Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat Allergy

Ginger Sturm

Recommended Posts

Ginger Sturm Newbie
Ginger Sturm
Posted

Hey,I havent really figured out how to use this blog so hopefully this works and I can get some responses! (:

I am 19 years old and have a high allergy to wheat. I know having a wheat allergy and having Celiac Disease are completely different things but I'm just wondering if anyone knows how long it takes to feel better from a wheat allergy?

I have been sick with stomach problems, nausea, and fatigue on and off for about 5 years now. I just found out 3 months ago that I have a high allergy to wheat and my Celiac blood test came back negative.

Soooo, I have been gluten free/wheat free for 3 months and not really seeing too much improvement. I'm just wondering how long I should give it? Just feeling kinda discouraged =/

(I also just found out that my deodorant that I have been wearing for the last 6 months has barley in it and I"m curious if stuff like that might be preventing me to feel better sooner?)

Thanks for listening!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Metoo Enthusiast
Metoo
Posted

I can tell you what I know.

I tested negative through a scratch test for wheat allergy, but through work I had a positive IgE to gluten. Which would be an allergy to gluten.

A positive IgE to gluten, can be indicative of both an allergy or celiac though...so they did a celiac test.

I had a negative Celiac blood test, which according to my doctor is so inaccurate its nearly useless. If they preformed the blood test on 100 people with Celiac, 30 of those people with Celiac would get a negative blood test. So basically he said having a negative blood test does NOT mean you don't have Celiac.

So I was supposed to log my food and wait for another appointment, but I went gluten free instead because I have had stomach pain for years.

Within 3 weeks I felt the best I have EVER felt, I finally felt what it was like to feel full again, and no pain.

If I were you...I would go gluten free now! I have not eliminated gluten/wheat from any of my body/face products yet, I am considering it though.

Did you test positive through a scratch test to wheat?

lemontree1 Rookie
lemontree1
Posted

You are probably still getting bits of wheat/gluten through contamination. Being highly allergic, I am betting you are also very sensitive. You have to look at the labels for everything, avoid oats as well because they are highly contaminated, don't buy anything from bins at bulk food stores, even check your spices. Then look at what you are using to prepare your food, if it has been used with wheat and has anyplace gluten can hide (scratches , pores, etc), don't use it. Flour in the air can get you, as well.

Going wheat/gluten free is not a simple thing and it is easy to make mistakes. If after everything, you still feel lousy, you should have your thyroid checked, and nutrient levels. I hope you get to feeling better!

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

I can tell you what I know.

I tested negative through a scratch test for wheat allergy, but through work I had a positive IgE to gluten. Which would be an allergy to gluten.

A positive IgE to gluten, can be indicative of both an allergy or celiac though...so they did a celiac test.

I had a negative Celiac blood test, which according to my doctor is so inaccurate its nearly useless. If they preformed the blood test on 100 people with Celiac, 30 of those people with Celiac would get a negative blood test. So basically he said having a negative blood test does NOT mean you don't have Celiac.

So I was supposed to log my food and wait for another appointment, but I went gluten free instead because I have had stomach pain for years.

Within 3 weeks I felt the best I have EVER felt, I finally felt what it was like to feel full again, and no pain.

If I were you...I would go gluten free now! I have not eliminated gluten/wheat from any of my body/face products yet, I am considering it though.

Did you test positive through a scratch test to wheat?

Ahh I wish I knew more about it! As far as I know I'm not getting any gluten or wheat whatsoever! I have already checked all shampoos and make up etc..

And the only testing I really got done was the blood test for celiac (which came back negative) and I got a blood test for a panel of allergies and wheat was the only allergy I had! My natualpathic doctor says it is high and she really doesnt think I have Celiac.

Some of my symptoms have improved slightlyyyy but I feel like I'm just stuck in this rut. I'm just nauseus and tired all the time so I dont even really go out anymore

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

You are probably still getting bits of wheat/gluten through contamination. Being highly allergic, I am betting you are also very sensitive. You have to look at the labels for everything, avoid oats as well because they are highly contaminated, don't buy anything from bins at bulk food stores, even check your spices. Then look at what you are using to prepare your food, if it has been used with wheat and has anyplace gluten can hide (scratches , pores, etc), don't use it. Flour in the air can get you, as well.

Going wheat/gluten free is not a simple thing and it is easy to make mistakes. If after everything, you still feel lousy, you should have your thyroid checked, and nutrient levels. I hope you get to feeling better!

I know I have had some accidents but I feel like I have cut it out completely =/ Could my deodorant and makeup that I was wearing for so long still be effecting me?

Do you know how long it takes to heal from a wheat allergy? Should I get my small intestines checked to see if I really do have celiacs?

And I have been hearing alott about the thyroid so I'm thinking I need to get that checked! Do you know if any of this relates to terrible menstrual cramps?

Thanks everyone for replying! I feel so loved haha (:

catsmeow Contributor
catsmeow
Posted

Hi, I have a severe wheat allergy as well. After I went gluten free, I felt better in about a week, but not perfect. What finally made me feel perfect at home was changing shampoo (it has wheat), buying gluten free make-up, deoderant, and lotions. I also, had to take all gluten out of the house, buy new pans and a new toaster. I learned the hard way about cross contamination after making gluten-free brownies on an old pan and getting sick. I made a zillion mistakes in the first year. It's a huge learning curve to be totally gluten-free. You cannot just order what appears to be gluten-free off of the menu at a restaurant, I learned the hard way, that unless they have a gluten-free menu in place and know what they are doing...you "might" stay well, they "might" not make you sick. And you cannot trust what others cook either, most people do not even know what gluten is....they think you mean sugar B)

Last week the doc started me on Zantac (histamine 2 blocker) and it has relieved me of my airborne wheat reactions. I wrote a big post about it in the "coping" section. I will never be able to eat it again, but at least I can be around it in public without getting sick and having to get stuck with my epi-pen. Do you have an epi-pen?

I'm so happy that you have found out whatis wrong with you. Getting a diagnoses is a sweet thing. Do you have any other food allergies?

My husband is hypothyroid, and felt like dog do before getting on meds. I would get tested, if it is a problem, being treated will be great.

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

Hi, I have a severe wheat allergy as well. After I went gluten free, I felt better in about a week, but not perfect. What finally made me feel perfect at home was changing shampoo (it has wheat), buying gluten free make-up, deoderant, and lotions. I also, had to take all gluten out of the house, buy new pans and a new toaster. I learned the hard way about cross contamination after making gluten-free brownies on an old pan and getting sick. I made a zillion mistakes in the first year. It's a huge learning curve to be totally gluten-free. You cannot just order what appears to be gluten-free off of the menu at a restaurant, I learned the hard way, that unless they have a gluten-free menu in place and know what they are doing...you "might" stay well, they "might" not make you sick. And you cannot trust what others cook either, most people do not even know what gluten is....they think you mean sugar B)

Last week the doc started me on Zantac (histamine 2 blocker) and it has relieved me of my airborne wheat reactions. I wrote a big post about it in the "coping" section. I will never be able to eat it again, but at least I can be around it in public without getting sick and having to get stuck with my epi-pen. Do you have an epi-pen?

I'm so happy that you have found out whatis wrong with you. Getting a diagnoses is a sweet thing. Do you have any other food allergies?

My husband is hypothyroid, and felt like dog do before getting on meds. I would get tested, if it is a problem, being treated will be great.

Thats awesome you felt better in about a week!! I wonder whats taking me so long :(

I feel like its affecting me long term and maybe I dont get sick as soon as I eat it? It just sucks because i have been gluten free for about 3 months now and even gluten free food upsets my tummy still and I have alot of inflamation =/

And no I do not have an epi pen =/

I know I cried at the doctors when she told me I had a wheat allergy!! haha I was sooo relieved to finally know whats wrong and that I can finally be in control... But its been months and I feel pretty much the same =/

What are the symptoms that your husband had if you dont mind me asking (:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

Can it take the same amount of time to feel better from a wheat allergy as it does from Celiac? and is it possible to have a wheat allergy and celiacs?

catsmeow Contributor
catsmeow
Posted

My husband's hypothyroid symptoms were extreme fatigue, he slept all the time, his face was very puffy, he gained 30 pounds, and he lost half his eyebrows (outer). He was cold all the time, he went bald, dry eyes (still does), crazy deep rough gravelly voice, high chloresterol, and memory loss. Here is a symptom checker. I didn't know that his eyebrow issue was caused by hypothyroid until I read this site awhile back. The hair still has not grown back.

Open Original Shared Link

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

My husband's hypothyroid symptoms were extreme fatigue, he slept all the time, his face was very puffy, he gained 30 pounds, and he lost half his eyebrows (outer). He was cold all the time, he went bald, dry eyes (still does), crazy deep rough gravelly voice, high chloresterol, and memory loss. Here is a symptom checker. I didn't know that his eyebrow issue was caused by hypothyroid until I read this site awhile back. The hair still has not grown back.

Open Original Shared Link

ok thank you! I have some of the symptoms mainly just really tired though. I think im going to get it checked again next week. I had it checked alot when I was younger but not recently.Can somthing like that change over time? I dont know how much longer I should give this gluten free diet either =/ it just seems like I should be seeing more improvement by now. Thank you!

Di2011 Enthusiast
Di2011
Posted

Where you tested for any other allergies or conditions?

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

Where you tested for any other allergies or conditions?

Yes I had a lot of bloodwork for allergies done and the only allergy I had was a high one for wheat. I dont think i have been checked for any conditions? Not for a few years anyways. My naturalpathic doctor wants me to get done some testing for food intolerances but its superrr expensive so I'm not sure if I'm going to get it done or not.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,041
    • Most Online (within 30 mins)
      7,748
    Vfoley422
    Newest Member
    Vfoley422
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.