Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dry Mouth A Symptom Of Celiac?

Silencio

Recommended Posts

Silencio Enthusiast
Silencio
Posted

I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

I haven't heard of it myself, but it can be a sign of other things. I think you should see your Dr.

Lisa Mentor
Lisa
Posted

Absolutely! If I recall (the percentage), you absorb 75% of your fluid intake in your small intestines. If your intestines are damaged due to Celiac, you're not getting adequate hydration.

Listen to your body and drink as much as it asks for. ;)

Meatballman Rookie
Meatballman
Posted

Not sure but I get it too.Dry eyes as well.

Skylark Collaborator
Skylark
Posted

Dry mouth and eyes can be an autoimmune disorder called Sj

Meatballman Rookie
Meatballman
Posted

Dry mouth and eyes can be an autoimmune disorder called Sj

Olivegirl Newbie
Olivegirl
Posted

I used to get dry mouth periodically before I was diagnosed with coeliac disease. I don't think it's anything to worry about (assuming coeliac is the cause). My doctor recommended a gel for my mouth which performs almost the same function as a moisturiser for your skin. It worked to some extent. I'm in Australia - so I don't know how available the gel is in the US - but I just bought it over the counter here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

Yes - exactly skylark. There is a correlation between SJogren's and Coeliac, if you are getting things like dry eyes and dry mouth you should see your Dr.

Silencio Enthusiast
Silencio
Posted
  • Author

Well im going to talk to a GI on the 23rd so I will see what she has to say about it. I went through so many blood tests in the past few weeks. Im sure if it was anything serious they would have found it in the tests? Also my doc didnt say anything at all about my vitamin levels. Should I just assume there fine?

beebs Enthusiast
beebs
Posted

They have to do specific tests to check for autoimmune disease and I guarantee you they wouldn't do them unless there was a reason for it. Anyhow - ask your GI and see what he/she says.

Silencio Enthusiast
Silencio
Posted
  • Author

I didnt know that. I just figured they would check for everything when I went for my physical. Thanks beebs.

Gemini Experienced
Gemini
Posted

I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

If your mouth and/or eyes are dry enough that you are noticing it, then there is a strong possibility that you may have Sjogren's Syndrome. I have Sjogren's and there isn't much you can do for it except keep yourself hydrated, chew gum to encourage saliva production and use Biotene mouthwash, which is made specifically for those with extreme dry mouth. There is blood work which can be done to test for it and those would be the SS-A and SS-B antibody tests. However, it's like Celiac. You can have a raging case of Sjogren's and not pop positive on your blood work.

I had all the symptoms and knew I had it but never bothered to go to a doctor about it because their track record with autoimmune disease is poor. If your blood work is negative, then they move towards a biopsy of a salivary gland. No way was I going to let them do that, especially when I was so blatantly symptomatic for Sjogren's. My doctor insisted on blood work, which I let her do but told her I knew had it, so this was just to make her happy. My antibody levels were sky high.

Along with Celiac testing, they insist on multiple tests for diagnosis for Sjogren's. Do diabetics have to go through multiple tests just to get a diagnosis? As you can see, I have little patience with the medical profession! ;) Other symptoms of Sjogren's are a fissured tongue (from being so dry) and my favorite, the bread test. I cannot swallow a bite of bread without water or liquids or I will choke. That's how deprived of saliva I am. If you have this issue also, you probably have it. Then there is the dry eye....very fun!

You may want to ask about the blood work as that's pretty easy testing but a negative test does not rule out Sjogren's. Good luck to you!

Silencio Enthusiast
Silencio
Posted
  • Author

Thanks for the detailed post Gemini. My eyes dont get dry at all. My mouth is fine during the day when I can get water in. I havent ate bread since I was diagnosed with Celiac a few weeks ago but I dont think I would have that much of a problem. I tried Biotene, didnt help at all. I will see what the GI has to say then maybe go in for testing to see whats up. I really dont mind all the doctors as much as you, I live pretty close so thats a good thing.

beebs Enthusiast
beebs
Posted

See - I don't have dry eyes- or what I mean is, I don't feel like I have dry eyes, they don't feel gritty or annoying or anything. But I had the shirmer's test and scored 0-0 which means I produce no tears when there is a foreign thing in them (dry as you can get) - we don't have the salivary gland test in Oz - and my bloods are negative. At this stage I am undiagnosed but have something of the connective tissue autoimmune stuff going on. As Gemini said - Autoimmune diag can be a royal pain. Although I do think that you should still seek a diag if possible. Sjogren's can cause other things, not just dryness. Anyhoo. bloody autoimmune diseases!

domesticactivist Collaborator
domesticactivist
Posted

I get a disguisting, coated, dry mouth from eating cheese. It usually shows up when I am asleep and is terrible for a few days if I eat cheese. It's better when I eat or drink, but comes right back a bit after I'm done. I also get BO and dandruff along with the bad breath and dry mouth. Does this sound like what you get?

beebs Enthusiast
beebs
Posted

Hey domesticactivist = that sounds like hairy tongue? Do you think it could be that? I get it when I'm on antibiotics and it throws of my gut flora - so gross!!

domesticactivist Collaborator
domesticactivist
Posted

I don't think it's hairy tongue. My whole mouth gets coated and is dry and sticky and stinky. In fact all of me gets stinky! It was chance that we figured out the connection. I'm very curious about what component of cheese is the problem. I can eat yogurt!

Reba32 Rookie
Reba32
Posted

a GI doctor is unlikely to know what Sjogren's is, let alone know what tests to do for it. It is not a disease that turns up in your gut, it's a rheumatic auto-immune disease. Make an appointment with your GP and/or get a referral to a rheumatologist.

Silencio Enthusiast
Silencio
Posted
  • Author

Yeah the GI I talked to yesterday said its probably nothing, she said to not even bother seeing a family doctor about it. I would like to deal with it though since its bothering me so much and I know it does mess teeth up when gums are so dry through the night. Dosent it?

Should I just go to a family doctor and ask to be checked for Sjogren's, or how do I go about this?

Skylark Collaborator
Skylark
Posted

Start with the family doctor. The specialist who will really be familiar with Sjogren's testing is a rheumatologist so you may need to ask for a referral. (Or go directly to a rheumy if your insurance allows.)

Reba32 Rookie
Reba32
Posted

yes, if you have Sjogren's it can negatively affect your teeth and gums.

beebs Enthusiast
beebs
Posted

yes- badly affect your teeth and gums if its sjogren's. Hope that it isn't!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748
    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.