Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Know Of A Forum For Food Allergys Linked With Behavior?

mommyto2kids

Recommended Posts

mommyto2kids Collaborator
mommyto2kids
Posted

I just don't know what to do for the school year. Do I try to allow it to be fed to him in moderation or just say he can't have it period? He gets mean and has no self control when he eats it. Grandma fed him a big slurpy that was red today and when they got home, I knew something was wrong by his behavior. If you know of a forum dealing with this that could hel me, please let me know. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


brigitam Newbie
brigitam
Posted

This site has great info but I don't know if it is the same in America as it is here in Australia. I would assume it is. Good luck. Brigit

Open Original Shared Link

Mizzo Enthusiast
Mizzo
Posted

Have you ever had him tested? My friends daughter is allergic to Red dye and it started as behaviour issue's and turned quickly into anaphalactic allergy? I think the older the girl got the more she ingested and they became aware of the reaction more obviously.

mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

How do I get him tested for food dye? Two days ago he went into an itch session for hours with an itchy mouth driving him nuts with lots of crying. We didn't know what it was from. He was sweeping leaves right before. So we think it was some kind of allergy to plants. We are going to ask for an epipen to be on the safe side.

StephanieL Enthusiast
StephanieL
Posted

There aren't proteins in food dyes, so it isn't technically an "allergy" but an intolerance. Most traditional Dr's won't test for them but you may be able to find a Do or Chiro who would test for them.

Open Original Shared Link

Skylark Collaborator
Skylark
Posted

You might check out the Feingold Diet website. They know a lot about kids and food chemical sensitivities. Open Original Shared Link

eatmeat4good Enthusiast
eatmeat4good
Posted

Fedupwithfoodadditives.com is an excellent site. You may find he is allergic or intolerant to other foods too...like salicylates...and that would then add in yellow food coloring, tartrazine, annatto, and the benzoates which are in almost all carbonated flavored pop and in some juices too.

My son and I have Celiac/Gluten Intolerance in addition to the Salicylates intolerance. Red and yellow food dyes are awful...He gets asthma...I get hives...both of us get bad moods.

Keep eliminating and exploring. You will figure it out.

NO...I would not let the teacher give him treats with red food coloring. He will be miserable and so will everyone around him. If it effects his moods, it will also effect his relationships with people...and that would not be worth saving the school teacher the inconvenience of giving it to him. Good luck, it is really hard to figure all this stuff out...but once you do then you know what to avoid and your life can be better and so can his!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

My husband wants him to have it because he does not realize how bad he behaves when he has it. The teachers usually pass out the cup cakes right out the door or the last 5 minutes of class. So they don't experience the behavior. I approached the school last yr and they don't want to change anything. Holliday parties are super out of hand. Every mom brings a cake and they are all served. The teachers leave it up to the parents and take no responsibility for it. Two wonderful parents took a responsible approach in dd's class with parties, not so in son's class. Thanks for listening.

I'd at least like the teacher to tell me when he is served a cup cake and the colors and in a perfect world she'd tell me the day before what is being brought so I could plan accordingly. The teacher last yr refused. Lets pray for a better year. I have a signed medical note in his file for food dyes and sugar. What are my rights and how do I learn what they are? I am in CA?

bartfull Rising Star
bartfull
Posted

I think you will have to get "mean". If it is in his file at school that he can't have this, and his teacher refuses to see to it that he doesn't, he/she is courting a lawsuit for himself, and for the school. If you just tell him AND the school administation that, I bet you'll see results!

domesticactivist Collaborator
domesticactivist
Posted

Our approach when the kids are in that kind of setting is to put it in writing and only allow our kid to have food from home. You should be able to get a list of party days from the teacher and send him a treat he can have.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748
    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.