Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depressed

DonnaMM

By DonnaMM
in Coping with Celiac Disease

Recommended Posts

DonnaMM Explorer
DonnaMM
Posted

It's really starting to hit me I will never be allowed to have certain things. Going out with my friends is no longer fun I dont like wine or beer and can never find potato vodka at restaurants office parties are always terrible and there are never foods I can eat. I can't have my fried Mac and cheese from cheesecake anymore. This is very depressing I feel left out from the world and no seems to care. I also just found that I have a heart condition and must limit my salt which is what makes most gluten free processed foods tolerable. Any ideas so I can get myself out of this funk?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sahm-i-am Apprentice
sahm-i-am
Posted

My word Donna! You need a hug. You are still new to gluten free and it is a huge lifestyle change. It took me a good year and a half to be emotionally ok (although I did have a mini-break down the other night because I felt abnormal and different - I HATE pity and I get alot of it from family! Grrrr!).

If I were you, if you have a WHole Foods near you - go get one of their Gluten Free Bakehouse Cupcakes. They come in chocolate or vanilla. They come in the freezer section in a four-pack. Take them home and eat one. It will lift your spirits. I am sorry I have no better, healthier ideas. I just wanted to make you smile. You have been through alot and the journey hasn't been easy - I am sorry for that.

But don't think nobody cares - this forum is FULL of people who know exactly what you are going through. When I was feeling down I would spend hours on this site reading other's people's stories.

mamaw Community Regular
mamaw
Posted

You are fairly new to the gluten-free lifestyle.. I know these will be things you do not want to hear but !!!!!!! For most people the greiving process needs to take place. Hell yes, you naturally would be depressed, you have lost your way of life you've known since your early years...Most go throught the greiving process just as if you lost a loved one. It is natural to be angry, depressed, sad, unhappy, denial, a worthless feeling, lost of friends... ALL NATURAL.. NOw what you do with this process is up to you... For me I would never let a disease get the best of me, DON"T LET IT WIN...You can learn & grow from your mishaps or let it destroy you.. Your choice...

I can tell you that this lifestyle will make you be healthier therefore you will be able to do more...

It takes time to process all the info of the diet/lifestyle... It is a lifestyle but way better than any other disease.... think about it no deadly drugs, no chemo just a eating change, and believe me there is a clone for almost every gluten product out there.

I'm sure you already found out the convience is gone & in a way that may never be perfect again.But it is managable...

When your office have a party make your own food & go & enjoy the fun. Plenty of booze you can have... Make yourself some goodies & freeze them for when you need a piece of cake or a cookie.Buy some quick gluten-free meals that you can eat so every night you don't have to cook.. Buy some gluten-free buns to take to your burger place..Find places that cater to gluten-free ..There are many these days...

If you need to know of eateries,or what isexcellent in the gluten-free foods just ask. I do test marketing & know of some mighty fine gluten-free foods&places to eat...

Lastly don't dwell on what you can't have but what you can do & have...

ANd it's okay to have a brief pity party but then more on so you don't end up in a life long pity party...

You are not alone, your friends will come around, if they are truly your friends they will be glad you are not sick any longer.......

We all have been where you are at this point.........give it time....

blessings

mamaw

RacerX35 Rookie
RacerX35
Posted

For me it was a much easier switch to the gluten free lifestyle. It was either stop eating gluten or continue having seizure from epilepsy. I found that gluten ended up being a contributor to the problem. I have also found so many gluten free products now as well. The major grocery store chains here like Vons (Safeway in other areas), Ralphs, Stater Bros and other health food stores. About an hour away is a Whole foods store and also in Las Vegas for when I go there on business trips. A lot of the big restaurant chains have also started serving gluten free foods as well. One of my all time favorites is The Old Spaghetti Factory. They now serve gluten free noodles and I was told that all their sauces besides the meatball sauce is gluten free. Friends and family do come around after awhile and like is said, bring your own products to parties and such. Sometimes you'll find people that want to try it as well. It can be kind of fun at times when they come around. It is a change, but something that is for the better and there is so much available. Just be careful. I went to buy some of the Amy's Gluten Free burritos and ended up buying the regular ones instead. The packaging is exactly the same in coloring and all. It's just that the gluten free ones say gluten free on them.

Good luck!

Ray

Macbre Explorer
Macbre
Posted

It's really starting to hit me I will never be allowed to have certain things. Going out with my friends is no longer fun I dont like wine or beer and can never find potato vodka at restaurants office parties are always terrible and there are never foods I can eat. I can't have my fried Mac and cheese from cheesecake anymore. This is very depressing I feel left out from the world and no seems to care. I also just found that I have a heart condition and must limit my salt which is what makes most gluten free processed foods tolerable. Any ideas so I can get myself out of this funk?

I know how you feel....it is hard adjusting to the fact that others can eat anything they want and you have to read a label before you even think about touching it. It does become depressing. My husband does most of the cooking in our home...and granted he has been wonderful....but I do get upset when he wants to try something new and he finds out I can't have it then I feel so guilty. I did find one "chocolate pleasure" I can still have.....Cheescake Factory Godiva Chocolate Cheesecake. I always ask them to cut me a piece with a clean knife and I usually have them cut if from a fresh cake....so far so good and I am very sensitive. Hopefully you have a Cheesecake Factory in your area and can try it for yourself.

Hang in there....it does get easier to deal with. I think it takes a couple of times of getting really, really sick and then you don't really care what others eat because you see it as poison!

Just out of curiosity....what are your heart problems? The reason I ask is because I have heart related issues that seem to get worse when I'm glutened. I haven't found too many people with the same problems.

DonnaMM Explorer
DonnaMM
Posted
  • Author

I LOVE cheesecake factory an you made my day telling me their Godiva chocolate cheesecake is gluten free. Oh and the doctors tend to think my heart problems are related to chemotherapy I have a low ejection fraction and VERY high heart rate, I believe my stress with eating gluten and the pain I experience has only done more stress and made it worse

Bella001 Explorer
Bella001
Posted

It's really starting to hit me I will never be allowed to have certain things. Going out with my friends is no longer fun I dont like wine or beer and can never find potato vodka at restaurants office parties are always terrible and there are never foods I can eat. I can't have my fried Mac and cheese from cheesecake anymore. This is very depressing I feel left out from the world and no seems to care. I also just found that I have a heart condition and must limit my salt which is what makes most gluten free processed foods tolerable. Any ideas so I can get myself out of this funk?

I know how you feel. The holidays make this very hard also. Everybody tries to cook me gluten free and I don't want to eat it. We all know first hand how many hazards are lurking around every corner. I would love to go out to eat and not have a panic attack doing it. I've been gluten free for almost two years and I feel so much better physically, but I feel like I miss out or get labeled as the weird o. I had a friend tell me to just forget about it for a day and eat it....if she only knew how sick I get and how much pain I'm in when it happens by mistake! Then I have the occasional person tell me that's why I'm small, I'm a picky eater. I've gained 6 lbs off gluten. I agree, it sucks. Don't think we have a choice, so guess it is what it is.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,337
    • Most Online (within 30 mins)
      7,748
    Susan1001
    Newest Member
    Susan1001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.