Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mouth Sores


jcmi10236

Recommended Posts

jcmi10236 Newbie

Can you get mouth sores from eating the gluten? I have had many neg tests(frustrating) but find getting rid of gluten has really helped my tummy pain. I ate gluten yesterday and by the end of the day had mouth sores. I have had them many times but never connected the two. Just did not know why I got them. Tired and frustrated and looking for help! Doctors can only help so much. Realizing their not Gods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Yes, you can. That was one of my symptoms that went away completely when I went gluten-free.

richard

Bubba's Mom Enthusiast

I also got mouth sores from time to time before going gluten-free. After an accidental cc glutening I got 2 within a couple of hours! :blink:

krystynycole Contributor

Definitely! It was one of the wonderful surprises that went away from going gluten-free!

ElseB Contributor

Absolutely. I used to get horrible canker sores that caused my whole mouth and glands to swell. My sister had them to, and in her case, it was an early warning sign of Crohn's Disease.

eatmeat4good Enthusiast

Called aphthous ulcers...one of the many symptoms of Celiac disease. My son used to get them off and on as a child...no known cause and no treatment necessary according to the Dr. :blink: They would just go away on their own. Then come back. Until we went gluten free...then they never came back again.

We never made a connection until several months gluten free and we realized he hadn't gotten any mouth sores since dropping wheat/gluten. Amazing relief.

beebs Enthusiast

I used to get them all the time, in my nose too - sooo painful!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jcmi10236 Newbie

I get them on my tongue, inside mouth and lips! Normally dont last long. 1st couple times they gave me this mouthwash but now I just wait and it goes away. I have tested negative for celiacs but have went gluten free before the testing. My tummy and back pain so much better but so hard to watch. Especially using pans, utencils etc cross contamination. I have not gone that far yet! So much stress watching everything that enters the mouth. I also have IC wich limits diet!

lcarter Contributor

Yes, I had mouth ulcers, too, as a symptom of vitamin deficiencies. But the sores got much less numerous and frequent after adding Bronson's Super B's along with the Therapeutic Formula of vitamins and minerals...and then, totally went away after we discovered the celiac disease -- except, of course, if/when I get accidently glutened.

It is essential that we Celiacs take added vitamins and minerals to offset any nutritional deficiencies either because of malabsorption or because of a compromised diet. So, adding a Super B vitamin to you regime could be very helpful. It's nice to know that B vitamins are water soluble and so are not toxic in large amounts - in excess they just wash through your system.

By the way, Bronson vitamin and minerals are sold in many USA medical schools. I buy them over the internet at: Open Original Shared Link But, I am sure there are lots of other equally good companies out there.

This particular company was recommended to me when I was a research subject for many years with the Clayton Foundation Nutritional Research Project at the U of TX, Austin. Unfortunately, the foundation has lost it's funding and are no longer operating. But, they were a fabulous help to me all those years when the medical community was ignorant about celiac disease. In fact, they are the ones who told me I was very vitamin deficient and also discovered the fructose intolerance.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.