Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Bad


gluten free overseas

Recommended Posts

gluten free overseas Apprentice

I think I was glutened really badly. I bought some buckwheat flour--the same flour I've bought in the past. It looked different, but I bought it anyway. I made bread and pancakes with it and am in really bad shape now.

I get immobilizing anxiety, I feel like I'm losing my mind. Along with vomiting and pain in my back too. I'm so discouraged. After about 5 hours, I'm able to breathe enough to sit in a chair and watch TV or check email.

I'm having flashbacks of being in the hospital and being in so much pain and the doctor saying he couldn't do anything else. I thought I was dying back then. I know I'm not dying now, but it feels like it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

I'm so very sorry you were "poisoned." Gluten seems to act like poison with so many of us with celiac. I wish there were something I could say to make you feel better....but I know that you just have to get through the worst of it before that can happen.

I fully understand what you're going through...and I hope you start feeling better soon.

Keep thinking, "Better times ahead...."

eatmeat4good Enthusiast

God, I hate that feeling of going downhill when you know you have been glutened. I wish I only had the gastrointestinal problems, but I have full on neurological problems...anxiety and despair set in and it seems it will never go away. It is horrifying. I know what you are going through. Sorry you have to go through it. I was lost completely when Dr.'s said they couldn't help....so I know the despair of that feeling too. Hopefully this will pass quickly and you will be ok soon. At least we do know these episodes are temporary in spite of how horrifying they can be. hang in there.

gluten free overseas Apprentice

Thank you for the encouraging words. I helps me a lot. I woke up today, and I couldn't open my eyes--my whole face had just sagged. And I couldn't feel my hands, and I couldn't breathe very well. I get really down on myself for freaking out and like losing my mind, but you know, that does feel a little bit like you are dying. So I'm doing a bit better. It'll probably be a couple of days.

AVR1962 Collaborator

Try to be patient with yourself. I do understand exactly what you are saying. I get so depressed when I get glutened. My speach and balance are affected and I too feel like I am losing my mind and do crazy dumb things like leaving on burners and buying food for a planned meal twice. I sometimes wonder if I am ever going to figure it out but then when I get to feeling better I realize I have just got to be careful. Part of it is learning what works and what doesn't and forgiving ourselves for our mistakes and moving on.

Juliebove Rising Star

Sorry to hear that. Gluten isn't an issue for me. But I do have an egg allergy. A couple of weeks ago I stupidly ate a bite of the gluten-free bread on my daughter's sandwich, totally forgetting that the wrapper listed egg in the ingredients. And then I paid for it. It happens.

ravenwoodglass Mentor

Thank you for the encouraging words. I helps me a lot. I woke up today, and I couldn't open my eyes--my whole face had just sagged. And I couldn't feel my hands, and I couldn't breathe very well. I get really down on myself for freaking out and like losing my mind, but you know, that does feel a little bit like you are dying. So I'm doing a bit better. It'll probably be a couple of days.

Unless these are regular glutened symptoms for you it would be a good idea to visit the doctor or even the ER. We tend to forget that not all symptoms are gluten related and you could have something else going on. The not being able to open your eyes and sagging has me a bit concerned. Do give us an update on how you are doing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gluten free overseas Apprentice

I'm doing better today! Thanks everyone. I am still lying around, but I've definitely turned a corner. Raven, is that a picture of your new dog? She is so cute.

I wonder if I ought to get counseling.

ravenwoodglass Mentor

I'm doing better today! Thanks everyone. I am still lying around, but I've definitely turned a corner. Raven, is that a picture of your new dog? She is so cute.

I wonder if I ought to get counseling.

Glad to hear you are doing better. That picture is of my little Pooh Bear when he was a couple years old. I have got to try again to get a picture of Maggie, she is a Blue Merle Dapple Doxie and adorable also. I have trouble resizing pics and the ones I have taken so far are too big. Thats my task for today.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.