet her link- but then i thought- is she really worth anybody's time?

It seems that she has closed comments on that post so I don't think calling attention to her blog is goign to do any good at this point.

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