Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Know If I've Been Glutened And What Is Causing It?


Newbee

Recommended Posts

Newbee Contributor

I've been on the gluten free a week and I'm wondering if I'm doing it right or if maybe I'm eating things that have been cross contaminated. Should I be able to see changes in how much I poo yet? I'm still going about 3 times a day like I did before. And if I am getting cross contaminated how can I tell what is doing it? Like if I have to go to the bathroom right after I finish eating should I be suspicious of what I just ate? And what if it isn't right after a meal? What should I be looking for then? I read food labels. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coinkey Apprentice

After a week you probably won't be able to tell the difference. On top of reading labels, you need to ensure that you aren't cooking your food on contaminated crockery, there are also many processed foods that don't have any suspicious ingredients but are notorious for cross contamination because of being made on the same lines as other foods. Stick with whole foods for a month, then reintroduce processed foods so that you are able to tell what it is that is causing the problems.

Newbee Contributor

Thank you for your response. How long should it take before I should notice a difference? I probably should mention it looks like I've had this a long time (37 years) and my doctor mentioned it would take longer for me to heal because of it. He didn't say how long before I should notice a difference.

PadmeMaster Apprentice

a tip: I lived off potatoes, Hormel Chili (It's the with beans that's gluten-free, and it says it on the can) and M&Ms for the first month and a half. After that, I added in Hamburgers (from Hardees. We lived in a hotel so I was limited). I don't personally advise fast food, but potatoes and chili, maybe smoothies (Just fruit, the milk of your choice, and the green of your choice. My fav way is Kale, frozen Mixed fruit, and Vanilla soy, but some have issues with Soy, so you might try Coconut or Almond) would be good and they are all whole foods that are healthy. (Well, the Chili is less so.).

I've also read along here that cookware can be contaminated, but that the dishwasher cycles are great help to prevent that. So you might do that or just buy some plastic ware and not cook until you can afford a new set of dishes. Or a dishwasher ;)

If you aren't feeling better, some things I was told when I was a (more of a) newbie is to watch out for shampoo, makeup, body wash, etc. I've not actually found a shampoo with gluten other than high dollar ones (or oatmeal ones), but I have found that the head and shoulders is clearing up my dandruff that I've had for years. (It didn't work when I wasn't gluten free. I only tried again because Treseme and Aussie shampoos don't get along with my hair).

If you're disliking the gluten free breads etc, just remember, you'll get used to the taste! I accidentally ate a graham cracker (stupidity, as everyone knows that smores, even in snack form, have graham crackers) and it was nasty to me. But I've liked every gluten free food I've eaten except Annie's bunny crackers (and Udi's bread, but I think that's because I refrigerate instead of leaving frozen OR unfrozen.).

Eating pure will be the easiest. I've glutened myself in the last week and have no clue what from (probably CC even though I'm the one cooking dinner) because I'm not eating pure. Just be careful. If you can avoid CC, do it! :)

T.H. Community Regular

I was diagnosed at 38, and I noticed a change within days. Some here don't seem to have any change for weeks, however.

But if you are having the runs right after you eat, I think that might possibly indicate that you're getting something that's making your body unhappy. It could be gluten or could be lactose (many of us are lactose intolerant when we're still healing, because the damaged villi don't make lactase as well. Or could be something else - a lot of us discover that we have food allergies we never knew about. Not the type that give us hives, but foods that make our stomachs hurt, give us the runs, give us headaches, etc....

Keeping the foods simple and keeping a food journal of foods you eat, and how you react, and the timing for each, may help you figure out what is getting you, if anything is. And if nothing is and it's just healing, then the journal would show a slow progression of symptoms getting better, yes? :-)

It might help to get a new pot or pan and a new cutting board, and just use them for a week, see if it helps.

Oh, do you have any children or a significant others? If you do, if you kiss their lips, tummies, and so on - those need to be gluten free, too. :D

domesticactivist Collaborator

I wrote a big post about being 100% gluten free that might help you find some of the potential sources of contamination. You can find it from the blog linked on my profile.

AVR1962 Collaborator

When I first started I cut out pasta and bread but wasn't looking at all the ingedients listed on packaging. I did continue to have black stools. What I noticed though was the gas and all the racket it my stomach left. I did this for about 6 weeks, then tried a plate of pasta and saw the difference and knew I was gluten intolerant. Tightened my diet, started looking at all ingredients, keeping my diet simple so I could tell what was and was not affecting me. Doc then wanted me to also stay away from dairy to see if that may be giving me issues. I ate alot of salads, veggies, fruit and meat. Then I got dosed.....not from wheat, only thing it could have been was highfructose and it made me as sick as from eating any gluten product. After about 6 weeks off dairy I went back on, had a slight intolerance but am taking daily aide that works. I have since been trying recipes replacing wheat flour with gluten free flour, mixes, ect and I am doing real well. It took me about 4 months to get my system corrected where I no longer had bowel issues.

There are people who are alot more senstive than myself that cannot eat products with corn or rice. Oats, or any other kind of grain should be labeled gluten free, otherwise don't buy them.

You are having absolutely no symptoms from a dose of gluten? There's some issues I was having that at first I was not connecting to the glutens, perhaps something will ring a bell for you: blurred vision, foggy/forgetful memory, problems with depth perception, balance issues, turmoil in stomach, gas, bloating, bowel issues, tired, muscle spams and twitches.

The twitches were due to a lack of potassium my body was absorbing so I started eating lots of potassium rich foods. Started taking vit B12 for the memory, added Lysine to my diet which is a digestive aide, started taking a probiotic and with a clean diet my health slowly improved. Now if I get dosed I have a bit of a headache, stomach issues, tired, balance issues and memory problems. It's the hidden stuff you have to look for like marinades, BBQ sauce.

I hope that helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fairy Dancer Contributor

I noticed a change in bowel symptoms after around 5 or so days. The improvement was gradual. The fatigue however continued on for a little bit longer but is gradually improving.

Newbee Contributor

Thanks for everyone's responses! Sounds like it really varies as far as when people start feeling better. I'll try and eat more natural and be patient and hopefully it will all start getting better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      7

      My only proof

    3. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    4. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

    5. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,288
    • Most Online (within 30 mins)
      7,748

    Greg R.
    Newest Member
    Greg R.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.