Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Melatonin Rules For Sleep Issues

imracin68j

By imracin68j
in Related Issues & Disorders

Recommended Posts

imracin68j Rookie
imracin68j
Posted

I was having a hard time sleeping. Probably anxiety and who knows what else. I looked online at this stuff your body makes called melatonin which is actually a hormone your body creates when it's pitch dark during your sleep. It actually turns on all the other hormones in your body that fight diseases and cancers. It works by turning on your biological sleep clock. Your body creates melatonin during REM sleep which happens under complete darkness sleeping which is why people who work nights are more prone to cancers, because their body doesn't create melatonin under lighted sleep to fight the cancers. This is true for people who stay up till 4-5 in the morning. After a month I was sold. It's not habit forming and has very few if any negative side effects. And its really cheap. You can get it at and drug store for under 10 bucks. Go look it up, it's amazing stuff. Reports show it actually stops, prevents tumor growth and even retracts some forms of cancer. I believe this stuff is one of the worlds hidden secrets on cancer prevention and treatment. Do your own investigation.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AVR1962 Collaborator
AVR1962
Posted

Yeah, I can take one and sleep without feeling groggy the next morning.

love2travel Mentor
love2travel
Posted

Melatonin does absolutely nothing for my insomnia. I've taken the 3, 5 and 10 mg and nil. It is as though I have taken a placebo! But I have serious insomnia which is exacerbated by my severe pain making it very difficult to fall and stay asleep. Thank goodness I have a prescription that works well!

Glad it is working for you. Sleep is so incredibly important.

Does it actually make you feel groggy? I cannot imagine!

  • 2 weeks later...
imracin68j Rookie
imracin68j
Posted
  • Author

Melatonin does absolutely nothing for my insomnia. I've taken the 3, 5 and 10 mg and nil. It is as though I have taken a placebo! But I have serious insomnia which is exacerbated by my severe pain making it very difficult to fall and stay asleep. Thank goodness I have a prescription that works well!

Glad it is working for you. Sleep is so incredibly important.

Does it actually make you feel groggy? I cannot imagine!

It doesn't work instantly like other sleep aids. It works by taking it at the same time every night. People that don't sleep good need to take melatonin for the simple reason their body isn't creating it if they aren't sleeping. This leads to cancers and other serious diseases which are fought off with the hormones that melatonin kicks on. Even if it doesn't make them fall asleep it's vital to have this in your body.

love2travel Mentor
love2travel
Posted

It doesn't work instantly like other sleep aids. It works by taking it at the same time every night. People that don't sleep good need to take melatonin for the simple reason their body isn't creating it if they aren't sleeping. This leads to cancers and other serious diseases which are fought off with the hormones that melatonin kicks on. Even if it doesn't make them fall asleep it's vital to have this in your body.

Yes, I do take it nightly at the same time and have done so for months. Have taken it before for ages - I just wish I would see some results in my sleep! It is so rare that I sleep well that it is a shock when it finally does happen. The pain just makes it impossible to sleep - my chronic pain management doctor and I are working on something to enable me to sleep to get me out of this awful cycle.

Austin Guy Contributor
Austin Guy
Posted

I have found melatonin to cause a bad hangover. I started taking it 10 days ago and progressively felt more and more fatigued throughout the day. Getting up in the morning was difficult and I just couldn't get going. Started drinking lots more coffee and it just didn't do anything. I got to the point of feeling physically ill I was so tired.

I finally tied this to melatonin and stopped taking it. I woke the following morning with energy and just felt loads better. I realize that melatonin works wonders for some, but I will never take the stuff again.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I wouldn't be able to sleep without it! I take it about an hour before bedtime every night. I don't always sleep through the whole night, but before taking it I wasn't sleeping except for maybe an hour or two every couple of days. Huge improvement! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wheeleezdryver Community Regular
wheeleezdryver
Posted

I wouldn't be able to sleep without it, either!

I started taking it in April, and it has been a godsend!

I usually only need to take 1/4 or 1/2 of a 1 mg pill each night. My cue that I'm taking too little is waking up during the night... the next night i will up my dose. My cue that I'm taking too much is, like others described, feeling extremely groggy or 'hung' over the next day... so, of course, the next night I just reduce the dose. That is what works for me!

love2travel Mentor
love2travel
Posted

Glad it works for some! No matter the dose (up to 10 mg) I get no help from it whatsoever. Sigh...

  • 2 weeks later...
Gfresh404 Enthusiast
Gfresh404
Posted

I've actually been thinking about taking it since my sleep problems still exist and have only gotten worse this semester since I have an 8 am class.

The only thing that scares me about taking it is the fact that it's a hormone. And there have also been no long term studies determining its safety. At least when I am taking Glutamine I know that it's just an amino acid - but there's no guarantee about that either.

Has anyone tried Valerian Root? That actually helped me quite a bit for a while.

adab8ca Enthusiast
adab8ca
Posted

I've actually been thinking about taking it since my sleep problems still exist and have only gotten worse this semester since I have an 8 am class.

The only thing that scares me about taking it is the fact that it's a hormone. And there have also been no long term studies determining its safety. At least when I am taking Glutamine I know that it's just an amino acid - but there's no guarantee about that either.

Has anyone tried Valerian Root? That actually helped me quite a bit for a while.

OOOOOOOOOOOOH valerian gave me AWFUL AWFUL dreams...

rpete136 Newbie
rpete136
Posted

By the time I caught my gluten problems I already had damage. The villi that are damaged produce lactase and sucralase to break down milk and sugar. I figured out a long time ago that I can't have gluten or milk, but only realized recently how difficult sugar can be. When I remove sugar, and even reduce the amount of natural sugar I get (fruit, carrots etc.), I sleep way better, and a feel rested in the morning. Otherwise I always feel like I haven't slept in a week when I wake up.

Skylark Collaborator
Skylark
Posted

I tried it and woke up bright-eyed and bushy-tailed at 4am unable to go back to sleep. Yuck!

love2travel Mentor
love2travel
Posted

Valerian root did nothing for me but my insomnia is so incredibly severe. Definitely not resolving yet after being gluten-free for seven months.

BabsV Enthusiast
BabsV
Posted

I tried Melatonin again this week...had tried it in the past with little success but my sleep has been so fractured the doctor wanted to put me on Ambien! Surprisingly, half of a 3mg tablet of Melatonin has done wonders for me at this time. Go figure. I'll stick with it for a bit since I really do need to try to catch up on sleep. I'm still amazed however because when I took Melatonin in the past it did absolutely nothing for me.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

You may be absorbing it better now? A good sign you're healing!

Isn't sleep wonderful? :D

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Here's an article on Melatonin.

If you scroll down you can read all of the things it can treat. Even restless leg syndrome.

Open Original Shared Link

Jsmacks13 Newbie
Jsmacks13
Posted

I take Mid-Nite which is a melatonin med that's gluten-free. I love it because it will put me to sleep, but I hate that I never actually stay asleep for more than two hours at a time. I am the worst sleeper! Always have been and I just want to be one of those people who can sleep the day away. lol

  • 5 weeks later...
RogerHoff Newbie
RogerHoff
Posted

I found a product that has melatonin in it and it is GLUTEN FREE! It is made by a company called Liquid Health. It is called Open Original Shared Link. And it works as it says. It helped me to sleep well.

I've also tried a couple of other products that have Valerian root and 5HTP in it. These products are great for helping me not be so restless.

love2travel Mentor
love2travel
Posted

Am trying the Melatonin 10 mg and nothing. Nil. Zip. Zilch. However, my insomnia is the worst all my doctors have ever seen. I can go several days without even falling asleep, sadly... :(

jerseyangel Proficient
jerseyangel
Posted

Am trying the Melatonin 10 mg and nothing. Nil. Zip. Zilch. However, my insomnia is the worst all my doctors have ever seen. I can go several days without even falling asleep, sadly... :(

l2t, Have you ever tried old-school antihistamines like Rx Vistaril?

love2travel Mentor
love2travel
Posted

l2t, Have you ever tried old-school antihistamines like Rx Vistaril?

I have tried some antihistamines but not Vistaril specifically. Get this - I slept wonderfully well most nights in Istria. True, people tend to sleep better on vacation, but there is something about the sea air and humidity. Well, I'm guessing all that walking helped, too. My skin felt so much better there as well.

I do have a prescription for insomnia that I take once a week for a guaranteed rest. Am still hoping that the longer I am gluten free this will improve. I have been strictly gluten-free now for eight months.

jerseyangel Proficient
jerseyangel
Posted

Get this - I slept wonderfully well most nights in Istria.

Amazing! Do you plan to move there permanently at some point, or is that not feasible?

love2travel Mentor
love2travel
Posted

Amazing! Do you plan to move there permanently at some point, or is that not feasible?

Yes, we do; at least live there about nine months of the year and three here as we have family here. In the meantime I am trying to learn the VERY difficult language - it will take many years and I know I will never speak it - there are too many difficult letters to pronounce. But I would love to be able to understand and read it.

My energy level (even when in pain) is far higher there, too. And our vacations are not regular vacations - we "live" there (well, and we travel around) so deal with accountants, lawyers, etc. (the regular daily stuff we deal with here as well but without the language differences!). Here my pain increases like crazy about 1 or 2 PM and I often must lie down; there I often go hard until about 5 PM (sometimes without lying down even once during the day). It is remarkable.

Linus Newbie
Linus
Posted

Meletonin is not so great during the winter. The short days are enough to tell your brain that it is time to sleep. Meletonin works on the same areas in the brain. Personally I have found that winter use resulted in aa zombie like feeling during the mornings if you get up when it is dark in the morning. It works fine for me in the summer. I stopped using it after starting a daily work out regimine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,255
    • Most Online (within 30 mins)
      7,748
    BeccaLynn
    Newest Member
    BeccaLynn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.