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Wonderful Things About Eating Gluten Free


UKGail

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UKGail Rookie

Many of us are using the board to for support in adjusting to a gluten free diet and for help in figuring out problems which seem to accompany the diagnosis. I thought perhaps it might cheer everyone up to take a moment to think about something, whether big or small, which helps make all the hard work worthwhile.

For me, and as I sit here typing at my keyboard, I keep marvelling about my nails (yes it is a personal vanity moment...) After 6 weeks gluten free I now have long nails which are strong and are not breaking, splitting or peeling. As someone who is used to curling up her hands to hide short, tatty nails, this is a complete novelty! I think I might even treat myself to a manicure to celebrate.

Has anyone else any happy moments they would like to share?


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BabsV Enthusiast

As of today I am 8 weeks gluten free and am enjoying the fact that my abdominal pain issues (which were almost debilitating) are drastically improved, my energy levels are increasing and my brain fog is clearing. All this means I can function at an almost 'normal' level of activity...going to the grocery store or walking the dog no longer kills me for the rest of the day. IT IS AWESOME! :)

Jnkmp8 Newbie

Hi

What a fab idea--- after months of DH& gastro problems, by body is pretty much in recovery on a superficial level... I have long strong nails for the first time too!!! Woohoo-- just becareful of manicure products!!! Jessica are apparently gluten-free-- enjoy! Xx

Reba32 Rookie

I am quite happy that the noxious gas problems are all gone :D

Jnkmp8 Newbie

Lol I bet everyone else is too--- if it's anything like mine was!!! 

missy'smom Collaborator

At 5 yrs? gluten-free, I am greatful that my kiddo(13) finally gets to have a mom(after 10 yrs of being sick) with more energy to keep up with him and ability to be more fully present.

wheeleezdryver Community Regular

At just over 1 year gluten-free, I am thankful that:

I can eat dairy with no problem.

I almost never have cold sores any more.

The rashes on my arms and hands are almost completely gone, especially during the summer sun exposure time... (not DH, I believe, but most defniately gluten related!).

I almost never have bladder pain any more.

I don't walk into walls--- unless I'm REALLY tired (ataxia)

I get to eat all the gluten-free goodies i want, especailly KinniToos! :)

Chronic constipation is getting better :)

still waiting for the lines in my nails and my fructose issues to go away, but I'm so glad to be so much better that I was a year ago!


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AVR1962 Collaborator

At 5 yrs? gluten-free, I am greatful that my kiddo(13) finally gets to have a mom(after 10 yrs of being sick) with more energy to keep up with him and ability to be more fully present.

I think this is great and I understand exactly what you are saying.

AVR1962 Collaborator

At 5 months gluten-free I have noticed my skin tone has improved! I have more energy and ambition! I have been back to exercising now for a week.....walking, lifting weights and short jogs.....feels awesome to be able to do once again. I am actually hearing myself laugh again which is wonderful! It almost feels like I am just beginning to enjoy life, a new life!!

Cinderella64 Newbie

At just over 1 year gluten-free, I am thankful that:

I can eat dairy with no problem.

I almost never have cold sores any more.

The rashes on my arms and hands are almost completely gone, especially during the summer sun exposure time... (not DH, I believe, but most defniately gluten related!).

I almost never have bladder pain any more.

I don't walk into walls--- unless I'm REALLY tired (ataxia)

I get to eat all the gluten-free goodies i want, especailly KinniToos! :)

Chronic constipation is getting better :)

still waiting for the lines in my nails and my fructose issues to go away, but I'm so glad to be so much better that I was a year ago!

Hi,

I have bladder pains too, since few weeks, but no inflammation and I have lines in my thumb nails since myna years- are this also the symptoms of GI?

I'm happy that my stomach problems are gone only after 10 days on a diet! No gases anymore, no bloated belly, no pains after every meal, almost no heart burn anymore and I feel slightly stronger, having more energy. I started again with yoga and with walking, which is so good!

I wish that my mental problems will get better too and that my libido returns...

KiwiBrit Rookie

Im almost 6 weeks gluten-free. I can finally DRIVE!!! The dizzyness is gone.

:)

pricklypear1971 Community Regular

I have a brain. I have stamina.

I DON'T HAVE A RASH!!!!!!

My hair stopped falling out.

I don't have headaches, migraines.

I don't feel like I'm stroking the furry wall anymore!

kendon0015 Rookie

My nails are not peeling anymore....after 6 months gluten free.

Sarah P Rookie

I am only a week totally gluten free. I still have pain, but my acne is cleared up! I have had the worst skin my whole life. At 30 I really thought I shouldn't have it anymore, and guess what I don't. Wooohooo!

Jenniferxgfx Contributor

First and foremost, I have my BRAIN back. I feel like sleeping beauty woke up... Like the last several years were a blur. I am a scientist again!

And vainly: I have great hair and nails and skin! A lifetime of really bad skin, hair like straw that won't grow, and nails that won't grow-- and now they all feel foreign. It's nice and they're all lovely, but I feel like sleeping beauty who woke up in a new body!

But I can't talk about my brain enough. It's so nice to think straight again and have a little better grasp on the world around me. I love thinking! Lol

espresso261 Rookie

Pre-diagnosis, I only consumed large amounts of gluten when i was outside of my normal routine (the weekend, vacations, holidays, out to eat for special occasions). During the week, i ate "healthy" which really only included gluten from my cereal or hidden forms (never had pasta, sandwiches, cake etc). after years of feeling horrible after going out or traveling or being at my parents for holidays, i started avoiding social situations all together. or planning them way in advance and in isolated times (ie "i'm going on a date on saturday, so i can't go out to eat or do anything else involving being outside my healthy food routine on friday or at all the week before). i thought it was salt or just that it was normal for my body to not tolerate "unhealthy" food. it was depressing not participating in social events and always having to come up with excuses of why i couldn't do things (knowing that "i'll be bloated, not fit in my clothes, exhausted and have severe body aches after" is not the excuse people like to hear when they invite you out...since i didn't know for sure what it was, i assumed the symptoms were my imagination).

its so nice knowing that the symptoms were not in my imagination and that i don't have to avoid social situations anymore, i just have to avoid gluten! (and although i know salt is not good for you, i'm ecstatic that i can actually have salty foods or put salt on foods sometimes now. i avoided it for 10 years!)

wheeleezdryver Community Regular

Hi,

I have bladder pains too, since few weeks, but no inflammation and I have lines in my thumb nails since myna years- are this also the symptoms of GI?

I'm happy that my stomach problems are gone only after 10 days on a diet! No gases anymore, no bloated belly, no pains after every meal, almost no heart burn anymore and I feel slightly stronger, having more energy. I started again with yoga and with walking, which is so good!

I wish that my mental problems will get better too and that my libido returns...

i'm not the greatest one to explain this, but yes, booth bladder issues and nail problems can be indicators of GI issues/ celiac/ other health issues. (if anyone else can explain this better than me, feel free to do so!)

Most of what i've learned, I learned from reading this forum over the last 1 1/2 years.

When theres gut damage, like celiac, there are microscopic holes in the gut-- well, things get through those holes, and go throughout the rest of the body, and sometimes cause damage to other organs, like the bladder.

A lot of autoimmune diseases are interrelated (including Interstitial Cystitis, aka PainFul bladder Syndrome)And can be related to Celiac Disease/ gluten intolerance.

and sometimes, nail issues can be an indicator of an issue going on elsewhere in the body. Like thyroid problems or malabsorption.

cahill Collaborator

One of the wonderful things about eating gluten free;

When a coworker that knows I am gluten free "forgets" and offers me a Krispy Kream doughnut and I am not even tempted .I say no thank you and the look on his face is priceless and then he "remembers" and we have a good laugh. :lol:

What is wonderful about that is 2 years ago it would have not been possible. :D It would have been a traumatic and painful experience.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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