Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Immediate Reaction?


samuella

Recommended Posts

samuella Apprentice

Is it possible to have an immediate reaction to gluten as a celiac, not an allergy? As in, you are eating something and feeling it right then?

Tonight I was at a friend's house and she had bought gluten-free cookies for me - very sweet of her. The package said gluten-free, the ingredients looked fine, but I didn't recognise the brand. It was an unopened box. But as I was eating it I started feeling really, really weird - a bit faint, my face felt heavy, my head felt foggy. It went away after a few minutes. I'm now (about four hours later) having some digestive disturbances, but that could be a coincidence. I've never been glutened so I don't know how I react.

Could I have been glutened? Or was it just a weird fluke?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

I have read that it is not possible for you to feel it immediately because it takes a little for the immune response, the paed GI also said the same thing the other day, but I also know from this site that there are lots that don't match up with what the medical community say and believe. So maybe they are wrong on this too? I personally have reactions start around 2-3 hours after eating.

T.H. Community Regular

It's possible to have a fairly quick reaction, yeah. However, if this is a new reaction for you, I would write down what the ingredients you were eating and pay attention for the future, just in case it's a new allergy. A couple of my allergies (which I didn't know about until after going gluten-free) make me react similar to what you describe. These also tend to cause internal inflammation and gastro disturbances in many people.

For myself, I reacting to gluten within 20 minutes, and if it's bad, it happens in 1-2 minutes after eating. However, I believe that my own early reaction is gluten ataxia. I know of a little girl who reacts within minutes as well, although here reactions are gastro related. It just all comes back up or goes through her as soon as it hits her tummy.

kwylee Apprentice

I react with the wierd lightheaded feeling within 5 to 10 minutes of ingesting gluten, dairy or soy. It subsides within 30 minutes to an hour. All neuro, I've not had much intestinal disturbance, perhaps because I always test new foods by eating a few bites and waiting. Or perhaps because gluten doesn't affect me that way.

bigbird16 Apprentice

I get a pretty quick reaction -- under 10 minutes, starting with a hazy feeling and ataxia and moving on to other fun stuff.

samuella Apprentice

Thanks everyone. I feel fine today and I looked up the brand of the cookies and they seem to be well regarded, so I think it was probably just a fluke. It sounds like quick reactions can happen but not *so* quick I'd feel it while eating it, and the dodgy guts a few hours later was probably just a coincidence. It's so easy to see celiac/gluten in everything that happens! :)

lovesaceliac Newbie

My husband can usually tell within minutes of eating the offending food (always cross contamination only, he never intentionally eats gluten and we are very careful.) His first symptom is "brain fog" which goes away after a while. His worst symptoms appear the next day: severe joint pain, extreme fatigue (usally spends an entire day asleep in bed), followed by crushing depression/anger. Not real fun to live through or live with.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lemontree1 Rookie

Is it possible to have an immediate reaction to gluten as a celiac, not an allergy? As in, you are eating something and feeling it right then?

Tonight I was at a friend's house and she had bought gluten-free cookies for me - very sweet of her. The package said gluten-free, the ingredients looked fine, but I didn't recognise the brand. It was an unopened box. But as I was eating it I started feeling really, really weird - a bit faint, my face felt heavy, my head felt foggy. It went away after a few minutes. I'm now (about four hours later) having some digestive disturbances, but that could be a coincidence. I've never been glutened so I don't know how I react.

Could I have been glutened? Or was it just a weird fluke?

Thanks!

There has been a time or two that I felt exactly like this while eating something.

Korwyn Explorer

I have reactions while I'm in the middle of eating something. The first time this happened I was about 1/3 of the way through a bowl of chili, and I noticed both my ankles and knees were aching and hurting. I didn't make the connection at that time, so I finished the bowl. By the time we were done with lunch I felt like I had the flu in all my joints and I could barely think my brain was so fogged.

Leper Messiah Apprentice

Initial reaction with brain fog, feeling spacey etc. This lasts max 24 hours then brief respite for a day or so before the fatigue sets in and doesn't leave me for 2 weeks, almost exactly to the day.

aeraen Apprentice

Within the hour for me, sometimes closer to 15 minutes. Mad dash to the bathroom. :o

My niece was diagnosed as an infant, and she throws up within 5 minutes. My SIL considered it an easy way to train babysitters who thought "One little cracker won't hurt."

TB4me2000 Newbie

If it's gluten, I know in about 20 minutes. Something that just doesn't sit well in my sensitive, healing stomach/intestines usually takes a few hours for me to realize something's not quite right.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    jan ohlson
    Newest Member
    jan ohlson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.