7 Weeks Gluten Free And Now This (Ranting)

[josh052980]

So, prior to this week, I had been gluten free for 6 weeks, and had finally shrugged my symptoms almost 100%. Last week, I used some Swanson Low Sodium Chicken Broth to make some rice, and got glutened from it. A week later, and I'm still feeling the effects, and they're getting worse, today is the worst I've felt in almost 2 months. I'm cramping, bloated, nauseous on and off, constantly feeling like I have to use the bathroom, have a headache and have some body aches.

I'm very new to gluten free, but not many people seem to understand how discouraging it is to have gone so long, have one thing botch things up, and now I feel like this. No one seems to really get it; all I get is "You're just stressed" or "You're exaggerating, you just need to go out and have some fun and not be so worried about what you eat all the time".

I've heard of a lot of people who get to the 6 week point or so, and just suddenly start having symptoms again, from the gut healing and the nerves turning back on, which sends conflicting signals to your brain, but seriously, how much longer can I look forward to feeling like this?! What have you all been through, what are your stories? Can anyone identify with me?

[Skylark]

Ugh. So sorry you got glutened. I know what you mean about people not understanding about how sick you can get from a tiny bit of gluten.

One thing - did the label on the Swanson broth say it had a wheat ingredient? It looks to me like all the Swanson chicken broths are gluten-free and they claim to be actively testing for gluten. Here is the latest list.

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I wonder if you're not getting into gluten some other way and it's keeping you sick. I usually look for sources of CC, and I had to go casein and soy-free at first to get past all the stomach trouble.

[sandsurfgirl]

Oh sweetie we understand!! We have all been there. You look very young on your picture and that is a big plus for you. You started feeling better within six weeks. That's a miracle really! And you are adorable, another big plus!

Those of us like me who got diagnosed at 40 and whatnot took six MONTHS to feel better! I had symptom relief right away but not total relief and some things got worse before they got better. After six months I had one measly symptom free day. Eventually I had lots and lots of symptom free days!

For me I got more sensitive to glutenings but I get over them way faster.

I am pretty sure that broth is gluten free but I may be wrong. I am in a hurry so I don't have time to look it up.

So maybe it is just a weird withdrawal thing. Don't get too down and don't be hard on yourself. It will get better! You've had incredible response the diet so get back up on the horse and ride! Just don't eat the horse's wheat bran mash!

We understand and we get and we've been there and we are her for you to vent vent vent!!! It will be okay. Here's a big hug and some gluten free chicken soup for ya! HUG (sorry don't know how to do soup in an emoticon.)

[annegirl]

You might want to take a look at other food items that might be making you sick. Keeping a food journal will really help in this. I'm younger (28) and got relief from my symptoms pretty quickly, but discovered some other issues along the way. Definitely be suspicious of dairy and soy. I found that every couple of weeks at first I "lost" something. My theory is that I was reacting to so many things all at once that I was just utterly beaten down. Once I started removing food items other symptoms and reactions became more obvious. That might be the same with you.

Hang in there. I so know how you feel. I accidentally drank tea with soy lecithan in it after barely recovering from a glutening or corning (not sure which) and I just wanted to cry. I just try to tell myself that the bad times make me realize that much more how good the good times are. Feel better!

[bigbird16]

So, prior to this week, I had been gluten free for 6 weeks, and had finally shrugged my symptoms almost 100%. Last week, I used some Swanson Low Sodium Chicken Broth to make some rice, and got glutened from it. A week later, and I'm still feeling the effects, and they're getting worse, today is the worst I've felt in almost 2 months. I'm cramping, bloated, nauseous on and off, constantly feeling like I have to use the bathroom, have a headache and have some body aches.

Hi, Josh.

So sorry you're feeling so bad! Hope you feel better soon. We here do understand.

What kind of pot did you cook your rice in? If it's an old scratched up teflon pot, you may want to get yourself a new pot. Gluten gets stuck in the scratches and can make you sick no matter how many times the stupid thing has been washed and scrubbed. I didn't think about that at first and made myself sick (and frustrated until I figured it out). Changing pots and other kitchen paraphenalia helped a lot.

Feel better!

Katherine

[dilettantesteph]

I totally understand. I got glutened constantly early on. I'd come here to vent and people would tell me that I couldn't possibly be reacting to the things that I was reacting to. Then I finally found out about super sensitive celiacs. Some of us react to things that others of us don't. It is a great idea to keep track of what you are eating and how you are feeling in a food diary to help you track things down. You might want to keep track of other possibilities of contamination too. Did you talk to someone while they were eating gluten and they might have spit something at you while they were talking? Did you hand out while friend was making cookies with flour which might have gotten into the air for you to ingest that way? When you are younger it is harder to put up with people who think that they know more about your health condition than you do. Try to ignore them.