Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colitis

dressagegal1986

Recommended Posts

dressagegal1986 Rookie
dressagegal1986
Posted

6 months ago I got really sick with what I thought was a virus.After nine days with no food and being so sick and in pain with abdominal bloating sharp pains and what fealt like swelling I went to the hospital where they did an endoscopy and saw inflamation of my stomache. They lost my tissue sample during this test and said it was no big deal. I had a ct scan a ultra sound blood and fecal tests and a hida scan. This showed inflamation of my gallbladder and said it was working at a 17 percent ejection rate. During this time All i was eating was white bread crackers saltines bananas and cheerios. I then had my gallbladder removed hoping this was the culprit. After with no relief I went back to my gi and he said there was nothing more he could do for me and then refered me to loma linda where they ran another endoscopy. This came back on sept 13th national celiac awareness day as possitve for celiacs. I went completely gluten free. Or well here is what I was eating. Gluten free waffles. bananas chicken soup potatos that make me really sick and white rice.. I was feeling a little better but we went ahead and did a smart pill test which is like the gastric emtying study because of how bad the burning was. This came back normal but with slow movement through the colon. Two weeks ago I started getting really loose stools in the morning which turned into Diarhea. By last sunday the pain in my lower abdomin was so bad i was almost passing out. It fealt like last may all over. I started having blood come out of me. I went to the hospital where they did a colonoscopy and found colitis. They prescribed me some anti inflamatories to help keep the inflamation down. Im still really sick and in pain anything I try to eat even just chicken broth or bananas is killing my stomache. it hurts even if i dont eat. Im really discouraged is the celiacs causing this did i get glutened could it be from soy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lavender Rose Newbie
Lavender Rose
Posted

6 months ago I got really sick with what I thought was a virus.After nine days with no food and being so sick and in pain with abdominal bloating sharp pains and what fealt like swelling I went to the hospital where they did an endoscopy and saw inflamation of my stomache. They lost my tissue sample during this test and said it was no big deal. I had a ct scan a ultra sound blood and fecal tests and a hida scan. This showed inflamation of my gallbladder and said it was working at a 17 percent ejection rate. During this time All i was eating was white bread crackers saltines bananas and cheerios. I then had my gallbladder removed hoping this was the culprit. After with no relief I went back to my gi and he said there was nothing more he could do for me and then refered me to loma linda where they ran another endoscopy. This came back on sept 13th national celiac awareness day as possitve for celiacs. I went completely gluten free. Or well here is what I was eating. Gluten free waffles. bananas chicken soup potatos that make me really sick and white rice.. I was feeling a little better but we went ahead and did a smart pill test which is like the gastric emtying study because of how bad the burning was. This came back normal but with slow movement through the colon. Two weeks ago I started getting really loose stools in the morning which turned into Diarhea. By last sunday the pain in my lower abdomin was so bad i was almost passing out. It fealt like last may all over. I started having blood come out of me. I went to the hospital where they did a colonoscopy and found colitis. They prescribed me some anti inflamatories to help keep the inflamation down. Im still really sick and in pain anything I try to eat even just chicken broth or bananas is killing my stomache. it hurts even if i dont eat. Im really discouraged is the celiacs causing this did i get glutened could it be from soy?

Because of leaky gut syndrome, a lot of us have additional food sensitivities. I can't eat gluten, dairy products, or genetically-modified corn or corn derivatives.

From what you're describing, it sounds like you're reacting to corn.

Canned chicken broth often contains corn syrup (and most of them are not gluten free). Chickens themselves can be washed or dipped in corn-based cleaning solutions or dips. Bananas are gassed with corn-based gas to help them ripen. Potatoes are sprayed with a corn-based spray to keep them from sprouting. White rice is enriched with corn-based vitamins. I don't eat very many processed foods, so I don't know about the waffles, but many gluten free flour mixtures contain corn starch.

Google "corn avoidance" and you'll find a ton of info. The Gluten Free Society is another good place to look for info. Most of their patients react to all types of grains, not just gluten.

Vickie

dressagegal1986 Rookie
dressagegal1986
Posted
  • Author

Because of leaky gut syndrome, a lot of us have additional food sensitivities. I can't eat gluten, dairy products, or genetically-modified corn or corn derivatives.

From what you're describing, it sounds like you're reacting to corn.

Canned chicken broth often contains corn syrup (and most of them are not gluten free). Chickens themselves can be washed or dipped in corn-based cleaning solutions or dips. Bananas are gassed with corn-based gas to help them ripen. Potatoes are sprayed with a corn-based spray to keep them from sprouting. White rice is enriched with corn-based vitamins. I don't eat very many processed foods, so I don't know about the waffles, but many gluten free flour mixtures contain corn starch.

Google "corn avoidance" and you'll find a ton of info. The Gluten Free Society is another good place to look for info. Most of their patients react to all types of grains, not just gluten.

Vickie

Do they use corn on organic bananas and chicken? Do you have any suggestions on what to eat I feel like I litterally can't eat anything. The doctors know less than I do

Luddie Newbie
Luddie
Posted

I went completely gluten free. Or well here is what I was eating. Gluten free waffles. bananas chicken soup potatos that make me really sick and white rice.. I was feeling a little better but we went ahead and did a smart pill test which is like the gastric emtying study because of how bad the burning was.

**************

Luddie's thoughts:

I can't eat any grains, including rice. Also, bananas are pretty high in latex which can cause a reaction in some folks. Keep trying. It's very hard to figure it all out, but document everything. Life is no longer about "simple" eating. You must try to correlate everything. Make a chart that matches what you're wanting to keep track of and then remember to fill it in as you go through your day. That helps immensely when you do go to a doctor who knows about all this (which I'm lucky enough to have). Good luck. I'm 78 and its going to take me a long time to heal. You "youngins" heal much faster!

cyberprof Enthusiast
cyberprof
Posted

6 months ago I got really sick with what I thought was a virus.After nine days with no food and being so sick and in pain with abdominal bloating sharp pains and what fealt like swelling I went to the hospital where they did an endoscopy and saw inflamation of my stomache. They lost my tissue sample during this test and said it was no big deal. I had a ct scan a ultra sound blood and fecal tests and a hida scan. This showed inflamation of my gallbladder and said it was working at a 17 percent ejection rate. During this time All i was eating was white bread crackers saltines bananas and cheerios. I then had my gallbladder removed hoping this was the culprit. After with no relief I went back to my gi and he said there was nothing more he could do for me and then refered me to loma linda where they ran another endoscopy. This came back on sept 13th national celiac awareness day as possitve for celiacs. I went completely gluten free. Or well here is what I was eating. Gluten free waffles. bananas chicken soup potatos that make me really sick and white rice.. I was feeling a little better but we went ahead and did a smart pill test which is like the gastric emtying study because of how bad the burning was. This came back normal but with slow movement through the colon. Two weeks ago I started getting really loose stools in the morning which turned into Diarhea. By last sunday the pain in my lower abdomin was so bad i was almost passing out. It fealt like last may all over. I started having blood come out of me. I went to the hospital where they did a colonoscopy and found colitis. They prescribed me some anti inflamatories to help keep the inflamation down. Im still really sick and in pain anything I try to eat even just chicken broth or bananas is killing my stomache. it hurts even if i dont eat. Im really discouraged is the celiacs causing this did i get glutened could it be from soy?

Many of the folks I know with colitis have celiac too. I think (and hope) that you'll be able to get it under control.

Try a whole-foods diet: Eat white rice (plain maybe some salt or olive oil if you can't stand it), chicken or turkey (get plain, raw chicken and cook it plain), green beans, cooked pears. Eat just these things for a few days - breakfast, lunch, dinner. Then slowly add in other things all homemade (not corn, soy, dairy, nuts, beans, peas, legumes, nightshades like potatoes, tomoatoes, eggplant, bell peppers, chilis, eggs) like cooked zuchini and other squashes, brown rice, cooked spinach, sweet potatoes, applesauce, carrots, steak, hamburger. If that is ok, then you could try one of the main allergins like eggs or dairy - or not, if your symptoms aren't fully under control.

Good luck to you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748
    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.