Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1 Year Anniversary


hh73

Recommended Posts

hh73 Apprentice

So I was officially diagnosed about 13 months ago.

I am 23 years old.

Before Diagnosis: I was sleeping 15-18 hours a day, way too tired to work out. Eating like a pig.

Now: I sleep about 9-10 hours a day. I can do my routine as a student, and I can work out, but not with the kind of energy that would be expected of someone my age. For example, I can walk but not run, do light weightlifting, and pushups. I eat slightly less than I did before, but now its all very nutritious because I cook half of it.

My "celiac belly" is still there.

My weight hasn't really changed. It was 210-215 before diagnosis, and now its 200. As a male, I stand at 5 feet, 10 inches

When am I going to get better? My last bloodwork (6 months ago) said that I am not getting any gluten in my diet. I have been taking my multivitamin. What am I doing wrong?

Should I be going easy when I work out, or is it time to try to work up a sweat?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

i just passed my first year mark last month. i am still tired as krap. but everything seems to be evening out and i hardly ever get sick anymore (ugh, i probably just jinxed myself) my muscles are rebuilding well - i have a doctor's appointment on the 30th and that is my major basic question: *when* am i going to quit feeling soooo tired?? i can't get a job if i can't stay awake..... :( i went 25 years undiagnosed, how long to recover????

eatmeat4good Enthusiast

Celiac Belly may respond to the Paleo way of eating. Just eliminating gluten may be leaving too many carbs in your diet and your body doesn't know what to do with them...the pancreas puts out insulin to store all the extra carbs as fat...and the belly stays. If you eat more protein you might feel better and find that your metabolism responds better.

Mark's Daily Apple is my favortite site for Paleo. It is very informative about why it works and how to do it right. As a matter of fact today is the start of the 30 day challenge to try this way of eating. I always respond really well to this diet and it is perfect for Celiacs.

You maight be surprised at how much energy you regain and how quickly it happens when you stop the grains. It amazes me still. I've been on and off of it several times this year. Each time I go off it because I want a treat it results in gaining belly fat back. I have more energy to exercise when I eat this way. So I'm trying to make it a permanent lifestyle.

I think men's bodies respond especially well to this. My son was overweight and not really losing or toning up even after months on being gluten free. He is 16 and we both try to avoid grains and carbs now so we can use our bodies better. He has lost weight and gained muscle rapidly. I don't think it is for everyone, but read about it and see if it is for you.

I love the information and the articles about why gluten is bad for everyone and why all grains are too. It might not work for you, but it might be worth a try. We felt way better just 5 days in! Muscle tone is improving rapidly. The only problem is Snickers are not Paleo...but we don't worry about that every once in a while! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.