Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Auto Immune Diseases

bbdailey

By bbdailey
in Related Issues & Disorders

Recommended Posts

bbdailey Explorer
bbdailey
Posted

Hey everyone I have been diagnosed with Hashimotos and suspect that I have Celiac as well. I was diagnosed with Hashis just with positive antibodys alone(APO-250_. My thyroid function is normal and I have read that just the presence of antibodies doesnt neccessarily mean Hashimotos. So my question is this: Could it be Celiac disease that caused the antibodies in the thyroid? Also what other autoimmune diseases could cause antibodies in the thyroid that I should be aware of?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

Well, although I'm not an expert on autoimmune diseases, I think you're justified in suspecting Celiac. Other autoimmune conditions do often accompany Celiac, Hashimoto's being one of them. I think rheumatoid arthritis is another. But I'm not aware of any specific connection between other conditions and Hashimoto's or thyroid antibodies. Not that there isn't any, I simply haven't researched it, nor has such info turned up in any of the research I've done.

Perhaps a few Internet searches for the specific antibody will turn up references to the conditions which are known to cause it.

HTH

Korwyn Explorer
Korwyn
Posted

The book Recognizing Celiac Disease and Associated Complications is an excellent resource. There are over 300 associated disorders, diseases, and conditions that have been definitely or tentatively linked to celiac disease.

pricklypear1971 Community Regular
pricklypear1971
Posted

The new train of thought is Hashis is caused by gluten intolerance....

twe0708 Community Regular
twe0708
Posted

Hey everyone I have been diagnosed with Hashimotos and suspect that I have Celiac as well. I was diagnosed with Hashis just with positive antibodys alone(APO-250_. My thyroid function is normal and I have read that just the presence of antibodies doesnt neccessarily mean Hashimotos. So my question is this: Could it be Celiac disease that caused the antibodies in the thyroid? Also what other autoimmune diseases could cause antibodies in the thyroid that I should be aware of?

I had an overactive thyroid from ages 11 to about 14 and my body corrected itself on it's own. Now I have Celiac. Both my girls have thyroid problems, so I hope they don't get dx with Celiac down the road.

twe0708 Community Regular
twe0708
Posted

Hey everyone I have been diagnosed with Hashimotos and suspect that I have Celiac as well. I was diagnosed with Hashis just with positive antibodys alone(APO-250_. My thyroid function is normal and I have read that just the presence of antibodies doesnt neccessarily mean Hashimotos. So my question is this: Could it be Celiac disease that caused the antibodies in the thyroid? Also what other autoimmune diseases could cause antibodies in the thyroid that I should be aware of?

Do you mind if I ask if they put you on thyroid medicine? There are new levels out there for TSH levels that doctors aren't following, and if my doctor was to go by the new levels I would be considered as having an underactive (Hypo) thyroid. My results came back just over 3 so they aren't too high.

This is what I found:

This understanding led to the recommendation in January 2003, by the American Association of Clinical Endocrinologists, that doctors "consider treatment for patients who test outside the boundaries of a narrower margin based on a target TSH level of 0.3 to 3.0."

Reba32 Rookie
Reba32
Posted

both Hashimoto's and Celiac are auto-immune diseases. Once a person has one auto-immune, it is possible to develop more, and whether they are traditionally though to be "linked" is anybody's best guess. There are hundreds of them, to list them here would take up a few posts!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


twe0708 Community Regular
twe0708
Posted

both Hashimoto's and Celiac are auto-immune diseases. Once a person has one auto-immune, it is possible to develop more, and whether they are traditionally though to be "linked" is anybody's best guess. There are hundreds of them, to list them here would take up a few posts!

Does Hashimoto's make your neck to look thick?

GFinDC Veteran
GFinDC
Posted

Does Hashimoto's make your neck to look thick?

Hasimoto's can make your neck appear thick. The antibodies attack the thyroid and that can cause swelling of the thyroid gland.

bbdailey Explorer
bbdailey
Posted
  • Author

Twe0708 I was on thyroid medication a couple times. I was on it in july-aug and started to feel better but I had also cut out dairy and soy at the same time. I ended up stopping because I suddenly became very depressed for some reason so I stopped. After not feeling great off of the medication for a month I got back on the thyroid medication(50mcg levothyroxine) Today I decided to stop the medication again because I havent felt any better and probably feel a bit worse(along with some unwanted side effects) Im hoping that I was starting to feel better the first time due to the diet kicking in. I say this because my thyroid levels are all "normal". TSH was about 2 and FT3 and FT4 are in the normal ranges. There is no swelling in my neck and I am only a 23 year old male. So hopefully sticking to a strict diet will get me back to normal...

TBelle Newbie
TBelle
Posted

Yeah if you have 1 Auto Immune they say you are likely to have 2 or 3 of them. My son has Dermatitis as well and my daughter has alopecia on top of the coeliac.

cahill Collaborator
cahill
Posted

Auto Immune Diseases ,what are common auto immune diseases to check for

This is a site that list celiac related diseases

Open Original Shared Link

beebs Enthusiast
beebs
Posted

The common ones are Diabetes type 1, hashis, sjogren's, RA, psoriasis, although having said that - it is possible to develop any of them really.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.