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Brain Fog?


maisgf

Brain Fog  

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maisgf Newbie

Between myself and my family, we have a variety of problems that may be called brain fog. I'm trying to figure it all out. I'm self diagnosed because more then one Canadian doctor has said, "If you feel better without gluten, don't eat it."

In your experience, is brain fog due to gluten:

A) a wispy cloud that moves in when glutened

B) a growing storm that turns into a headache and/or migrane

C) a short term memory problem that is constant

D) a barrier that disables brain function and is seen as a learning disability

E) all of the above

F) a combination of the above

G) other, please explain

Thanks!


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Aly1 Contributor

It waxes and wanes but at its worst I can barely focus on reading a sentence and can't remember what happened an hour ago. It's just awful.

BabsV Enthusiast

For me it is a combination of "a wispy cloud that moves in when glutened" and "a short term memory problem that is constant" -- both of these symptoms fade away once I'm off gluten. When I was at my worst the couple of months before diagnosis I had absolutely no recollection of lots of things that were said to me. Scary to look back at that time (and it was only a few months ago!)

GottaSki Mentor

All of the above, except learning disabiliy (felt like I had learning disability, but no one saw me that way as I'm in my 40's) ~ mine was very severe and turns out was caused by than more than gluten. I was gluten free for over two years before I started elimination diet that revealed another 10 items causing problems.

Good news...it's been 4 months and my memory is returning very quickly now. It's a reverse of how the fog got worse over 10 years...I now have all my early memories and those of my children's early years...hoping to get some of the foggy years back too!

Skylark Collaborator

I use different words. It feels like someone replaced my brains with cotton and I can't think straight or remember anything.

domesticactivist Collaborator

I forget what I'm doing or thinking from one minute to the next. I can't put thoughts together or make sense of things. My son can't read when glutened ( he was severely 'dyslexic' before going gluten-free - went from barely kindy reading at age 10 to beyond grade level in 3 months!) I get very slow and miss details. The kids totally lose focus/exhibit ADD.

I do get severe migraine auras and sometimes migraines but that is separate from the brain fog. I also get verbal aphasia but I think of that as separate, too.

  • 3 months later...
grodeylocks Apprentice

Is it normal to feel like you're spaced out, feeling like you're living in a constant dream, almost like you are super stoned. I've felt like this constantly for over a year and have recently gone gluten free 3 months ago as I have been getting rashes that look like dermatitis herpetiformis. It seems a lot of my issues are lessened in intensity since this switch, but my question is is this a normal feeling for people with this disease and how long did it take to resolve?


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
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    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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