Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Hardest Part About Celiac For Me Is...


GFreeMO

Recommended Posts

lynnelise Apprentice

I USED to say I am so glad I got to visit New Orleans before Katrina. Now I'm glad I went before being gluten/corn free. The food was absolutely the best I ever had!

This exactly! I love New Orleans more than any place I've visited!!! I know I could make the dishes at home but it's not the same as being there and having the experience of trying all the good restaurants. Celiac makes you lose a lot the carefree attitude that makes vacation fun.

So to answer the overall question I guess what I find hardest is the constant planning and the way an unexpected hurdle can throw everything off. Like today for instance. I got called into a meeting before I had a chance to eat my breakfast...well they served donuts so it was a really bad time to be hungry. Then things get intense and they decide to work through lunch and order food in....from a pizza place I'm unfamilar with. I was way too scared to chance a salad so I just said no thanks. So that made two meals I had to suffer through. Finally I snuck out for a restroom break and scarfed down a Larabar. Normal people don't worry about that...they just enjoy donuts and pizza on the company's dime!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



xjrosie Apprentice

If you are staying somewhere with a kitchen you could cook - but that's hard to find there unless its a cottage or a liberal B&B.

That's why I have hope of going back soon. My uncle still lives there....so he has a kitchen!

Look for an extended-stay hotel, I know the Holiday Inn company has one but I can't remember the name. Anyway, those hotels typically have a little larger room with a fridge, mini-stove, and microwave. The one I stayed in even had a bit larger table where my kids and I could sit down.

srall Contributor

Look for an extended-stay hotel, I know the Holiday Inn company has one but I can't remember the name. Anyway, those hotels typically have a little larger room with a fridge, mini-stove, and microwave. The one I stayed in even had a bit larger table where my kids and I could sit down.

I think this is really good advice. When we went to England last summer I made sure we had a kitchen. This trip to New Orleans we won't have the luxury, but hopefully a fridge. (The hotel is part of a convention). But in our travels we have learned to research ahead of time and book our hotel based around proximity to a Whole Foods, Outback, or nicer restaurants, a fridge or kitchen in the hotel, or even rent a house if we need to...traveling is just not at all carefree anymore.

HalfBaked Newbie

There is at least one that you can get gluten-free King Cakes, I know I get mine from a guy that is at Who Dat Cafe in Marigny neighborhood, which is just outside the Quarter. He always has different savory items and sweets as well. Talk to him, if you have special restrictions, he will go for it if he can (eg Nut Free, Soy Free, Dairy Free.) I go there regularly, and honestly I don't feel as though I'm missing out at all on the gluten-free items. The reason I found this thread was that I was looking for a gluten-free muffaletta bread recipe for Mardi Gras. At last I got to help someone find King Cakes, now back to the trawling of the internet oceans for that one special recipe...

PS, there is a restaurant in this Cafe, the same guy supplies the biscuits (Green Onion Cheddar!! Yum!) with your breakfast, and believe this... gluten-free Grillades and Grits!

Also, El Gato Negro has been extremely accomodating for me in the past, and I've not once been "Glutened." They are right off the French Market, so definitely another place to check out if visiting.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.