Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick From Soy


BeFree

Recommended Posts

BeFree Contributor

So it seems that I am having reactions to soy also. I bought some soy milk in an attempt to avoid dairy, and ended up running to the bathroom with D. It seems to have messed me up pretty good. How long does a soy reaction usually last? And why is soy in everything anyway? I don't remember any recipe that says to add a tablespoon of "soy lecithin". What is that stuff and why is it in all of our foods???? :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Hi BeFree,

Sorry you had a reaction to soy. Quite a few of us on the forum have problems with it.

My reactions to soy were fairly similar to the reactions to gluten and dairy. Your autoimmune system found a new enemy. Soy does seem to be in almost everything! It's cheap and easy to grow and refine. Check your vitamins, supplements, toothpaste ... along with the obvious stuff in your refrigerator or pantry.

If you like stir-fries, a reasonable substitute for Soy Sauce is coconut aminos, or a Tbsp. of Thai fish sauce, the juice of a lime (or about 1 1/2 T. of rice vinegar) and some honey, agave or sugar. Mix that up in a little bowl and let it sit while you prepare the stir fry.

As for milk, I had a problem finding an alernative milk that worked, because most of them contain soy derivitives. I went without cereal for quite awhile and ended up using canned coconut milk from the Indian grocer for my coffee (no additives, it was like a cream). I like it for soups or mashed potatos, and people eating my cooking didn't seem to notice a difference.

Good luck to you, hope you feel better soon.

mushroom Proficient

Many of us react to soy, particularly because in the processed gluten free products soy is substituted pretty freely for gluten. After avoiding all soy for three years I find I am now able to tolerate some soy lecithin,so that I can eat chocolate quite freely again and don't have to worry about those pesky emulsifiers that seem to need to be in processed foods. But I know what you mean - you will never find a regular cookbook recipe that calls for a tablespoon of soy lecithin :P In fact, I think we never heard of it until we stopped eating gluten and started reading labels. Who knows how much of it we have eaten over the years? :o It is good to be aware of what is in your "foods".

BeFree Contributor

Is all Udi's bread soy-free? The cinnamon raisin loaf I have in the freezer right now says soy-free and I hope the rest of them are too.

It seems looking back that I have reacted to soy milk and soy butter, and also a gluten-free pizza I ate where I THOUGHT I was reacting to the dairy, but on further thought it was probably the soybean oil in the crust. Ugh this is all so confusing to pin down!

I did react badly once to tofu several years ago and have avoided it ever since, so I guess this would make sense. Maybe I have had an allergy that has just gotten worse over time.

Bubba's Mom Enthusiast

I've found that I can't tolerate soy either. I never knew I had a problem until going gluten-free and started keeping a food log. Soy oil and soy lethicin get me whereas some people can consume them with no problem, and just react to the soy protein.

My soy symptoms are more like joint pain, migraines, dizziness,pain in my lower right quadrant, D. They're different from my gluten symptoms.

I'm wondering if "leaky gut syndrome" is what is letting the soy give me neuro issues? Once I'm more healed I'm going to see if I can have a bit of the soy lethicin..it would give me back my cholate. ;)

I hear ya..on soy being in everything! It has taken away a lot more foods from my diet than gluten has. Restaurants love to use it too.

Apache Apprentice

It's weird, but sometimes I can handle soy and sometimes I can't. I've actually decided to stop eating all together, though. I also get bad headaches, dizziness, and general weakness from soy, but no digestive problems.

I think soy lecithin is used as an extender. I was watching something on television about all of the different uses for soy. It was actually interesting what all can be done with this bean. There isn't one particle that can't be used for something. Everything from "milk" to plastics. With so many people having bad reactions to soy, the growing consensus is that it isn't meant for human consumption. I think you can add every other legume and grain to that list, especially if you're trying to heal your gut.

BeFree Contributor

Has anyone found that probiotics helped them tolerate soy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Apache Apprentice

Has anyone found that probiotics helped them tolerate soy?

Don't consume soy if you're trying to heal leaky gut, even if probiotics help you tolerate it. There are too many gut irritants in it. If you tolerate the protein there is still the lectins that can be problematic. It's best just to avoid it, at least until you get better.

BeFree Contributor

My 5th official day of being soy-free and feeling GREAT

The past few mornings I have woken up with that "anxiety" feeling. I wake up and immediately there's this feeling of dread in my stomach, like I'm about to face a stressful day except, there's nothing stressful coming up in my day. It won't go away even though I'm not really nervous about anything. Anyone else experience this?

It seems that when I am gluten-free and soy-free, that weird feeling is not there. This morning I woke up from good dreams, feeling very peaceful and relaxed.

cahill Collaborator

Is all Udi's bread soy-free? The cinnamon raisin loaf I have in the freezer right now says soy-free and I hope the rest of them are too.

Udi's white bread and bagels (in addition to the cinnamon loaf) are gluten and soy free.They do however contain eggs.

I am actually going to try to make stuffing from Udi's bread this year for Thanksgiving

BeFree Contributor

"Check your vitamins, supplements, toothpaste"

How will I know if those things have soy? Will it say "soy" in the ingredients, or is it hidden?

Marilyn R Community Regular

Most Health & Beauty items don't list the allergins, so they can be hidden. A dietician printed me a list from the ADA cite, but I can't locate it. Here's a link that might be helpful. Open Original Shared Link

I can tolerate soy lecethin now too!

You don't have to give up chocolate, though. Enjoy Life chocolate chips and chocolate chunks (check local health food store or gluten-free Mall) are gluten-free, SF and DF. Hershey's cocoa just contains cocoa, so you can make s simple chocolate sauce (search Allrecipes.com) and have chocolate dipped bananans (freeze them or not) or poached pears with chocolate sauce. I think any fruit dipped in chocolate tastes great. Fresh pineapple and chocolate sauce is over the top! If you want to be wicked, you can roll skewers of your favorite fruit dipped in chocolate into crushed gluten-free SF nuts. (Peanuts, cashews...) Nutsonline.com is a source I like for dedicated gluten-free nuts.

Good luck to you on your food journey.

Charli61 Apprentice

Udi's white bread and bagels (in addition to the cinnamon loaf) are gluten and soy free.They do however contain eggs.

I am actually going to try to make stuffing from Udi's bread this year for Thanksgiving

I have made my stuffing from Udi's white and whole grain breads twice now, and it works wonderfully!

AVR1962 Collaborator

I'm not doubting that it could be soy but check the other ingredients also. In some of the nondairy milk they have carrageenan and xanthan gum that really do a number on my system. Sorry you're feeling bad, hopefully it will pass soon!

BeFree Contributor

"I'm not doubting that it could be soy but check the other ingredients also"

I'm keeping all ingredients in mind in my continuing "investigation" that has become a daily thing for all of us LOL, but in adding things up it seems fairly likely to be soy...I have been getting D after eating soy butter and soy milk, and severe dizziness after eating tofu. After I get everything cleared out of my system, I'll try a small amount of straight soy and see what happens.

For now I'm sticking to a whole foods diet: fresh fruit, vegetables, meat, eggs and nuts. No soy, no weird things like carageenan, no nothin!

BeFree Contributor

What about all the Bob's Red Mill products that say "manufactured in a facility that uses soy"? Should I be concerned about that?

Mary Lou 2 Newbie

So it seems that I am having reactions to soy also. I bought some soy milk in an attempt to avoid dairy, and ended up running to the bathroom with D. It seems to have messed me up pretty good. How long does a soy reaction usually last? And why is soy in everything anyway? I don't remember any recipe that says to add a tablespoon of "soy lecithin". What is that stuff and why is it in all of our foods???? :angry:

I am allergic to soy and soy lecithin also. I drink Almond milk with pretty good luck. You have to read the label though, because the stuff that doesn't need refrigeration contains soy lecithin. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    2. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,259
    • Most Online (within 30 mins)
      7,748

    Lindia
    Newest Member
    Lindia
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.