Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joints, Muscle Pain, Arthritis, Nerve Pain


AVR1962

Recommended Posts

AVR1962 Collaborator

Ran across this and wanted to share, very good info!Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Yes, this is an excellent, informative piece! This is the one of the articles that helped me heal my tendons. Manganese is so important for many things, and, yet, nobody ever discusses it.

Thanks for the info--I'm sure many people will find this information useful. You might want to go back into your post, though, and edit the link ("info" needs to be deleted at the beginning of the link).

IrishHeart Veteran

Yes, this is an excellent, informative piece! This is the one of the articles that helped me heal my tendons. Manganese is so important for many things, and, yet, nobody ever discusses it.

Thanks for the info--I'm sure many people will find this information useful. You might want to go back into your post, though, and edit the link ("info" needs to be deleted at the beginning of the link).

RoseT, my friend :) Among my many supps :rolleyes: , I take curaphen and a really good bone formula with MSM, cal/mag/D , glucosamine, etc... AND manganese and boron is in it as well.

How much--in your opinion-- is enough of these last two? Do I need to add more? Thanks, hon!

rosetapper23 Explorer

IrishHeart,

I love your use of Emoticons--how do you place them in your posts? (Yes, I'm technologically challenged!)

Regarding manganese, I take 10 mg of chelated manganese daily, but I don't know if that's a perfect dose or not. Doctors don't seem to know much about it. As for boron, I know I should probably take it, but I'm taking sooooo many supplements already. I recently saw an ad for an interesting new bone supplement (provides collagen, too) that is produced by the same company that makes BioSil, and, depending on the cost, I'm thinking of adding that to the heaps of supplements I already take.

I sure wish this were more of an exact science....

IrishHeart Veteran

IrishHeart,

I love your use of Emoticons--how do you place them in your posts? (Yes, I'm technologically challenged!)

Regarding manganese, I take 10 mg of chelated manganese daily, but I don't know if that's a perfect dose or not. Doctors don't seem to know much about it. As for boron, I know I should probably take it, but I'm taking sooooo many supplements already. I recently saw an ad for an interesting new bone supplement (provides collagen, too) that is produced by the same company that makes BioSil, and, depending on the cost, I'm thinking of adding that to the heaps of supplements I already take.

I sure wish this were more of an exact science....

When you hit reply, the little box of emoticons should be on the right of the box you are typing in? Ok, move your cursor over and click on the one you want ...okay watch me now, ready, moving my cursor over and click :) see, there it is! :lol: :lol: :lol:

There is no exact science because no one studies the impact of celiac on the muscles, joint, bones, tendons and tissues and therefore, cannot help us. There is no such thing as a "muscle doctor". Dr. Travell and Dr. Simon, who wrote the groundbreaking book on Myofascial Pain and Trigger Points said "Muscles are the orphan organ. No one studies them." :(

My new GI-- a very celiac-savvy dude-- asks ME what I am doing supplements-wise. :rolleyes: The only thing he suggested (once my Folate, B-12 and D deficiencies were corrected) was a good multivitamin. He said not to "over supp" as they will not absorb properly in guts like ours and will circulate in the body and cause toxicity. Not all of it is expelled. He also suspects gluten in supplements and meds is what keeps many celiacs from healing fully. (He's probably right).

We are winging it ourselves--those of us with osteoarthritis because dosing with prescription NSAIDs is the WORST thing we can do for the gut. I took all that crap before the celiac triggered in me and they never did a darn thing. I read everything I can about supplementing and "healing a leaky gut" with supplements, yet some people's theories are just that--theories. One thing I have read much about--that makes sense-- is N-A-G.( N-acetylglucosamine ) and I am using it in conjunction with a bone strengthening supplement and pray for it all to "kick in" as my intestines absorb more effectively. It has been written about in Pub Med articles as being effective for treating various inflammatory bowel diseases.

Let's face it. If we have been long unDXed -- our joints, bones, muscles, tendons, ligaments and tissues have been starved. I asked my doc about secondary hypocalcemia, hypoparathyroidism, osteomalacia and cachexia in celiac. I asked "Is this what happened to me? Because I lost MAJOR muscle mass and my entire body HURTS. I have no muscle tone

whatsoever. This is not "fibromaylgia" as I was told back in 2004 by a doctor who saw me for 5 minutes. :angry: That is BS.Did the prolonged malabsorption cause my loss of muscle mass and this severe bone pain? This burning nerve pain? Does the body leech calcium like that?"

He said quietly, "YES. Look, if the body is not getting the nutrients it needs or if there is not enough available calcium, the body will leech it right from the bones. Gluten toxicity affects every muscle, tissue, and tendon. "

Dr. Green's book states it affects the heart muscles as well.

In time, as the gut lining heals, that stops. (so the thinking goes :rolleyes: ) Fingers crossed!

No wonder we HURT so much. :(

AVR1962 Collaborator

Guess I need to reread my post, my eyes read magnesium. So what is manganese, and did you find it helped?

IrishHeart Veteran

Guess I need to reread my post, my eyes read magnesium. So what is manganese, and did you find it helped?

manganese explained and what a deficiency of it will cause:

Open Original Shared Link

I hope it will help me! Some of the best food sources are in brown rice, turmeric, green leafies like mustard greens and spinach, etc. But the article will tell you more.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

manganese explained and what a deficiency of it will cause:

Open Original Shared Link

I hope it will help me! Some of the best food sources are in brown rice, turmeric, green leafies like mustard greens and spinach, etc. But the article will tell you more.

Thanks IrishHeart, read the link, soundslike some really good stuff. Think I will have to give it and the borron a try.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,774
    • Most Online (within 30 mins)
      7,748

    Beth Garrison
    Newest Member
    Beth Garrison
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.