Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tears Of Joy!


bartfull

Recommended Posts

bartfull Rising Star

I have an unrelated medical problem which causes me considerable pain. I have been unable to find ibuprophen that contains neither gluten nor corn. The pain has been flaring pretty badly lately, and I HAD to take something for it. I have "corned" myself for the past two weeks, just to find some relief. Of course, that has made my psoriasis flare up worse than ever, and my insomnia has come back with a vengence!

My jaw (infection) hurts. My hands hurt. My feet hurt. I can't sleep. I have been tearfully miserable for the past couple of weeks.

At the Gluten Free Festival last week in Rapid City, I talked to the pharmacist who can compound ibuprophen with no gluten or corn. BUT - I need a prescription which means a doctor's office visit, plus the tablets cost about a dollar a piece.

Well, my local pharmacy does not compound mediceines, but I read online yesterday that there is a thing called BC Asperin Powder that is G and C free. From what I read, I thought it was only available in the South, but my local pharmacy can get it! They ordered me some this morning and it will be here Monday. It is only twenty dollars for a bottle of fifty doses. Still a lot, but much less than the ibuprophen would have been.

After they told me, I actually got teared up. Relief is in sight! I just wanted to share my hope and my happiness with you all. Maybe I can get back to feeling as good as I did when I first went gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I have an unrelated medical problem which causes me considerable pain. I have been unable to find ibuprophen that contains neither gluten nor corn. The pain has been flaring pretty badly lately, and I HAD to take something for it. I have "corned" myself for the past two weeks, just to find some relief. Of course, that has made my psoriasis flare up worse than ever, and my insomnia has come back

with a vengence!

My jaw (infection) hurts. My hands hurt. My feet hurt. I can't sleep. I have been tearfully miserable for the past couple of weeks.

At the Gluten Free Festival last week in Rapid City, I talked to the pharmacist who can compound ibuprophen with no gluten or corn. BUT - I need a prescription which means a doctor's office visit, plus the tablets cost about a dollar a piece.

Well, my local pharmacy does not compound mediceines, but I read online yesterday that there is a thing called BC Asperin Powder that is G and C free. From what I read, I thought it was only available in the South, but my local pharmacy can get it! They ordered me some this morning and it will be here Monday. It is only twenty dollars for a bottle of fifty doses. Still a lot, but much less than the ibuprophen would have been.

After they told me, I actually got teared up. Relief is in

sight! I just wanted to share my hope and my happiness with you all. Maybe I can get back to feeling as good as I did when I first went gluten-free.

I'm crossing my gluten-free fingers for you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748

    BJ OConnor
    Newest Member
    BJ OConnor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.