Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Hand Tremors


Debbie48

Recommended Posts

Debbie48 Rookie

Does anyone else have hand tremors? Shaky/jerky fingers?

I've had so many strange symptoms for the past 7 months and they're only getting worse. I'm trying to figure out what is going on, but doctors don't have a clue.

When my blood work came back positive on the antigliadin antibodies a few weeks ago, I was hopeful that this might be the cause. The shaky fingers, almost like Parkinson's Disease seems so strange for celiac. Is it? Does anyone else have this?

I continue to do research to try to figure out what's going on. I have muscle cramping in my upper arms. The lower part of my body has more numbness and tingling than anything else.

Yesterday, I felt like I had a slightly better day. This morning already has been horrible, especially the shaking and arms cramps.

I made sausage and sourkraut last night. I looked up about the Hillshire Farms sausage and it said it was gluten free. What about Franks quality Kraut? Anyone know about that? I assumed it was gluten free, but I so new to reading labels.

Ingredients of the kraut:

cabbage, water, benzoate of soda, and sodium metabisulfite added as preservatives. Was it the preservatives?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

There isn't any gluten in the kraut, could just be a coincidence?

I have a book here called "Recognizing Celiac Disease

signs, symptoms, associated disorders & complications"

I recommend this book very highly.

In it, you can look up any symptom and it tells which vitamin/mineral you're low on and tells which foods contain it. Or you can get a gluten-free supplement.

For tremors/neuromuscular disturbances it says the culprit is low magnesium and/or phosphorus. For now it might be best to take a supplement?

The numbness/tingling can be low B12. You can get sublingual B12(you place it under your tongue and it's absorbed better).

If you have damage in your intestine it's not absorbing the nutrients from your food like it should.

pricklypear1971 Community Regular

Yep, I have shaky fingers. They shake left to right not up and down. It's especially bad if I try to do the "Spock" move.

It started with my left hand - thumb actually. Then I went gluten-free and it almost disappeared. Then it came back. Now it's gone again, but my hands hurt like someone slammed an encyclopedia down in them. I'm also in the middle of an allergy attack/cold and lots of muscles ache and my nose is so stopped up I can't even make a Neti Pot work...

I wasn't low in B's but am low in D and iron. If I am super-strict about taking my supplaments I think lots of things improve. I also think right now I am dealing with a glutening (ate out a lot during the holiday and I think it accumulated).

It's a mess.

My ND says its neuro damage from the Celiac but I think I want to look into it more. I'm wondering RA.

ravenwoodglass Mentor

My hands shook so bad before diagnosis that doctors thought I was hiding alcoholism. I wasn't. Between the shaking and the severe arthritis it made it hard to do anything. Shaking and the arthritis both resolved gluten free. It is amazing how many different parts of the body can be impacted by this disease.

AVR1962 Collaborator

Yes, and as long as I take extra magnesium and potassium I do fine. If I back off they start again. Also, blame some of my stiffness to lack of magnesium especially my back. I had terrible stiffness in my back and neck and did everything to get it to move and then one day realized I had backed off my magnesium, upped it again and it went away. Another supplement I have added to help all my muscles is manganese. I did some reading on it and it is very good for the body.

domesticactivist Collaborator

I don't know if I have celiac disease. I was gluten-free for a year and now am doing a gluten challenge so I can get tested.

Anyway, I wanted to add that I have shaky hands. It got much better and barely noticeable when I was gluten-free (and on GAPS), but came back a couple weeks into my gluten challenge. My partner noticed it the other day, so I know it's not just me imagining things.

My hands also stopped being able to make a fist in the morning and I have some mild joint pains in my hands and toes, plus bone pain in my shins below my knees. I also have persistent tingling in my face and my legs fall asleep a lot, and I wake up with paresthesia in weird places all over my body. These (and many other symptoms) are not super extreme for me, I'm very functional still. However, they went away on GAPS/gluten-free and are back now that I am doing the challenge. I've also started to get really bad muscle cramps in weird places.

My son had bone and joint problems and pain and muscle cramps, (in addition to a whole lot of other symptoms). In fact this landed him in emergency surgery and is the reason we decided to try a gluten-free diet. It set us on this road.

IrishHeart Veteran

I had shaky hands. I felt like I could not get them to do what I wanted. I could not lift things, open things, or carry things while very ill from Un- Dxed Celiac. I shook all over actually--legs, too.

My hands hurt so bad, I cried. Yes, I have osteoarthritis, but the pain and shakiness made no sense. I have body -wide muscle/joint/bone pain and nerve damage and major loss of muscle mass, but it is slowly resolving and I hope for the best.

My hands no longer shake and my hands are increasingly stronger each month I am off gluten.

Hang in there--you're just beginning to heal. It will get better. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Diane-in-FL Explorer

I had the shaky hands too and legs as well. Sometimes I thought they were going to give out on me. Much better now. I can reach for things with the trembling. It made me feel so feeble!

There is a typo here....I meant to say that "I can reach for things without the trembling now".....sorry about that.

hspichke Apprentice

I have a tremor, which was first said to be from the temporary hyperthyroidism I got after having my son but that is now back to normal and my hands are still shakey. I just found out that my entire celiac panel was positive, but I have not gone gluten free yet. ( waiting for endoscopy) So it could be a symptom?

notme Experienced

i had the shaky hands as well. gone. one more thing i can check off the list of things i thought were something else (that i was going to die of.) i am alot less spastic, also, as in i can catch that pencil rolling off the table or that jar of stuff falling out of the fridger.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.