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What Food Intolerances Do You Have Along With Celiac Disease?

CourtneyLee

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CourtneyLee Contributor
CourtneyLee
Posted

I called The Coeliac Society, which is Australian. I was telling them how I am CONSTANTLY getting the symptoms coming back that I had before I was diagnosed, except they are 10 times worse.

The lady was lovely and she suggested that I see a dietician and do an elimination diet.

It just got me wondering, what are you guys unable to eat along with gluten?

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Diane-in-FL Explorer
Diane-in-FL
Posted

For me, it is dairy and soy. That's what I have figured out so far. Soy is sneaky; it's in many things, like mayo, canned tuna.......you have to be even MORE diligent in reading labels than we already are. Just when you think you are doing well, along comes another food saboteur!

CourtneyLee Contributor
CourtneyLee
Posted
  • Author

For me, it is dairy and soy. That's what I have figured out so far. Soy is sneaky; it's in many things, like mayo, canned tuna.......you have to be even MORE diligent in reading labels than we already are. Just when you think you are doing well, along comes another food saboteur!

I really hope I'm not able to eat anything else other than gluten :( I wont be able to cope haha

jststric Contributor
jststric
Posted

My list is rather lengthy and it all hit about the same time...suddenly at age 47. Glutens, dairy, nuts, eggs, beans and rice. I have gotten where I can do rice in a very limited amount and only occasionally. And I can do Lactaid milk and an occasional few bites of fresh mozzeralla and brie. I think the Lactaid helps with that.

alex11602 Collaborator
alex11602
Posted

Dairy and soy for both my daughters and I plus egg yolks and sweet potatoes for my youngesst and high fructose corn syrup (or too much sugar in general) for me and both my girls get moody when they have artificial colorings and my oldest gets an upset stomach with too many preservatives now that we eat mostly whole foods.

NikkiV Newbie
NikkiV
Posted

For me it Dairy,soy, Citric Acid, and high Fructose/ high sugar. Yeah... It really sucks. High quantities of Corn also make my stomach very uncOmfortable. I can have a little but not munch on more than 1/4 cup of Corn-based Cereal

mushroom Proficient
mushroom
Posted

Corn, soy, nightshades (tomatoes, potatoes, eggplant, peppers), legumes (all dried or fresh beans/peas/lentils), citrus. Can now do lactose again and one slice of bread made with some potato starch every four days (I finally got to try Udi's!!)

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dilettantesteph Collaborator
dilettantesteph
Posted

I reacted to all sorts of things. It was really hard to figure out what was going on. The list of things that I might be intolerant to got longer and longer. The reactions felt the same as my gluten reaction. Finally I realized that it was all gluten, just vey tiny amounts. If I sourced my foods more carefully I was able to tolerate all the things that I had thought I might be intolerant to. I'm a big gardener now. It is something to consider.

Krystalcatt Newbie
Krystalcatt
Posted

I had a food intolerance blood test done 2 years ago, it came back with 45 different things. Certain spices and herbs, almost all grains (except 3), all dairy (including casien and goat), whole eggs, and a few here and there things. I did better excluding them. Then I started again eating 'normal' got ill and continued until the celiac test. Now I'm back to them especially since I was diagniosed with celiac. The major ones are grains, dairy, eggs and gluten.

PadmeMaster Apprentice
PadmeMaster
Posted

I've learned that I can't have dairy.. hoping to never add another to that list.. Two's bad enough.. I already miss cheese! (dairy free since Sat, but had some cheese on lunch yesterday and regret it now. It makes me bloated with gassy feelings.. can't sleep) It's actually what made me think I have Celiac instead of just a gluten intolerance.

Waverlywoods Rookie
Waverlywoods
Posted

Eggs and almonds both IGG delayed reactions. I plan on getting tested every 6 mo or at least once a year from now on.

BethJ Rookie
BethJ
Posted

At first it seemed like everything except meat and seafood caused problems but after three years gluten-free, I've narrowed it down to fruit and alcohol. I've added fruit back in but I have to be very careful not to overdo it. I finally just gave up on alcohol so I haven't had a drop in over a year now.

I still have problems at times so I suspect this is going to be an ongoing process.

bartfull Rising Star
bartfull
Posted

Gluten and corn so far (I think). I don't know about soy yet because I haven't touched any since June 5th. I seemed to have a D reaction the last couple of times I ate yams. I have been eating cheese without any apparent problems. Eggs too.

All in all, I don't really know yet. :huh:

Welda Johnson Newbie
Welda Johnson
Posted

I am intolerant of all grains, all milk & dairy products (including casein and whey), egg whites, yeast, maltodextrin & modified food starch. So, I am able to eat meat, fruits & vegetables.

JRS Rookie
JRS
Posted

Something to consider: I am lucky enough to have a Chiropractor/Nutritionist/Wellness clinic very near to me. They do everything from detox to physical therapy to counseling to acupuncture to nutrition evals etc. They claim they can "heal the total body" and they are amazing!!! The nutritionist (NOT a dietian, sooooooo much more) at this specific office can do a blood test that literally tests your blood to see how it reacts with 300 different allergens and known irritants (from mustard to gluten to diary to mushrooms etc). He also has several techniques to healing and recovering a body from a storm of autoimmune and allergen reactions. I've always believed that when you are exposed to something you react to for too long your body starts to think other things are trying to attack it as well. Most of the celiac people i know in person seem to suffer more with other irritants/allergens if it took longer to be diagnosed. Consider a detox/cleanse monitored by a chiropractor or nutritonist. Also consider a plain whole food/organic diet for a few months to see if you can calm your body down. Perhaps things you react to now may go away/heal with the right diet and nutrients.

T.H. Community Regular
T.H.
Posted

My official allergies are: soy, dairy, potatoes, egg yolks and egg whites, chicken, some legumes, sugarcane, and coffee.

I dropped them all, and since then, I get noticeably sick with all of them, no matter the source, so far.

On top of that, all grains make me ill, especially corn. However, since going gluten-free, I've discovered I'm super sensitive like DilettanteSteph, so I'm a unsure if it is the grains themselves, or gluten cc. I am growing some of them, like the corn, in my own yard so I can determine whether the food itself or gluten cc is the problem.

I highly suspect I react to certain pesticides too, as I have started to have headaches and a few other issues with some fruits and vegetables that are typically grown with a high pesticide load. These are not my normal gluten reactions, and they don't happen if I grow the food in my own backyard, so I'm guessing it has to be something added to the plant during the farming process, you know?

Oh, and I will say - a dietician helped me quite a bit, but she was the second one I tried. The first was sweet, but not very useful. If you find one, you'll want one who is well versed in allergies and the food industry, so she'll know what you need to avoid to truly eliminate something.

Some examples: Dairy is added to latex products. White rice is often polished with corn products. Baking powder can contain potato starch. Salt has anti-caking agents.

If you don't have a dietician who knows these types of things, you won't get as much help as you should.

bartfull Rising Star
bartfull
Posted

Cheese is another product that may have corn. Some companies dust their blocks of cheddar with corn starch.

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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