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What Was Your First gluten-free Week Like?


futuredvm24

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futuredvm24 Rookie

I have been gluten-free for a week now. Some days I feel great, I almost forgot that I could feel this good! Other days not so much. I'm not sure if I'm accidentally glutening myself or if this is just a normal process?


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Skylark Collaborator

I don't think I even noticed a difference the first week! By the end of two I wasn't having stomach-aches and diarrhea any more.

pricklypear1971 Community Regular

The first week was just weird. I remember having raging emotions - like PMS on steroids.

Week 2 the brain fog lifted and I had stamina. That's when I knew I was on to something.

AVR1962 Collaborator

A week was not enough for me to notice a difference. My stomach was a mess. It was at the 3 week point I started noticing change for the good.

kitgordon Explorer

My GI issues stopped within the first couple of days, with a mild relapse or two in the first 2 weeks. However, I went gluten free before I was as ill as some people here. A lot of my family were already diagnosed, so when I began seeing semi-frequent symptoms, I knew what it was, and what to do. As long as you are being very careful, I think it's probably just normal recovery.

alex11602 Collaborator

I actually felt great after two days with a few bad days mixed in over the next few months, but my youngest daughter didn't feel better until we figured out the other foods that she couldn't have. My oldest daughter doesn't have GI symptoms so we didn't notice a change until we gave her potatoes one night and she could eat them without being sick (she always had a major texture thing, she would gag if something gooey, wet or slimy touched her hands or mouth) and we figured out that my husband had problems the same way...he noticed after about a week that he hadn't been as gassy, but it came back when he had a sandwich at work.

mommyto2kids Collaborator

I had dreams that I was eating angel food cake and then I'd realize I could never eat it again. I also got super freaked out and depressed that so much of Costco was done for me. My son kep asking me when I could be done with this. It was hard, but we have all gotten used to it. It is better than being sick.


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pricklypear1971 Community Regular

My son asked me "when will we be done with the gluten-free thing?", too.

Yeah, it's tough.

I think it would be tougher if I hadn't already weeded out a lot of crappy foods, prior. Don't get me wrong - we ate plenty of junk and probably still do. But going gluten-free is hard-core when you can't "slip" and be ok.

futuredvm24 Rookie

I know it will take some time before I really start to feel better. It's just great to know that there are lots of people who know what I'm going through. I'm having my good and bad days but the bad days seem worse than the bad months I was having. Maybe it's because I forgot what it felt like to not have problems. Luckily, I had cut out a lot of processed foods beforehand so going gluten-free hasn't been too hard but it's definitely something to get used to!

T.H. Community Regular

First 2 weeks were really bad, actually. On day two, I started having nausea, headaches, and dizziness all the time. Could barely think, sick all the time, and it just kept getting worse.

Turns out that I have allergies to potatoes, sugarcane, dairy, and eggs - all of which I don't eat much of normally, and all of which I was eating a lot more of in my gluten-free food, so it was making me sick. Really crazy.

The entire experience made me much more careful with my daughter (diagnosed 2 weeks after me), trying to remember that familiar 'looking' food didn't always mean familiar ingredients or familiar tolerance to those ingredients, you know?

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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