Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tears Of Joy!

bartfull

Recommended Posts

bartfull Rising Star
bartfull
Posted

I have an unrelated medical problem which causes me considerable pain. I have been unable to find ibuprophen that contains neither gluten nor corn. The pain has been flaring pretty badly lately, and I HAD to take something for it. I have "corned" myself for the past two weeks, just to find some relief. Of course, that has made my psoriasis flare up worse than ever, and my insomnia has come back with a vengence!

My jaw (infection) hurts. My hands hurt. My feet hurt. I can't sleep. I have been tearfully miserable for the past couple of weeks.

At the Gluten Free Festival last week in Rapid City, I talked to the pharmacist who can compound ibuprophen with no gluten or corn. BUT - I need a prescription which means a doctor's office visit, plus the tablets cost about a dollar a piece.

Well, my local pharmacy does not compound mediceines, but I read online yesterday that there is a thing called BC Asperin Powder that is G and C free. From what I read, I thought it was only available in the South, but my local pharmacy can get it! They ordered me some this morning and it will be here Monday. It is only twenty dollars for a bottle of fifty doses. Still a lot, but much less than the ibuprophen would have been.

After they told me, I actually got teared up. Relief is in sight! I just wanted to share my hope and my happiness with you all. Maybe I can get back to feeling as good as I did when I first went gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I have an unrelated medical problem which causes me considerable pain. I have been unable to find ibuprophen that contains neither gluten nor corn. The pain has been flaring pretty badly lately, and I HAD to take something for it. I have "corned" myself for the past two weeks, just to find some relief. Of course, that has made my psoriasis flare up worse than ever, and my insomnia has come back

with a vengence!

My jaw (infection) hurts. My hands hurt. My feet hurt. I can't sleep. I have been tearfully miserable for the past couple of weeks.

At the Gluten Free Festival last week in Rapid City, I talked to the pharmacist who can compound ibuprophen with no gluten or corn. BUT - I need a prescription which means a doctor's office visit, plus the tablets cost about a dollar a piece.

Well, my local pharmacy does not compound mediceines, but I read online yesterday that there is a thing called BC Asperin Powder that is G and C free. From what I read, I thought it was only available in the South, but my local pharmacy can get it! They ordered me some this morning and it will be here Monday. It is only twenty dollars for a bottle of fifty doses. Still a lot, but much less than the ibuprophen would have been.

After they told me, I actually got teared up. Relief is in

sight! I just wanted to share my hope and my happiness with you all. Maybe I can get back to feeling as good as I did when I first went gluten-free.

I'm crossing my gluten-free fingers for you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. suek54
      - suek54 replied to Kayla S's topic in Dermatitis Herpetiformis
      4

      Need advice for some relief!

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally...
    2. Scott Adams
      0

      Do Air Filters, Vent Hoods, and HEPA Vacuums Reduce Home Gluten Exposure?

    3. MicG
      - MicG replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol.
    4. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated...
    5. MicG
      - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,655
    • Most Online (within 30 mins)
      7,748
    Murdy3
    Newest Member
    Murdy3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • suek54
      Need advice for some relief!

      By suek54 · Posted

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test interpretations

      By MicG · Posted

      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back?

      By catnapt · Posted

      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.