Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It Stops The Itch Dead In It's Tracks!

squirmingitch

By squirmingitch
in Dermatitis Herpetiformis

Recommended Posts

squirmingitch Veteran
squirmingitch
Posted

I was going to wait another day to post this but I owe it to all of us to post it right now.

I found something which stops the itch. And I mean STOPS it. Done. Over. Finished.

This morning I had a thought about trying something to stop the itching. I tried this on my itchies at 8 a.m. my time. Depending on the particular itch,it stopped the itching instantly or it took maybe 5 minutes. I decided to try some Orajel on the dh places. That's it! It worked for me. And it worked so well for so long that I didn't have to reapply to some places at all & it's now 7 p.m. my time. A few of the places I had to reapply it about 5 hours after the 1st application. I sit here typing itch free for the first time since the beginning of April. The dh is still there but it isn't itching.

Okay, this is Orajel oral pain reliever for toothache Maximum Strength. The active ingredient is Benzocaine 20%.

I would be very interested to hear from any of you who try it & what results you have with it. Please post back here if you try it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

How wonderfujl to be rid of that itch :D Who would have thought??? :blink: Well, you would have :lol:

cahill Collaborator
cahill
Posted

I am sooooooooooooooooooo going to try this :D

pricklypear1971 Community Regular
pricklypear1971
Posted

I will definitely remember this.

Thanks!

squirmingitch Veteran
squirmingitch
Posted
  • Author

I really hope this keeps up because I am LOVING it!!!!!!!! I even had a new blister come up on my leg this afternoon around 4 p.m. I broke the blister, put the Orajel on it & it hasn't itched since (a little over 4 hours later).

BTW, I just happened to have the Orajel on hand as I had a tooth badly in need of a root canal & crown & I picked up the Orajel just in case the tooth began to give me fits before the appointment. I ended up not needing it & made it to the appt. time.

Marilyn R Community Regular
Marilyn R
Posted

I'm going to try it on my psoriasis. Nothing else seems to stop it from itching. Thanks for posting@ If there's an end to the itch, I'll be grateful to you forever!

Di2011 Enthusiast
Di2011
Posted

I couldn't work out why the active ingredient sounded familiar - I just realised I bought my son Cepacaine for throat last week. And this post from eatmeat4good yesterday in the "What to put on DH lesions":

I had DH on my chin too.

"I used Walgreens brand of Pain Relieving Ointment which is benzocaine and it numbs the stinging itching pain of DH. Only works for a little while but it is welcome relief."

I am now playing the guinea pig with cepacaine oral solution :)

As usual it comes with some risk. You all should read up about possible side effects eg

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted
  • Author

:lol: Maybe the post by eatmeat4good subliminally sent a message to my brain & that's what caused me to think of the Orajel. If so I heartily thank eatmeat4good!

Thanks for the link & info. Diane. Not what I expected it to say as I thought this morning that I had better post something of a disclaimer for people to look up side effects before they try it. I was thinking along the lines of people with heart disease & it might make their heart race or something. Of course, I might not slather the stuff over large areas repeatedly such as over your entire belly & sides --- that could be a large territory & I have no idea what the effects of continued use such as that might be.

I can only say that for myself I'm riding this baby as far as I can. To have a full 24 hrs. without itching is like having Christmas! I woke last night with a little itching, not even enough to get up & put Orajel on it. I rolled over & went back to sleep. Up this morning to a few itchy spots & some new dh places & put the Orajel on & no more itchies!

ciamarie Rookie
ciamarie
Posted

Another thing that helped me on the back of my knees, was a lotion with tea tree oil in it. Specifically by Nature's Gate. I got it at super supplements. It relieved the itching and dryness long enough for me to sleep at night, though of course it has a bit of the tea tree odor so I didn't wear it during the day.

Thankfully, I've had some minor episodes since going gluten-free (and low-iodine) a few weeks ago, but it's much better.

Di2011 Enthusiast
Di2011
Posted

I've had an interesting day! That Benzocaine does work!!!

Last night when I tried it I definitely notice a difference.

This morning I woke up to a nasty outbreak on my hands/fingers. I got so upset because today was Liams martial arts grading and we'd been invited to another families for BBQ afterwards. So this afternoon we are home and I've been mostly itch free. I took it with me and re-applied it after grading and before BBQ and two hours later I was not itching like crazy. What a relief to have something that allows me to be somewhat socially normal, not distracted wanting to tear my hands up in front of people.

And they were so intent about my meal that I felt safe eating that lovely meat & salad - and no consequences!!!!

squirmingitch Veteran
squirmingitch
Posted
  • Author

YAY! Thumbs up! :)

  • 2 weeks later...
eatmeat4good Enthusiast
eatmeat4good
Posted

Ah!! I just saw this post! Yes, the benzocaine works great I'm so happy it is working for others too. Walgreens Brand of Pain Relieving Ointment is 20% Benzocaine the strongest you can get over the counter. If Orajel works that's great too! And if I planted a subliminal message that is pretty cool too! Anything that will help another DH sufferer is worth it to me! This is a miserable condition. Bactine is another way to get relief if you have DH over large areas of your body. Bactine is a spray and I found it difficult to use on my face...other than spraying it on a bandaid and applying the bandaid. But yeah, it really works. Those who are hurting, burning, and itching really need to know!!!

Sooo the list of products that works is now"

Pain Relieving Ointment

Bactine Spray

Orajel.

I once got lidocaine cream from my Dr. and it worked great...but it was crazy expensive compared to these other applications...so I use these. Although I have yet to try Orajel!

maximoo Enthusiast
maximoo
Posted

I am going to try the orajel when we get mosquito bites! Out of desperation we have used ice to numb the horrible bites, and it works for awhile. But then again ice isn't that comfortable but its the lesser of 2 evils. So maybe if you are stuck w/o anything and are desperate for relief from your Dh try icing the area.

squirmingitch Veteran
squirmingitch
Posted
  • Author

Mosquito bites respond very well to Benadryl gel. Take it from a Floridian who deals with them 12 months of the year.

Fire ant got me the other day & I put a cotton ball soaked with witch hazel on it (Benadryl doesn't work so well for fire ants) & held that on for about 3 minutes & viola'! GONE.

The Orajel is around $9 for a little tube of it but you certainly don't need but a tiny dab on the spot. Yes, eatmeat4good, if you subliminally put that notion in my brain then YAAAAAAAAYYYYYYY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

eatmeat4good Enthusiast
eatmeat4good
Posted
:lol::lol::lol:B)
Di2011 Enthusiast
Di2011
Posted

another knock to the medical/pharma industry wanting to research DH but who cares when you itch like us huh?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,889
    • Most Online (within 30 mins)
      7,748
    E.coy
    Newest Member
    E.coy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Virus, celiac disease or both?

      By trents · Posted

      First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten Sensitivity).  Second, though I think your question other question has already been answered. Since the tTG-IGA antibody test is only 90 to 98% specific, elevated values for this test will be have non-celiac disease causes in 2 to 8 out of 100 cases. I realize that is addressing your question in a general way but the non-celiac causes have also be covered in this thread, though not to  the granularity of giving percentages to each non-celiac cause. Not sure why that is important to you at this point. First, you need to separate whether it is due to celiac disease or not. If not, then start sorting out what the other cause is. But as I stated above, by far the most likely cause is celiac disease so that is the place to start. Sure, we get it. Having  to eliminate gluten from your life spells huge culinary and social changes and challenges. But it's still better than facing cancer or host of other diseases that less definitive antidotes and outcomes. With celiac disease you don't even have to worry about taking medications because, as of now at least, there are none. The treatment is very straightforward. Avoid gluten.
    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      @trents This info is so helpful and I’m absorbing it all. My blood tests were almost a month ago and I feel like it came out of left field. I never even heard of term “silent celiac.” I thought celiac gave you violent diarrhea when you consumed a tiny bit of gluten. That’s it. Not that it damages your small intestine, not that it made the absorption of vitamins and minerals compromised. None of it. To me it was just an allergy to gluten.  My close family and friends think I’m crazy for even giving it a second thought because “no symptoms, no worries.”  It’s unfortunately hard for me to let something go that I don’t know enough about. Therefore all the research came into play.  I’m glad I’ve joined this forum. It’s more helpful to talk things through with people than looking through cases studies without being able to ask questions. I’m on the fence right now on what my odds are. I don’t know enough about the other variables and probability of why a TTG level would be raised.  The questions I still have lingering are:  -what are the odds that these levels are raised in something other than celiac? For instance of all positive TTG tests that have been done how many of those are from celiac? I know it’s a big ask but to me that’s something that is super unclear to me.  - what are the TTG levels in something other than celiac? (I.e. in things like type 1 diabetes, rheumatoid arthritis, hepatitis, viruses, NCGS, etc, are the TTG levels the same as those that have celiac, higher or lower?)  - even if it’s not celiac and it’s NCGS, if my body is “responding” to gluten, and creating antibodies to it, wouldn’t that be something to avoid anyway? Maybe not doing the damage but still my body doesn’t like it?  -could I really possibly follow a gluten free life as close as I follow Jesus?  Definitely understand now that key piece of needing an EGD. It’s looking at things from another angle. Also with all the other associated blood work, more angles.  I would like to say please forgive me if any of my questions seem as though I’m trying to be difficult. Making lifelong decisions is hard.  I do have decisions to make as you have said. I clearly will need convinced in order for this to be something to be committed to.  I would hope that there will be something in the future that comes out that will offset gluten in bodies the same was it does for sugar in diabetics.  My compassion is far greater for anyone carrying the burden of celiac than it was a month ago knowing what I know now.  I appreciate you helping me work this out, in real time. It’s been lonely up to this point. Only me talking about what I’ve read to people who don’t think I should be bothering with it any further. 😆 So thank you! 🙏            
    • trents
      Probably celiac but also confused

      By trents · Posted

      Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some high potency vitamin and mineral supplements. Make sure they are all gluten free if you will continue to use them - after diagnosis, that is. Wheat starch is sometimes used as a filler in pills. A multivitamin may not be potent enough. So, I would go for a B-complex, magnesium glycinate (the form of magnesium is important for good absorption and to prevent a laxative effect), zinc picolinate, and D3 (around 5000IU daily). These are supplements we routinely recommend on this forum to newly diagnosed celiacs and in view of your dramatic weight loss it would likely be appropriate for you as well. It often takes around 2 years for the villous lining of the small bowel to fully heal after going gluten free and until then, nutrient absorption will be compromised. The small bowel is the section of the intestines where all of our nutrition is taken up. Keep us posted.
    • terrymouse
      Probably celiac but also confused

      By terrymouse · Posted

      I'm 5'2" so it's weight I could afford to lose. I guess what's concerning is that it's not on purpose, I haven't been active because I don't have much energy, and it's been steadily going down since I started keeping track of it. So I'm not too worried about where I'm at right now, but it's something I'm keeping an eye on.
    • trents
      Probably celiac but also confused

      By trents · Posted

      A classic case of more than one medical problem going on at a time. We often forget that can happen. Are you concerned about your weight loss? Is your current weight too thin for your height, gender and general build?
×
×
  • Create New...