Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Remission During Pregnancy?

AMom2010

By AMom2010
in Related Issues & Disorders

Recommended Posts

AMom2010 Explorer
AMom2010
Posted

Does anyone know if untreated celiac goes into remission during pregnancy? I have heard other autoimmune diseases do. When I was pregnant 2 years ago I felt GREAT and didn't need a nap, which was really surprising because normally I need a 2-3 hour nap just to make it thru the day. In fact, I just quit breastfeeding 6 weeks ago and now I am so incredibly tired during the day, luckily my baby is a great sleeper/napper ;)

I also had insomnia while pregnant, which made it even stranger that I didn't need a nap and felt so good. I would typically get only 4 hours of sleep when I was pregnant, but I felt amazing. Not at all what I expected during pregnancy...

I am getting the celiac panel next week, I really hope it comes back positive if in fact I do have celiac. My baby has also been tested, her bloodwork was negative and the pedi GI was to do an endoscopy in 2 months if her symptoms haven't improved. I would feel so much better about putting her thru that procedure if I knew I had celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


alex11602 Collaborator
alex11602
Posted

I am not sure if it goes into remission, but I always felt great when I was pregnant. There were no stomach problems to be found until after the child was born.

mommida Enthusiast
mommida
Posted

A woman's immune system has to shut down so it will not harm the baby. That is wy you are warned duing pregnancy to stay out of crowds during flu season and such.

That is why I gained weight like it was going out of style after being yelled at for the first 5 months. It was absolutely uncontrollable I ate more in the beginning of the pregnancy not the end. I'm only 5' 1" there was no room for my stomach to hold food. My son was 8' 5" and 22 inches long.

AMom2010 Explorer
AMom2010
Posted
  • Author

Thanks for the replies! I am really looking forward to finding out if celiac disease the casue for our symptoms, I think it would be such a blessing to have my almost 14 month old diagnosed this early so she could avoid years of misery...

mommida Enthusiast
mommida
Posted

Testing is going to be a bit harder because she is only 14 months. (Notorious for false negatives in patients under 24 months.) She needs to keep eating gluten until all the testing is done.

If you are in lower pen. of Michigan the top 2 pediatric gastroenterologists I've heard of, Dr. Hernando Lyons at St. John's hospital and Dr. Bellknap (spelling might be off sounds like bell nap). Depends on your insurance coverage, they accept completely different insurance.

AMom2010 Explorer
AMom2010
Posted
  • Author

Yes the GI we saw did mention the bloodwork is basically useless. She's already been tested and the celiac panel was negative. Dr. said if her symptoms haven't improved in 2 to 3 months she would was do perform and endoscopy and colonoscopy. In the meantime, she wanted me to get tested. I really really liked her, (we live in North Texas) and I'm confident that if DD does have celiac disease the dr. will be able to diagnose it. That's why I really hope my bloodwork is positive. A diagnosis of celiac disease just "fits" both our symptoms. I had just resigned myself to believing feeling this way was normal. Hoping and praying for some answers soon!

mommida Enthusiast
mommida
Posted

I hope you find your answers soon!

No matter if the test is negative, you can still give gluten free a try.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
Angels Newbie
Angels
Posted

i am 28 weeks and have gained 40 pounds already and feel great, maybe it does go into remission.

Coleslawcat Contributor
Coleslawcat
Posted

It sure didn't for me. My celiac caused me to have severe hyperemesis with my first 2 pregnancies. Once I was diagnosed and gluten free I had a normal 3rd pregnancy. There was gluten in my anti-nausea medication and everyone told me to eat bland food like crackers and toast and those things all made me much sicker.

  • 2 months later...
Librariangirl Newbie
Librariangirl
Posted

I had undiagnosed Celiac, but diagnosed DH while pregnant. The DH went into remission, but showed back up about 6 weeks after the birth (8 lb 11 oz...)

  • 2 weeks later...
koz158 Apprentice
koz158
Posted

It sure didn't for me. My celiac caused me to have severe hyperemesis with my first 2 pregnancies. Once I was diagnosed and gluten free I had a normal 3rd pregnancy. There was gluten in my anti-nausea medication and everyone told me to eat bland food like crackers and toast and those things all made me much sicker.

Do you know where you can find out if and or what midications contain gluten?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,868
    • Most Online (within 30 mins)
      7,748
    Helen R
    Newest Member
    Helen R
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Refractory Celiac disease - what to do

      By knitty kitty · Posted

      @ehb, welcome to the forum!   Yes, figuring out the gluten free diet and recovery can be really frustrating at the start.  There are things that you can change now which are more restrictive for a while, but they promote healing, and, in future, you'll be able to relax those restrictions.   I found the Autoimmune Protocol Diet most helpful.  It's a very strict Paleo diet, but I started feeling better quickly after doing the "standard GFD recommendations" without improvement.  It's very strict during the elimination phase, but other foods are added back once there's intestinal improvement.  I recommend the book The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself, who developed the diet.   No eating out on the AIP diet.  No gluten free prepared packaged foods.  This removes much cross contamination.  No alcohol.  Alcohol adds to the inflammation and damage.  No oatmeal.  No grains.  No pseudo grains (ancient grains like millet, quinoa, sorghum).  No beans (legumes).  No pulses (lentils, peas).  No nuts.  No seeds. These contain hard to digest lectins that promote inflammation.  No nightshades (potatoes, tomatoes, peppers, eggplant).  Nightshades contain alkyloids that cause intestinal permeability (leaky gut). No dairy.  Lactose intolerance (due to damaged villi) and a reaction to Casein (the protein in dairy) are possible.   Casein (the protein in dairy) resembles gluten enough to provoke an autoimmune response by the anti gluten antibodies the same as if it was  gluten.  Corn will trigger an anti gluten antibody response the same as to gluten because the carbohydrate storage protein in corn, Zein, resembles gluten.  Yeast and some rice will also provoke an anti gluten antibody response.  (Basmati rice is the safest.  But no rice on the AIP diet at first.)  Some breeds of oatmeal contain gluten. Gluten can become airborne during cooking. Boiling pasta water in restaurants is one way gluten can become airborne.     Airborne gluten from the ovens at the bakery section of a grocery or bags of dusty flour sacks in the  baking aisle can prompt a reaction.  The airborne gluten gets into the nasal passages which drain into the digestive system.   The autoimmune antibody production process is like an on/on switch.  Pictures are worth a thousand words... So...cut out all the triggers for the anti gluten antibodies, and focus on reducing the inflammation and repairing the damage caused by the antibodies.  Vitamin and mineral supplements help correct nutritional inadequacies resulting from the malabsorption caused by the autoimmune response.  Certain vitamins are needed to lower inflammation.  Others are needed for repair.   Try the AIP diet before considering yourself as having Refractory Celiac Disease.   Celiac is a marathon, not a sprint.  It's do-able.  Put your serious track shoes on.  
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      Oh I also drink wine occasionally - I understand the typical recommendation is that wine is gluten free but I don't know how to handle the possible introduction of gluten with fining agents or oak barrels sealed with wheat paste 
    • ehb
      Refractory Celiac disease - what to do

      By ehb · Posted

      @Scott AdamsThe only restaurants or prepared food that I have eaten outside of my home for the last 6 months are from dedicated gluten free restaurants or facilities, except for once in February at a place that had a gluten free night where they deep clean the kitchen and are dedicated gluten-free for the day, and twice in April (due to out of state job interviews) at places that were not dedicated, but mostly gluten free where I questioned them to make sure they were following proper cross contamination protocols. I suspect I got glutened back in December from drinking water (but not eating anything) at an italian pizza/pasta place, so since then I'm not even entering gluten-heavy places. For the month prior to my most recent blood test I had only eaten outside my home two or three times at a dedicated gluten free bakery that is owned by a celiac family. I also occasionally (< a couple times a month) will have a labeled gluten-free canned seltzer from a bar, and will ask to open it myself so they don't touch the top of it. Are dedicated gluten-free facilities also a concern with this level of sensitivity - for example if they are using products without gluten ingredients but are not certified? One question I have is if the immune reaction and antibody levels are proportional to the amount of gluten or if it's more of an on/off switch. I am just concerned because I haven't seen any changes at all - I would be willing to be more restrictive if I were confident that it would actually have an effect, but I am feeling quite discouraged living such a restrictive life (even more restrictive than what it seems like is the standard recommendation) without any results at all. Going so far beyond the standard recommendations makes me feel a little crazy like I can't trust anything, but I'm willing to do it if I know it will improve my health. This was helpful for me to take stock of how much I have been eating out of my house, and maybe that should be the first thing I remove completely - thank you! 
    • Scott Adams
      Refractory Celiac disease - what to do

      By Scott Adams · Posted

      Also, there is this product:  
    • Scott Adams
      Refractory Celiac disease - what to do

      By Scott Adams · Posted

      Do you eat in restaurants, or food prepared in restaurants?
×
×
  • Create New...