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Medication For Celiacs


silk

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silk Contributor

My daughter came home from school the other day and said there was a girl who also has Celiac who says she takes a pill when she plans to eat gluten the prevents her from having problems afterwards.

I explained to my daughter that while that sounded like a wonderful option, just because she was not having symptoms did not mean she was not still doing damage to her health and her small intestine.

Has anyone else heard of this? I asked her to ask the girl what it is that she is taking but she has not see her again to do so.


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RiceGuy Collaborator

There are some digestive enzyme products which are supposedly designed to target gluten, at least to some extent, so say the manufacturers. That's the only product I'm aware of. And your guess is correct. While it may reduce symptoms and/or the recovery time from a glutening, it doesn't prevent damage. I actually tried a couple different ones, and had a gluten-like reaction to at least one of them. Turns out that some companies include maltase (also called malt diastase), which is derived from barley!

So that poor girl is not doing herself any good if she's knowingly ingesting gluten. The enzyme products are only intended to assist in dealing with accidental exposure to gluten. I've read that an estimated 30% of Celiac sufferers have no noticeable symptoms, even though the damage is still being done internally.

Skylark Collaborator

None of the DPP-IV products on the market in the US work. They are making unsubstantiated claims under the supplement labeling act. Proper controlled studies show that the gluten is not broken down. There is one enzyme product sold in the UK that contains the barley enzyme Alvine is styduing in the US. It might be helpful but it would only work on tiny amounts of cross-contamination, not a meal full of gluten.

Poor kid. :(

Booghead Contributor

I have one, but I don't think it works at all. I take it for vitamins that are commonly deficent in Celiacs.

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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