Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mouth Sores

Lady Jane

Recommended Posts

Lady Jane Newbie
Lady Jane
Posted

One of the symptoms I had that I thought was use to celiac was constant mouth sores. Usually behind my back teeth, on the roof of my mouth, or on my lower lip in the front. Well, I've even off gluten for eight days and now I have another mouth sore. Do you think that means that the sores are unrelated to gluten? I'm pretty confident that I was not accidentally "glutened".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Try dry mouth toothpaste (check for gluten).

I also used to put some Dr. Tichenor's on the mouth sores or wash my mouth out with it (dilute it for mouthwash and check for gluten). I would put some straight on a cotton swab, and hold it on the sore. Burns like holy heck but it numbs it and would stop it from getting bigger.

And acidic foods make them worse.,.

ScarlettsMommy Explorer
ScarlettsMommy
Posted

I get them too but i also have crohns along with celiac and my dr says the sores r from my crohns

red island Newbie
red island
Posted

The reason I was eventually diagnosed with celiac was because of mouth sores. My dentist took one look and told me to get tested. That was 3 months ago and I still periodically get sore gums and mouth - not sure if from cc or because the celiacs is still active. I am using Biotene mouth wash and it seems to help.

lovegrov Collaborator
lovegrov
Posted

I think eight days is too soon to really conclude much of anything.

richard

AVR1962 Collaborator
AVR1962
Posted

Are you talking canker sores? I have been gluten-free for 8 months and am still having trouble with canker sores.

Lady Jane Newbie
Lady Jane
Posted
  • Author

I don't think that they are canker sores. The are white in the middle with little bubble blisters and then red around the outside. They are terribly painful and irritating.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


red island Newbie
red island
Posted

I don't think that they are canker sores. The are white in the middle with little bubble blisters and then red around the outside. They are terribly painful and irritating.

Sorry, I'm from the pre-computer era, I meant to say that my sores looked like that too and I was told by the dentist that it was a sign of active celiac or other autoimmune disease

IrishHeart Veteran
IrishHeart
Posted

I had recurring mouth/gum sores before DX.

As Richard has suggested, it may be too early for them to have disappeared just yet. You may still have them pop up for a few weeks-months.

It does not necessarily mean you were glutened or that they are related to anything else.

Give it some time. Mine are all gone now. :)

IrishHeart Veteran
IrishHeart
Posted

Are you talking canker sores? I have been gluten-free for 8 months and am still having trouble with canker sores.

Try some L-Lysine. It's an amino acid and very helpful for canker sores.

AVR1962 Collaborator
AVR1962
Posted

Try some L-Lysine. It's an amino acid and very helpful for canker sores.

Thanks IrishHeart, seems like I am contniually thanking you for the info. Funny, now that you mention Llysyne, I actually stopped taking it because doc said it was a waste of money and now that I think about it, that's when I started having problems with canker sores.

I did some research on canker sores online and it was suggested that sodium lauryl sulfate in toothpaste was the problem but my toothpaste does not have this. So I will pick up some more Lysyne and see iff that takes ace of the problem.

IrishHeart Veteran
IrishHeart
Posted

Thanks IrishHeart, seems like I am contniually thanking you for the info. Funny, now that you mention Llysyne, I actually stopped taking it because doc said it was a waste of money and now that I think about it, that's when I started having problems with canker sores.

I did some research on canker sores online and it was suggested that sodium lauryl sulfate in toothpaste was the problem but my toothpaste does not have this. So I will pick up some more Lysyne and see iff that takes ace of the problem.

(chuckling) most docs pooh-pooh supplements--which is odd because they give us Vitamin D when we are low, B-12 when we are low, etc.--so obviously, supplementing is sometimes necessary. We do need to pick and choose of course, because over-supplementing is not beneficial either.

Celiacs are low in essential amino acids because of prolonged malabsorption. L-lysine is an amino acid. I had success using it--it was suggested by a friend who had awful canker sores her whole life--and it worked. Avoid OJ and tomato juice for a while. Give it a few weeks. If it works, great! Just a thought. Cheers, IH

beebs Enthusiast
beebs
Posted

That was one of mine, ulcers I mean. It is only starting to become noticeably less now, and I

ve been gluten-free for almost 12 months - these things take time!

Skylark Collaborator
Skylark
Posted

It took months for me to stop getting canker sores. Eight days is nothing. The gluten is barely even getting out of your body.

Lady Jane Newbie
Lady Jane
Posted
  • Author

Good to know that eight days isn't long enough. I'm fine waiting... I just was concerned that maybe it meant I was wrong in connecting the two (sores & celiac). Thanks everyone!

Lori2 Contributor
Lori2
Posted

My daughter's canker sores were diagnosed at Mayo Clinic to be due to iron malabsorbtion--a common celiac problem. Get your iron levels checked, not just hemoglobin, but also ferritin, % of saturation, etc. Your problem will probably not resolve until you start absorbing nutrients properly.

cap6 Enthusiast
cap6
Posted

I had horrific mouth sores prior to diagnosis, 8 to 10 at a time to the point where I couldn't talk. After a couple of months they lessened. At 21 month I still get one from time to time but they no longer get to the ulcerated point, just uncomfortable. Give it time.

AVR1962 Collaborator
AVR1962
Posted

I started taking L-Lysine about a week ago, advise from IrishHeart, and my canker sore is almost gone. And, been abttling with a yeast infection again and couldn't figure out why. That too has cleared up.

IrishHeart Veteran
IrishHeart
Posted

I started taking L-Lysine about a week ago, advise from IrishHeart, and my canker sore is almost gone. And, been abttling with a yeast infection again and couldn't figure out why. That too has cleared up.

Glad it helped. :) Those things have any number of causes but the L-lysine has worked for me. RE: the yeasties---are you taking probiotics??

AVR1962 Collaborator
AVR1962
Posted

Glad it helped. :) Those things have any number of causes but the L-lysine has worked for me. RE: the yeasties---are you taking probiotics??

I am taking a probiotic. However, this last one was one I picked up at the grocery store and not as good, probably, as the one I normally take. Need to order the one I prefer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,251
    • Most Online (within 30 mins)
      7,748
    Kathlane
    Newest Member
    Kathlane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.