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Newly Diagnosed Celiac - Vegetarian


happinessreigns

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happinessreigns Newbie

I have had symptoms for 10+ years, and after researching information about inflammatory diseases, which run in my family, I came across Celiac Disease. After self-diagnosing, I had a positive blood test for Celiac, and the small bowel biopsy, which confirmed my diagnosis. I am a vegetarian, and am wondering if anyone has any recommendations of books or websites where I can obtain information about getting started on going gluten-free. Now that I have a confirmed diagnosis, I want to get myself organized, and set up my kitchen as soon as possible. Unfortunately, my GI doctor was not overly helpful with recommendations, other than "go strictly gluten-free." Any resource information or recommendations, would be extremely appreciated.


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AzizaRivers Apprentice

First of all, welcome! I know how good it feels to have figured out how to help yourself get better, and to begin the journey. I'm also vegetarian and I'll tell you that veggie-gluten-free isn't very hard, especially if you've been veggie for awhile and are used to that.

I cannot recommend this blog enough: www.glutenfreegoddess.blogspot.com.

Her recipes are fantastic, and she's also vegetarian with several other food allergies and intolerances, so her recipes always have suggestions for substitutions.

There's a link at the top of her blog to extra help on going gluten-free for new celiacs (Open Original Shared Link). It's got a lot of excellent tips and recommendations when you feel a bit overwhelmed by all the can't-haves.

Also, make sure that if you're sharing a kitchen with gluten-eaters, don't use their wooden spoons, cutting boards, or old/scratched pots and pans or skillets. You'll also need your own toaster and certain condiments that can be contaminated by gluten (butter, peanut butter, jam, etc.). Make sure you have a safe space for your food and keep the kitchen very clean to avoid contamination.

Booghead Contributor

I see people like you guys and I am shocked and so suprised. I just don't know where I would get my nutrients if I didn't eat meat or gluten.

More power to you though. Stick with it and it will become second nature. The thing that really suprises me is celiac and vegan. What would I eat then? Milk and Eggs are my primary life source.

I live in a place where meat and potatoes are served for every meal. Usually fried. Several people I know wear T-Shirts that say "Save a plant, eat a cow." I suppose that probably wouldn't fly in places like california or new york, but here in utah it's all good. I know one kid at school who is doesn't eat meat and he is the littlest kid in high school, oddly enough he is in my cooking class (where we are currently learning to de-skin a chicken). He's nice though.

Anyway, good luck and hopefully you start feeling better gluten free! B) It can be such a relief at first, you might want to look into cutting out dairy as so many have problems with it until their stomaches heal. Just a thought!

happinessreigns Newbie

Thank you for the recommendation on the website. Most helpful. In regards to the kitchen set up, my husband is open to having the entire family eat gluten free to make it an easier transition for me. I have a large cutting board that I absolutely adore. Can I wash everything down, and continue to use this, if I am only going to use it with gluten free items, or do I have to go out and buy new equipment?

eatmeat4good Enthusiast

If it is wood, there is almost no way to get it clean of gluten unless you want to sand it down to a new layer of wood. If it is plastic and has cut scars on it, gluten can hide in there. I kept my frypan because I thought heck I can clean that thing. But weeks of reactions later I decided all the expert folks here were right. If you have Celiac, you need to be clean of gluten at all costs. Unless it's going to break you I would get a new cutting board exactly like the one you love. It will be worth it to you in the end. If you ever cut a loaf of bread on it you will always be in doubt. And here is another lesson I learned the hard way. Toaster oven. I couldn't afford a new one. So I cleaned the rack and kept using it. One day the toast fell on the glass front as it lay open and I tried to remove the toast. I was sick the next day with gluten symptoms. I am sure it was from the gluten crumbs or particles that stuck on the bottom and got to the glass. That day I threw it out (gave it to a non-Celiac actually) It may seem that these are ridiculous extremes to go to when you first learn about cross-contamination...but if you take the appropriate steps that are recommended you will save yourself hours and days of feeling ill and having reactions. I wish I hadn't been so cavalier about it at first. I thought OK, I have Celiac, but surely THAT won't bother me will it? OMG...hindsight it 20/20 :o

happinessreigns Newbie

Looks like new equipment for the kitchen is the way to go. I've gone this long feeling unhealthy, and I don't want to take any chances. I feel like this is my new lease on life, and heck, I'm worth it! Thanks for the responses.

ElseB Contributor

I was vegetarian when first diagnosed, but encountered too many situations soon after where the only option was eat meat or eat nothing. But as a caveat, I was travelling at the time and not in full control of choosing my own food. So I started eating meat again and really like it, but I only eat it once or twice a week. The rest of the time I eat things like eggs, beans, lentils, quinoa, tofu, cheese, yorgurt. All good sources of vegetarian protein and gluten free (for the most part - check the labels). So while I choose to eat meat again, I think staying vegetarian is do-able (it just didn't work for me).

One book I like is "The Gluten-Free Vegetarian Kitchen: Delicious and Nutritious Wheat-Free, Gluten-Free Dishes" by Donna Klein. I admit I don't use all the recipes as written, but like them for inspiration to create my own dishes. But the book does contain the most amazing chocolate brownies that even the gluten-eaters like!


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Reba32 Rookie

I think a lot of manufactured, processed vegetarian foods will have wheat in them, (veggie burgers and the like) but whole vegetables and fruits have always been naturally gluten free.

you can find vegetarian and gluten free protein sources, if you're lacto-ovo, your options are more than if you're vegan of course.

this blog here Open Original Shared Link has a lot of recipes that are vegetarian/vegan, as well as gluten free.

And, believe it or not, the "New Atkins For a New You" book has a section on a low carb vegetarian diet :)

  • 3 years later...
DandelionH Apprentice

Ah wow! Great thread!
I wonder how many others have shifted their omni-veg eatings after diagnosis?

I was basically vegan with occasional fish when I was diagnosed (vegetarian for sustainability reasons and lactose-intolerant!) and have recently embraced dairy again as my body has healed. I thought I'd feel weird relying on animals as much as I do now but I'm a lot healthier for it and it makes things easier. I've also started eating ethical red meat or chicken a few times a week but still struggle with justifying that. We do what we can and if I 'have' to eat meat I will. But I just don't know if I really have to. I think dairy, eggs and good foods are probably enough. But don't know yet...

Good points about wood, too! Walking the line between being careful and not being ridiculous, in our house. For a while I was scared to even share plates in case they weren't washed. Now I've been sharing chopping boards. Some of which are wood. I might... not.

Thankyou thankyou wise forum!

maseymn Rookie

When I first set up my kitchen after being diagnosed, I color coded things. I didn't have any red in my kitchen, so I bought red spoons, red pans, red spatulas, red mixing bowls. My family knew if they were cooking something with gluten to never use anything red. I haven't had trouble (as far as I know) using my wooden cutting board (I just flipped it over), or using my wooden spoons. I still use those, and I know my family has used them for gluten-y things.  I'm just obsessive about cleaning and scrubbing them.  If you have a cast iron skillet, give it away and buy a new one. There are so many pits in it that it's impossible to get the gluten out. I also had to replace all my pyrex; it kept making me sick. My pyrex I now keep gluten free (my family has to use metal pans if they are making brownies etc.). I have my own pizza cutter (red handle) and pizza pan. I have a separate place in my mud room where I keep all my gluten free foods and my pans and baking things. I had to buy new containers for my gluten free flours etc. Be anal about it -- it will save you a lot of trouble in the future. Kudos to your family for supporting you so well. Mine was not willing to go gluten free.

I like the website allrecipes.com; you can type in things like "gluten free vegetarian" and it will give you a bunch of recipes. You can also put in items you have in your pantry, and it will give you a bunch of recipes that use those items. I got very good at converting recipes. Once you get used to eating gluten free, you'll find it pretty easy to take your old favorite recipes and figure out a way to make them gluten free. I only have a couple I haven't been able to figure out a good gluten free version for.

If you are vegetarian, you might have used a lot of soy sauce in your cooking.  I've been told a good substitute for that is Braggs Amino Acids. (I didn't cook with soy sauce, so I haven't tried it myself).  I eventually had to give up dairy as well, but I've been using coconut oil, coconut milk and Ghee as substitutes when cooking with pretty good results.

Good luck!

 

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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