Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Know If I've Been Glutened And What Is Causing It?


Newbee

Recommended Posts

Newbee Contributor

I've been on the gluten free a week and I'm wondering if I'm doing it right or if maybe I'm eating things that have been cross contaminated. Should I be able to see changes in how much I poo yet? I'm still going about 3 times a day like I did before. And if I am getting cross contaminated how can I tell what is doing it? Like if I have to go to the bathroom right after I finish eating should I be suspicious of what I just ate? And what if it isn't right after a meal? What should I be looking for then? I read food labels. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coinkey Apprentice

After a week you probably won't be able to tell the difference. On top of reading labels, you need to ensure that you aren't cooking your food on contaminated crockery, there are also many processed foods that don't have any suspicious ingredients but are notorious for cross contamination because of being made on the same lines as other foods. Stick with whole foods for a month, then reintroduce processed foods so that you are able to tell what it is that is causing the problems.

Newbee Contributor

Thank you for your response. How long should it take before I should notice a difference? I probably should mention it looks like I've had this a long time (37 years) and my doctor mentioned it would take longer for me to heal because of it. He didn't say how long before I should notice a difference.

PadmeMaster Apprentice

a tip: I lived off potatoes, Hormel Chili (It's the with beans that's gluten-free, and it says it on the can) and M&Ms for the first month and a half. After that, I added in Hamburgers (from Hardees. We lived in a hotel so I was limited). I don't personally advise fast food, but potatoes and chili, maybe smoothies (Just fruit, the milk of your choice, and the green of your choice. My fav way is Kale, frozen Mixed fruit, and Vanilla soy, but some have issues with Soy, so you might try Coconut or Almond) would be good and they are all whole foods that are healthy. (Well, the Chili is less so.).

I've also read along here that cookware can be contaminated, but that the dishwasher cycles are great help to prevent that. So you might do that or just buy some plastic ware and not cook until you can afford a new set of dishes. Or a dishwasher ;)

If you aren't feeling better, some things I was told when I was a (more of a) newbie is to watch out for shampoo, makeup, body wash, etc. I've not actually found a shampoo with gluten other than high dollar ones (or oatmeal ones), but I have found that the head and shoulders is clearing up my dandruff that I've had for years. (It didn't work when I wasn't gluten free. I only tried again because Treseme and Aussie shampoos don't get along with my hair).

If you're disliking the gluten free breads etc, just remember, you'll get used to the taste! I accidentally ate a graham cracker (stupidity, as everyone knows that smores, even in snack form, have graham crackers) and it was nasty to me. But I've liked every gluten free food I've eaten except Annie's bunny crackers (and Udi's bread, but I think that's because I refrigerate instead of leaving frozen OR unfrozen.).

Eating pure will be the easiest. I've glutened myself in the last week and have no clue what from (probably CC even though I'm the one cooking dinner) because I'm not eating pure. Just be careful. If you can avoid CC, do it! :)

T.H. Community Regular

I was diagnosed at 38, and I noticed a change within days. Some here don't seem to have any change for weeks, however.

But if you are having the runs right after you eat, I think that might possibly indicate that you're getting something that's making your body unhappy. It could be gluten or could be lactose (many of us are lactose intolerant when we're still healing, because the damaged villi don't make lactase as well. Or could be something else - a lot of us discover that we have food allergies we never knew about. Not the type that give us hives, but foods that make our stomachs hurt, give us the runs, give us headaches, etc....

Keeping the foods simple and keeping a food journal of foods you eat, and how you react, and the timing for each, may help you figure out what is getting you, if anything is. And if nothing is and it's just healing, then the journal would show a slow progression of symptoms getting better, yes? :-)

It might help to get a new pot or pan and a new cutting board, and just use them for a week, see if it helps.

Oh, do you have any children or a significant others? If you do, if you kiss their lips, tummies, and so on - those need to be gluten free, too. :D

domesticactivist Collaborator

I wrote a big post about being 100% gluten free that might help you find some of the potential sources of contamination. You can find it from the blog linked on my profile.

AVR1962 Collaborator

When I first started I cut out pasta and bread but wasn't looking at all the ingedients listed on packaging. I did continue to have black stools. What I noticed though was the gas and all the racket it my stomach left. I did this for about 6 weeks, then tried a plate of pasta and saw the difference and knew I was gluten intolerant. Tightened my diet, started looking at all ingredients, keeping my diet simple so I could tell what was and was not affecting me. Doc then wanted me to also stay away from dairy to see if that may be giving me issues. I ate alot of salads, veggies, fruit and meat. Then I got dosed.....not from wheat, only thing it could have been was highfructose and it made me as sick as from eating any gluten product. After about 6 weeks off dairy I went back on, had a slight intolerance but am taking daily aide that works. I have since been trying recipes replacing wheat flour with gluten free flour, mixes, ect and I am doing real well. It took me about 4 months to get my system corrected where I no longer had bowel issues.

There are people who are alot more senstive than myself that cannot eat products with corn or rice. Oats, or any other kind of grain should be labeled gluten free, otherwise don't buy them.

You are having absolutely no symptoms from a dose of gluten? There's some issues I was having that at first I was not connecting to the glutens, perhaps something will ring a bell for you: blurred vision, foggy/forgetful memory, problems with depth perception, balance issues, turmoil in stomach, gas, bloating, bowel issues, tired, muscle spams and twitches.

The twitches were due to a lack of potassium my body was absorbing so I started eating lots of potassium rich foods. Started taking vit B12 for the memory, added Lysine to my diet which is a digestive aide, started taking a probiotic and with a clean diet my health slowly improved. Now if I get dosed I have a bit of a headache, stomach issues, tired, balance issues and memory problems. It's the hidden stuff you have to look for like marinades, BBQ sauce.

I hope that helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fairy Dancer Contributor

I noticed a change in bowel symptoms after around 5 or so days. The improvement was gradual. The fatigue however continued on for a little bit longer but is gradually improving.

Newbee Contributor

Thanks for everyone's responses! Sounds like it really varies as far as when people start feeling better. I'll try and eat more natural and be patient and hopefully it will all start getting better soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748

    LWceliac38
    Newest Member
    LWceliac38
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.