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Nine Months Of Recovery

AVR1962

By AVR1962
in Coping with Celiac Disease

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

Thanks for the reply on the sciatic nerve. Have had back issues for years (hurts no matter what I do) and reoccurring sciatica for the past 2. Luckily it only runs down the back of my left leg but my whole back feels stiff and then my neck gets stiff. I do the stretches and exercises, have an inversion table that I use and have had massages. I sleep with a pillow between my knees. Bought a new bed which did help. When it flaires up it takes a couple months at least before it finally goes away. And I sit in a chair to teach approx 4 hours a day which is a killer on that leg.

I found an herbal anti-inflammatory that I started taking just this week and if that doesn't work I think I will try a chiropractor. Any tips you have learned that work would be helpful!

Sounds as if you have tried all the same things I have.

piriformis stretches, chiropractic, massage, physical therapy, ice, pillow between the knees, anti-inflammatories, pain meds, even relented to a steroid injection.... :rolleyes: NO HELP!

For me, the intense sciatic nerve pain is gone. It's the other stuff I deal with now that is hell.

Hope you get some relief. Wish there was a magic bullet, but even the spine specialist I saw last week said he thinks all this pain I have (nerve/joint/bone/muscle/tissue/ligaments) is just exacerbated from inflammation from Celiac. He feels gluten toxicity is in ALL ORGANS and TISSUES (I agree and believe the celiac specialists do too) He was VERY knowledgeable about celiac disease--naturally, he is from another country. <_< Until THAT dies down, I am not sure that I will see much relief just yet. SIGH...

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AVR1962 Collaborator
AVR1962
Posted
  • Author

Sad enough that does make sense. Thanks for sharing that with me IrishHeart.

IrishHeart Veteran
IrishHeart
Posted

Sad enough that does make sense. Thanks for sharing that with me IrishHeart.

WE will just hang in there! You just keep doing what you need to do to get well and see what happens. If you know a good chiro, try a few sessions. Can't hurt and may help you!

I know this...don't ever give up hope!

You take good care of yourself! ;)

We're on the right path now!

BabsV Enthusiast
BabsV
Posted

For those who are new and wonder if they are ever going to get better, I hope this posts gives you hope. I as bad and it has taken me alot to get me where I am today. Don't give up, don't lose hope. Every day is a anew day and a another chance to make things better for ourselves.

Yay! So happy to hear that you continue to feel better. What a relief it must be to have the dizziness gone. For those of us newbies it is great to hear news like this and it gives me hope that in a few more months I'll be feeling better!

AVR1962 Collaborator
AVR1962
Posted
  • Author

Yay! So happy to hear that you continue to feel better. What a relief it must be to have the dizziness gone. For those of us newbies it is great to hear news like this and it gives me hope that in a few more months I'll be feeling better!

Yes, it does feel good! Nine months, every day all day long, my balance was off. My eyes are improving with the help of the cod liver oil so I am no longer blinded by the bright yellow leaves on the ground. I actually have energy and have been in the yard doing clean-up before weather gets too cold. It feels absolutely awesome.

Be strict with your diet, it pays off!

IrishHeart Veteran
IrishHeart
Posted

Be strict with your diet, it pays off!

DITTO from me! :) and yes, I agree @ the dizziness going away...and it feels great to no longer feel like I had one of those "rolling sidewalks" in the airport under my feet. :blink: (that was just an awful sensation.)

I fell off a treadmill when I was that ditzy! Stopped going to the gym as I also had developed parasthesia in my back and legs.. oh,yes, and it's a relief not to bang off walls as I tried to negotiate doorways in the middle of the night on several potty runs, night blindness and all --and bruising the heck out of myself...all that has stopped!!!!! ....oh, the joy of recovery! :)

Hang in there, you warrior princesses! IH

AVR1962 Collaborator
AVR1962
Posted
  • Author

DITTO from me! :) and yes, I agree @ the dizziness going away...and it feels great to no longer feel like I had one of those "rolling sidewalks" in the airport under my feet. :blink: (that was just an awful sensation.)

I fell off a treadmill when I was that ditzy! Stopped going to the gym as I also had developed parasthesia in my back and legs.. oh,yes, and not to bang off walls as I tried to negotiate doorways in the middle of the night on several potty runs, night blindness and all --and bruising the heck out of myself...all that has stopped!!!!! ....oh, the joy of recovery! :)

Hang in there, you warrior princesses! IH

Wow! As bad as it sounds, it's nice to know that someone else knows exactly what I have dealt with. I was running into doorjams. I would get out of bed and instead of my body tracking straight it would track left as I was trying to make it go right. I mentioned this to my doc and he acted baffled.

You hang in there too IrishHeart!!

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pricklypear1971 Community Regular
pricklypear1971
Posted

Wow! As bad as it sounds, it's nice to know that someone else knows exactly what I have dealt with. I was running into doorjams. I would get out of bed and instead of my body tracking straight it would track left as I was trying to make it go right. I mentioned this to my doc and he acted baffled.

You hang in there too IrishHeart!!

I can't express how "ungraceful" I've been my entire life. Not to mention my lack of a center of balance (I'd flunk a sobriety test sober).

IrishHeart Veteran
IrishHeart
Posted

Wow! As bad as it sounds, it's nice to know that someone else knows exactly what I have dealt with. I was running into doorjams. I would get out of bed and instead of my body tracking straight it would track left as I was trying to make it go right. I mentioned this to my doc and he acted baffled.

You hang in there too IrishHeart!!

I walked sideways sometimes, my body was tilted and veering off to one side.

I felt like I was on a moving sidewalk sometimes. I had vertigo. I told all this to hubby and thank God he did not think me mad.

I had bizarre dreams where I woke up screaming. I told my husband I felt "peculiar" as I did not know how to describe it. I felt surreal, like I was drifting through my days, in a bad dream. I was on fire from neuropathy and cried every afternoon as I felt a dark curtain come down over me. WHY? Back in 2009, I WAS ON A HIGH FIBER, WHOLE GRAIN DIET FULL OF WHEAT, RYE AND BARLEY AS SUGGESTED BY A NATUROPATH. :blink::blink: . The PC doctor said I was "grieving" after my Dad's death and I needed xanax and a psychiatrist. :blink: Really? <_<

I stopped driving for fear I would not be clear enough. Gluten really messed with my head. I did NOT tell him about the times I hallucinated after a wheat-filled day until recently when I tearfully told him EVERYTHING that was going through my head back then. How scared I was. He just held me as we cried together. When I started talking with a few women on here who had the same experiences, I felt validated.

If I had not researched my symptoms (even in a gluten head stupor) I do not know what would have become of me.

All that has stopped, except for when I am CCed--the first thing to come back is anxiety and agitation. YUCK!

AVR1962 Collaborator
AVR1962
Posted
  • Author

Goodness, our situations are similiar. Hard to look back sometimes, isn't it? I am glad we're both doing much better!

IrishHeart Veteran
IrishHeart
Posted

Goodness, our situations are similiar. Hard to look back sometimes, isn't it? I am glad we're both doing much better!

Me, too! Happy Thanksgiving and stay the course! You're doing great!

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