Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dry Mouth A Symptom Of Celiac?

Silencio

Recommended Posts

Silencio Enthusiast
Silencio
Posted

I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

I haven't heard of it myself, but it can be a sign of other things. I think you should see your Dr.

Lisa Mentor
Lisa
Posted

Absolutely! If I recall (the percentage), you absorb 75% of your fluid intake in your small intestines. If your intestines are damaged due to Celiac, you're not getting adequate hydration.

Listen to your body and drink as much as it asks for. ;)

Meatballman Rookie
Meatballman
Posted

Not sure but I get it too.Dry eyes as well.

Skylark Collaborator
Skylark
Posted

Dry mouth and eyes can be an autoimmune disorder called Sj

Meatballman Rookie
Meatballman
Posted

Dry mouth and eyes can be an autoimmune disorder called Sj

Olivegirl Newbie
Olivegirl
Posted

I used to get dry mouth periodically before I was diagnosed with coeliac disease. I don't think it's anything to worry about (assuming coeliac is the cause). My doctor recommended a gel for my mouth which performs almost the same function as a moisturiser for your skin. It worked to some extent. I'm in Australia - so I don't know how available the gel is in the US - but I just bought it over the counter here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

Yes - exactly skylark. There is a correlation between SJogren's and Coeliac, if you are getting things like dry eyes and dry mouth you should see your Dr.

Silencio Enthusiast
Silencio
Posted
  • Author

Well im going to talk to a GI on the 23rd so I will see what she has to say about it. I went through so many blood tests in the past few weeks. Im sure if it was anything serious they would have found it in the tests? Also my doc didnt say anything at all about my vitamin levels. Should I just assume there fine?

beebs Enthusiast
beebs
Posted

They have to do specific tests to check for autoimmune disease and I guarantee you they wouldn't do them unless there was a reason for it. Anyhow - ask your GI and see what he/she says.

Silencio Enthusiast
Silencio
Posted
  • Author

I didnt know that. I just figured they would check for everything when I went for my physical. Thanks beebs.

Gemini Experienced
Gemini
Posted

I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

If your mouth and/or eyes are dry enough that you are noticing it, then there is a strong possibility that you may have Sjogren's Syndrome. I have Sjogren's and there isn't much you can do for it except keep yourself hydrated, chew gum to encourage saliva production and use Biotene mouthwash, which is made specifically for those with extreme dry mouth. There is blood work which can be done to test for it and those would be the SS-A and SS-B antibody tests. However, it's like Celiac. You can have a raging case of Sjogren's and not pop positive on your blood work.

I had all the symptoms and knew I had it but never bothered to go to a doctor about it because their track record with autoimmune disease is poor. If your blood work is negative, then they move towards a biopsy of a salivary gland. No way was I going to let them do that, especially when I was so blatantly symptomatic for Sjogren's. My doctor insisted on blood work, which I let her do but told her I knew had it, so this was just to make her happy. My antibody levels were sky high.

Along with Celiac testing, they insist on multiple tests for diagnosis for Sjogren's. Do diabetics have to go through multiple tests just to get a diagnosis? As you can see, I have little patience with the medical profession! ;) Other symptoms of Sjogren's are a fissured tongue (from being so dry) and my favorite, the bread test. I cannot swallow a bite of bread without water or liquids or I will choke. That's how deprived of saliva I am. If you have this issue also, you probably have it. Then there is the dry eye....very fun!

You may want to ask about the blood work as that's pretty easy testing but a negative test does not rule out Sjogren's. Good luck to you!

Silencio Enthusiast
Silencio
Posted
  • Author

Thanks for the detailed post Gemini. My eyes dont get dry at all. My mouth is fine during the day when I can get water in. I havent ate bread since I was diagnosed with Celiac a few weeks ago but I dont think I would have that much of a problem. I tried Biotene, didnt help at all. I will see what the GI has to say then maybe go in for testing to see whats up. I really dont mind all the doctors as much as you, I live pretty close so thats a good thing.

beebs Enthusiast
beebs
Posted

See - I don't have dry eyes- or what I mean is, I don't feel like I have dry eyes, they don't feel gritty or annoying or anything. But I had the shirmer's test and scored 0-0 which means I produce no tears when there is a foreign thing in them (dry as you can get) - we don't have the salivary gland test in Oz - and my bloods are negative. At this stage I am undiagnosed but have something of the connective tissue autoimmune stuff going on. As Gemini said - Autoimmune diag can be a royal pain. Although I do think that you should still seek a diag if possible. Sjogren's can cause other things, not just dryness. Anyhoo. bloody autoimmune diseases!

domesticactivist Collaborator
domesticactivist
Posted

I get a disguisting, coated, dry mouth from eating cheese. It usually shows up when I am asleep and is terrible for a few days if I eat cheese. It's better when I eat or drink, but comes right back a bit after I'm done. I also get BO and dandruff along with the bad breath and dry mouth. Does this sound like what you get?

beebs Enthusiast
beebs
Posted

Hey domesticactivist = that sounds like hairy tongue? Do you think it could be that? I get it when I'm on antibiotics and it throws of my gut flora - so gross!!

domesticactivist Collaborator
domesticactivist
Posted

I don't think it's hairy tongue. My whole mouth gets coated and is dry and sticky and stinky. In fact all of me gets stinky! It was chance that we figured out the connection. I'm very curious about what component of cheese is the problem. I can eat yogurt!

Reba32 Rookie
Reba32
Posted

a GI doctor is unlikely to know what Sjogren's is, let alone know what tests to do for it. It is not a disease that turns up in your gut, it's a rheumatic auto-immune disease. Make an appointment with your GP and/or get a referral to a rheumatologist.

Silencio Enthusiast
Silencio
Posted
  • Author

Yeah the GI I talked to yesterday said its probably nothing, she said to not even bother seeing a family doctor about it. I would like to deal with it though since its bothering me so much and I know it does mess teeth up when gums are so dry through the night. Dosent it?

Should I just go to a family doctor and ask to be checked for Sjogren's, or how do I go about this?

Skylark Collaborator
Skylark
Posted

Start with the family doctor. The specialist who will really be familiar with Sjogren's testing is a rheumatologist so you may need to ask for a referral. (Or go directly to a rheumy if your insurance allows.)

Reba32 Rookie
Reba32
Posted

yes, if you have Sjogren's it can negatively affect your teeth and gums.

beebs Enthusiast
beebs
Posted

yes- badly affect your teeth and gums if its sjogren's. Hope that it isn't!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.