Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Dealing W Constant Hunger


rain

Recommended Posts

rain Contributor

I've been gluten free for 16 months and it's been a roller coaster. The symptom I'm battling now is constant hunger. My antibody levels are normal. I've gained 5 pounds (I'm small framed so I can assure you the rolls show :) and I'm not dieting. Along with the hunger I feel bloated and physically my belly feels full. I'm hungry whether I eat a lot, or exercise. I've tried eating lots of protein, carbs. Nothing seems to really work.

Any thoughts?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

When I saw your post topic I thought you were a newbie and was going to suggest more protein.

Guess what? I'm finally at even keel at 18 months, and where I feel like I might make some significant progress. So try to give it a little more time.

I never would have thought that it would take this much time, I surely didn't.

Wish you well....

eatmeat4good Enthusiast

Have you had your thyroid checked?

Hypothyroid or Hashimoto's can make it feel impossible to lose weight.

Sluggishness of the digestive system happens because metabolism is regulated by the thyroid. If you haven't had it checked it might be a good idea. Depression and tiredness can result among other symptoms.

I, too, would have suggested more protein, but as I read your post I was wondering about the thyroid. It is just one option, but a good place to start.

rosetapper23 Explorer

Are you eating adequate fat? With celiac, we tend to have problems absorbing fat-soluble vitamins. I now feel a lot better eating a paleo/primal diet that requires that I eat a lot of meat and saturated fats. I've lost 15 pounds in the past seven weeks, and I feel great. My vitamin absorption was terrible...and I'm hoping that's improved now that I don't eat so many fruits and vegetables. They made me feel bloated all the time, but hungry, too. Now I eat nutrient-dense foods, I feel satisfied and not uncomfortable. The book I read that introduced me to this new way of eating is, "Primal Body, Primal Mind," and I consider it the best book on any topic that I've ever read.

cyberprof Enthusiast

I've been gluten free for 16 months and it's been a roller coaster. The symptom I'm battling now is constant hunger. My antibody levels are normal. I've gained 5 pounds (I'm small framed so I can assure you the rolls show :) and I'm not dieting. Along with the hunger I feel bloated and physically my belly feels full. I'm hungry whether I eat a lot, or exercise. I've tried eating lots of protein, carbs. Nothing seems to really work.

Any thoughts?

Thanks!

I would suggest additional intolerances: Soy, Dairy, Eggs, Corn, nightshades (tomoatoes, potatoes, eggplant and peppers) or Peanuts. The way to test this would be to do an elimination diet: Eat only chicken/fish/meat (plain no spices other than non-iodized salt), pears, white rice for all three meals for 2 weeks. Then if that solves the pain/bloating problem, slowly add back in foods - sweet potatoes, green beans, zucchini, applesauce first. Then try adding in soy or dairy one at a time and see if you react. You could also see a naturopath or dietician to help you do this process.

Or if you're in a gluten household, you may get enough cross-contamination that it would make you sick but possibly not show up in your antibody levels. Same with gluten-free baked goods - a little bit of gluten could be present in flours used to make these products. Eat one gluten-free doughnut a day and you wouldn't notice a problem. Eat gluten-free toast for breakfast, gluten-free pizza for lunch, gluten-free cornbread with dinner and gluten-free cookies for desert and you may end up with enough trace gluten to exceed your personal tolerance threshhold.

Or it could be something like gall bladder disease or lyme disease.

You could post what you eat and that might help us figure it out. Good luck!

Reba32 Rookie

Hyperthyroid, rather than hypothyroid, can cause you too constantly feel hungry, and contrary to what most doctors and people think, it is possible to gain weight and be hyper thyroid! I know, because I've BTDT! I had Grave's Disease (currently in remission) and at first I lost a lot of weight, but then I gained it all back plus! after my muscles started wasting. Add to that the undiagnosed Celiac, and I was a complete mess.

Have your thyroid and anti-bodies tested, and try a more natural food approach like paleo. Lots of healthy fats, moderate protein, restricted carbs berries, nuts, seeds, leafy greens (ie: restricted to no refined grains, no refined sugars just stuff that would have been available in paleolithic era).

Marilyn R Community Regular

It may pay to eliminate soy, if indeed you have a thyroid condition. Then again, it may be prudent to eliminate soy even if you don't have a thyroid condition.

Good luck, hope you feel better!.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rain Contributor

Thanks for all your thoughts. I'm discovering that part of the issue is acidity. I started taking prilosec and have felt the hunger feeling subside. I'm hoping that all the rest of the symptoms go with it. I'm also guessing that I just need to give my body more time to heal. I noticed another shift in how I feel this past week...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.