Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Now?

rachbomb

By rachbomb
in Coping with Celiac Disease

Recommended Posts

rachbomb Rookie
rachbomb
Posted

Hi everyone,

I'm hoping for some "veteran" advice here. I have been gluten free since Jan. and dairy and soy free since Feb. After making slow progress I added probiotics (per my doc) and by May was starting to feel about 80-90%. The past few weeks have been bad - and seem to be different than my gluten symptoms. Over a week ago I got some moderate gas pain on the right side for a few days and then about a week of D. Then for the last 4 days I haven't had a bowel movement but have a lot of gas. WHAT IS GOING ON? I called my doc after the first few days of D (because that is an unusual symptom for me) and he had me switch probiotics and said to wait it out a week or two. I just want to feel normal again. I don't care about what I can't eat but if I have to avoid my favorite foods I just want to feel good.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


organicmama Contributor
organicmama
Posted

Are you sure the probiotics are dairy free?

Marilyn R Community Regular
Marilyn R
Posted

What are you eating besides the suspected probiotics?

rachbomb Rookie
rachbomb
Posted
  • Author

They are definitely dairy free (I made that mistake a few months ago). I am eating the exact same that I have been eating for the past few months - very little processed food and I don't eat out besides the occasional trip to Chipotle.

  • 2 weeks later...
rachbomb Rookie
rachbomb
Posted
  • Author

Does anyone have any ideas? I just went to see my Doc and she said "well, you might have IBS too". ARG! I'm willing to do another elimination diet if needed but I barely even know where to start. Plus, I need to stop losing weight (I was finally stabalizing after 4-5 months of being gluten-free but the past month has been bad again).

Reba32 Rookie
Reba32
Posted

did the new symptoms start immediately after starting the pro-biotics, or sometime after?

It could be additional food intolerances, or it could be a virus, or it could be a low grade bacterial food poisoning even. Something you're eating is not agreeing with you. Take a good look at everything, re-read labels, and maybe initially just stay away from the "usual suspects" like dairy, soy, peanuts and nuts for about a week and see what happens.

notme Experienced
notme
Posted

are the probiotics in a capsule? i have to empty the contents of my blood pressure meds out of the capsule when i take them b/c i get a reaction from the capsule - it's made from 'starch' (unspecified) and it contains dye. something in that capsule makes me sick, though. that was a tough one to figure out :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,626
    • Most Online (within 30 mins)
      7,748
    Durenda Driskell
    Newest Member
    Durenda Driskell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.