Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog


Gluten Free Traveller

Recommended Posts

Gluten Free Traveller Newbie

Hi everyone,

I know there have been posts on brain fog before but nothing too recently so I wanted to ask if anyone could help me..

I was diagnosed as celiac a little over 2 years ago and have been completely gluten free ever since. I am extremely careful about what I eat and have been feeling great since all my horrible symptoms left.

Recently however I've been getting really bad brain fog. It makes it difficult to concentrate and I feel as though I'm only half here. I feel spacey and out of it. I have no idea whats causing it. Could it be stress? Something I'm lacking from what I eat? I was at my doctor for a physical less than 4 weeks ago where they did lots of blood tests and everything came back normal except that I have low iron. I'm not anemic as my red blood count is fine but it was suggested I take multi vitamins which I do now.

Has anyone experienced something similar? Any tips on how to get rid of it would be greatly appreciated!

Thanks,

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenDude Newbie

Hi Traveller. Brain fog is a big symptom for me and really hard to explain to other people, but I totally understand it. While it certainly could be something non-celiac related, my assumption is that it is not. Whenever it happens to me now, and especially if I am also really tired, it means I've been glutened somehow. I'm as careful as they get, but I can only assume some gluten sneaks in at times, whether thru cross contamination or some other innocuous way.

saintmaybe Collaborator

Hi everyone,

I know there have been posts on brain fog before but nothing too recently so I wanted to ask if anyone could help me..

I was diagnosed as celiac a little over 2 years ago and have been completely gluten free ever since. I am extremely careful about what I eat and have been feeling great since all my horrible symptoms left.

Recently however I've been getting really bad brain fog. It makes it difficult to concentrate and I feel as though I'm only half here. I feel spacey and out of it. I have no idea whats causing it. Could it be stress? Something I'm lacking from what I eat? I was at my doctor for a physical less than 4 weeks ago where they did lots of blood tests and everything came back normal except that I have low iron. I'm not anemic as my red blood count is fine but it was suggested I take multi vitamins which I do now.

Has anyone experienced something similar? Any tips on how to get rid of it would be greatly appreciated!

Thanks,

Laura

Have you started using any new skin or hair products recently? Many times, a sudden change can be as a result not of diet, but of the beauty regimen. I would recommend throwing away any gluten-containing conditioners, lotions, soaps, lip balms, makeups, etc. Major, major source of overlooked cross contamination.

pricklypear1971 Community Regular

I've been going round and round with iron and vit d - blood work shows im low on both.

I noticed a big increase in energy and clarity and "wanna go go go" when I started taking higher doses of them. So maybe the iron will help??

Btw - iron does make me a bit sick at my stomach but it improves every day.

Gluten Free Traveller Newbie

Hi Traveller. Brain fog is a big symptom for me and really hard to explain to other people, but I totally understand it. While it certainly could be something non-celiac related, my assumption is that it is not. Whenever it happens to me now, and especially if I am also really tired, it means I've been glutened somehow. I'm as careful as they get, but I can only assume some gluten sneaks in at times, whether thru cross contamination or some other innocuous way.

Interesting. Yes, it really is difficult to explain to others who don't experience it. How long does your brain fog usually last? For me it's currently been over a week but at certain times it's worse than others...not sure why. A lot of people have been suggesting that it could be that I'm not getting enough fatty acids like omega 3. I'm going to try to incorporate more salmon, etc and see if it makes a difference.

Gluten Free Traveller Newbie

Have you started using any new skin or hair products recently? Many times, a sudden change can be as a result not of diet, but of the beauty regimen. I would recommend throwing away any gluten-containing conditioners, lotions, soaps, lip balms, makeups, etc. Major, major source of overlooked cross contamination.

I haven't started using anything new as far as I can remember. I'm not a big make-up wearing person and I've been using the same type of shampoo for a long time.

srall Contributor

The vitamins B and D, plus iron supplements help me a lot. A few weeks ago I was trying to give up coffee. So I switched to tea. I noticed that I was having brain fog, not terrible, but feeling a little "drunk" and out of it. So I switched back to coffee and I feel better. I don't think it was caffeine withdrawal b/c my coffee is mostly decaf. I believe the tea bags were a problem.

I hate that feeling and I really hope you get it figured out quickly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenDude Newbie

Interesting. Yes, it really is difficult to explain to others who don't experience it. How long does your brain fog usually last? For me it's currently been over a week but at certain times it's worse than others...not sure why. A lot of people have been suggesting that it could be that I'm not getting enough fatty acids like omega 3. I'm going to try to incorporate more salmon, etc and see if it makes a difference.

It really varies, and I'm pretty sure it all depends on how much gluten I ingested. It's been five years and I still can't figure this crazy disease out.

o2guy Rookie

I seem to have more brain fog when my B12 levels are low I have been on B12 injections for over 10 years and that's one of the symptoms I have when I'm low

dilettantesteph Collaborator

I get brain fog as an indication of contamination. I've recently been doing a bunch of eliminations to get rid of mine. I eliminated stuff one thing at a time for a few days each to see if it went away. I finally figured it out. It was my tea. Glad I did. I need a clear head for my work.

Leper Messiah Apprentice

Hi Traveller. Brain fog is a big symptom for me and really hard to explain to other people, but I totally understand it. While it certainly could be something non-celiac related, my assumption is that it is not. Whenever it happens to me now, and especially if I am also really tired, it means I've been glutened somehow. I'm as careful as they get, but I can only assume some gluten sneaks in at times, whether thru cross contamination or some other innocuous way.

I agree with GlutenDude, this is a surefire sign for me that I've been glutened. It's never actually eating gluten so to speak for me - avoiding directly eating gluten is generally the easy part of my daily gluten fight, it's always CC, I have to be uber careful with food and food preparation areas. Hope this helps you start avoiding the fog - oh and I generally correlate brain fog with having just been glutened (as opposed to a delayed reaction caused by a historic glutening) my reactions last for 2 weeks so this distinction is vital for me, it might be that your reactions are shorter/different though.

Katrala Contributor

and I generally correlate brain fog with having just been glutened (as opposed to a delayed reaction caused by a historic glutening)

I'm the same way. I get brain fog and usually pinpoint it to a recent CC.

The best thing I've found that helps me is lots of water. I've tried caffeine, etc. but nothing else seems to help. The water thing could be completely mental, but it does seem to make a little bit of a difference.

cyberprof Enthusiast

Hi everyone,

I know there have been posts on brain fog before but nothing too recently so I wanted to ask if anyone could help me..

I was diagnosed as celiac a little over 2 years ago and have been completely gluten free ever since. I am extremely careful about what I eat and have been feeling great since all my horrible symptoms left.

Recently however I've been getting really bad brain fog. It makes it difficult to concentrate and I feel as though I'm only half here. I feel spacey and out of it. I have no idea whats causing it. Could it be stress? Something I'm lacking from what I eat? I was at my doctor for a physical less than 4 weeks ago where they did lots of blood tests and everything came back normal except that I have low iron. I'm not anemic as my red blood count is fine but it was suggested I take multi vitamins which I do now.

Has anyone experienced something similar? Any tips on how to get rid of it would be greatly appreciated!

Thanks,

Laura

Others may be right about the CC but some sub-lingual B12 couldn't hurt. The tested levels may not be accurate. Magnesium is another one that I take that could be helpful.

Leper Messiah Apprentice

I'm the same way. I get brain fog and usually pinpoint it to a recent CC.

The best thing I've found that helps me is lots of water. I've tried caffeine, etc. but nothing else seems to help. The water thing could be completely mental, but it does seem to make a little bit of a difference.

Yeah water helps me too, takes the edge off it, although need to be near a loo :)

George Knighton Apprentice

Have you tried eating more foods with iron in them?

Gfresh404 Enthusiast

It's a little scary how much you sound like me. I'm having the same exact issues and people were suggesting that it might have been my thyroid but all tests came back normal except my iron was low. I've started taking iron supplements and i can't tell yet if they're working or it's just placebo effect.

For me mild brain fog is not CC. Severe brain fog is when I am glutened.

I really don't KNOW what causes it - I think it's just from having a slightly damaged gut - I know that's really vague but I am sorta out of ideas at this point

Gluten Free Traveller Newbie

Have you tried eating more foods with iron in them?

I'm eating a huge spinach salad right now. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.