Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any One Tried Custom Probiotics


kaity

Recommended Posts

kaity Apprentice

has anyone gave their celiac child custom probiotics?? did it help your child?? my three year old son has lactose intollerance and is celiac do you think it will help him?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

has anyone gave their celiac child custom probiotics?? did it help your child?? my three year old son has lactose intollerance and is celiac do you think it will help him?

In answer to the question in your title ... Yes, I've taken Custom Probiotics for almost 2 years. I originally took them after having my 7th and 8th gastrointestinal infections (H. Pylori and Dientamoeba Fragilis) in a 4 year period. Everytime I had to take antibiotics to cope with intestinal infections, I knocked out my good bacteria. So I needed to get some really high dose probiotics into my gut quickly. Custom Probiotics' Adult CP-1 formula did the trick for me. For 6 months I took 100 billion IU (2 capsules) daily. My next stool test showed normal amounts of good bacteria in my gut. I haven't any more gut infections since I started taking Custom Probiotics. (I still take one 50 billion capsule daily.)

Sorry, I don't have any kids (thanks to undiagnosed celiac disease and Hashimoto's when I was younger). So I can't recommend a specific Custom Probiotics formula for kids. However, I do know the person who answers the phone at CP is very helpful and can recommend a probiotic formula suitable for your child.

IrishHeart Veteran

Same here--I used them for a few months post- DX. I had no good bacteria in my gut apparently--found that out through testing--and these Custom Probiotics did the trick. Because they are powdered, you can start at a small dose and work your way up. I hit them heavy myself to get my gut flora balanced. I thought they were great! I had severe GI burning from mouth to rectum and I could not keep any food in at all. They calmed everything right down.

I cannot say personally how they work for children (as I could not have any either--thank you, Celiac :angry: ) but I know they are a good product.

The man who owns the company spoke to me at great length and was very helpful.

They will not harm your child and they have a formula made just for kids and they are lactose free --as I recall.

Give them a call! :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.