Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten In Drinks?

Billygoat

Recommended Posts

Billygoat Apprentice
Billygoat
Posted

I'm fairly new to this discussion board (although not new to gluten-free dieting) and have learned so much about the gluten-free diet lately. I've worked hard to be gluten-free, but over the years I feel like I've been "glutened" even though I don't think I have.

Someone on this board mentioned getting glutened by drinks? How is that? What ingredient has gluten hidden in it? Was it "natural flavors" or the "modified food starch"? I ask because I just drank an IBC Black Cherry soda and I'm feeling like total butt. My head is throbbing and my stomach feels totally bloated. My hips ache.

Can someone help me? I feel awful. :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

You may want to go to the safe and forbidden lists. This link will tell you what gluten can hide under.

https://www.celiac.com/st_main.html?p_catid=12

Both natural flavors and modified food starch have the possibility of having gluten so you need to check each individual product.

Alot of drinks are safe but some are not.

However, the following brands will clearly list wheat,rye, barley, and oats right on the label or they will be safe. This saves us alot of time so we don't have to call about any natural flavors or anything..we just look for one of those four ingredients. With brands other then the following, you have to call.

Aunt Nelly’s

Balance

Baskin Robbins

Ben&Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Dove

Edy’s

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman’s

Hershey

Hormel

Hungry Jack

Jiffy

Klondike

Knorr

Kozy Snack

Kraft

Libby’s

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely’s

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain’s

higgins Newbie
higgins
Posted

Another thing to be careful about is the different substances that exist in the same "named" product from one country to another.

For example, I am trying to determine whether or not "Keens" Dry Mustard has gluten in it. I have been told that Canada and the U.S. differ, and that one country has a safe version; the other country does not. I think the U.S. has the safe version, so I might be out of luck.

Depending on where you live, you will be subject to different labelling laws: laws that may allow trace amounts of gluten to be present in "gluten-free" labelled foods. Good luck. It's quite the task ferreting out every last bit of gluten from one's diet.

knvb78 Apprentice
knvb78
Posted
I'm fairly new to this discussion board (although not new to gluten-free dieting) and have learned so much about the gluten-free diet lately.  I've worked hard to be gluten-free, but over the years I feel like I've been "glutened" even though I don't think I have.

Someone on this board mentioned getting glutened by drinks?  How is that?  What ingredient has gluten hidden in it?  Was it "natural flavors" or the "modified food starch"?  I ask because I just drank an IBC Black Cherry soda and I'm feeling like total butt.  My head is throbbing and my stomach feels totally bloated.  My hips ache.

Can someone help me?  I feel awful.  :blink:

<{POST_SNAPBACK}>

knvb78 Apprentice
knvb78
Posted
I'm fairly new to this discussion board (although not new to gluten-free dieting) and have learned so much about the gluten-free diet lately.  I've worked hard to be gluten-free, but over the years I feel like I've been "glutened" even though I don't think I have.

Someone on this board mentioned getting glutened by drinks?  How is that?  What ingredient has gluten hidden in it?  Was it "natural flavors" or the "modified food starch"?  I ask because I just drank an IBC Black Cherry soda and I'm feeling like total butt.  My head is throbbing and my stomach feels totally bloated.  My hips ache.

Can someone help me?  I feel awful.  :blink:

<{POST_SNAPBACK}>

mojodaddio Newbie
mojodaddio
Posted

I'm curious about this as well. I've been trying to figure out where I'm getting glutened from the last few days and the only common factor is dr. pepper soda. I was afraid of diet coke for a while because NutraSweet contains dextrose, but I just read the their dextrose is corn-derived... but could the natural flavors in Dr. Pepper contain wheat or grain flavors? If anyone knows I'd sure be interested... B)

KaitiUSA Enthusiast
KaitiUSA
Posted
I'm curious about this as well. I've been trying to figure out where I'm getting glutened from the last few days and the only common factor is dr. pepper soda. I was afraid of diet coke for a while because NutraSweet contains dextrose, but I just read the their dextrose is corn-derived... but could the natural flavors in Dr. Pepper contain wheat or grain flavors? If anyone knows I'd sure be interested...  B)

<{POST_SNAPBACK}>

Dr Pepper is gluten free

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mojodaddio Newbie
mojodaddio
Posted
Dr Pepper is gluten free

<{POST_SNAPBACK}>

Thanks, Kaiti! I found out later that the cornbread I had made (totally gluten free, I thought) had modified food starch in the cream corn! I'm still getting used to looking at the labels on totally illogical things, like the mopping sauce I used for barbecue has modified food starch! Thanks again for the confirmation, it's nice to know what products are safe... B)

  • 3 weeks later...
floridanative Community Regular
floridanative
Posted
Dr Pepper is gluten free

<{POST_SNAPBACK}>

What about regular Coke?

jams Explorer
jams
Posted
What about regular Coke?

<{POST_SNAPBACK}>

gluten-free too.

KaitiUSA Enthusiast
KaitiUSA
Posted

Yep Coke is gluten free....pretty much all Coke and Pepsi softdrinks are gluten free.

mandigirl1 Enthusiast
mandigirl1
Posted

What about Diet Sodas?

Coffee?

Tea?

Ive heard that some coffee and tea can have gluten. How? Why?

Any answers?????

:)

KaitiUSA Enthusiast
KaitiUSA
Posted

AS I said pretty much all Coke and Pepsi soft drinks are gluten free and that includes diet ones.

Coffees and tea you have to watch because they can have gluten.

Celestial Seasonings will mark gluten free on the bottom or sides of their boxes to tell you if it is or not.

Some coffees are flavored and teas as well that have things we can't have in them.

Most of Starbucks drinks are gluten free.

julie5914 Contributor
julie5914
Posted

I'm not sure where IBC drinks are made, but caramel color from outside the US is sometimes not ok. Also check for malt or barley in those. I've found that after being gluten-free for a while I am a little more sensitive to chemicals, so artificial flavors and sweeteners are not flying so well with me, though I don't think I am being glutened. Sometimes cherries mess me up, so maybe it is the cherry flavor in those drinks for you?

  • 2 weeks later...
cinda Rookie
cinda
Posted
gluten-free too.

<{POST_SNAPBACK}>

hi all... i was offically diagnosed monday... andi am bummed... and overwhelmed.. my doc told me to see a nutritionst... which i will.. but in the mean time... this is a lot to take in.. i didn print the lists you suggested to billygoat.. and i am even more overwhelmed.. where do i start??? help..lol... i'm trying to suck it up .. but this sux!...

:unsure:

cinda Rookie
cinda
Posted
hi all... i was offically diagnosed monday... andi am bummed... and overwhelmed.. my doc told me to see a nutritionst... which i will.. but in the mean time... this is a lot to take in.. i didn print the lists you suggested to billygoat.. and i am even more overwhelmed.. where do i start??? help..lol... i'm trying to suck it up .. but this sux!...

:unsure:

<{POST_SNAPBACK}>

cinda Rookie
cinda
Posted

<{POST_SNAPBACK}>

did print...lol... ohhh see i can't even post right i'm so freaked.. :lol:

  • 2 months later...
bknutson Apprentice
bknutson
Posted

this is way late but in case anyone is interested I dont know if it is gluten or not but diet Dr pepper was killing me. I can drink the regular Dr pepper but I could not figure out what was getting me so bad and I finially stopped the Diet Dr pepper and it is going away. Also the splenda I have stopped also. Now I dont know if that is a bother cause I was using that at the same time and I just have not used it since. So suit yourself but it was hurting me bad.

nogluten- Newbie
nogluten-
Posted

I've heard Dr. Pepper has prunes in it, but I'm not sure if that's true. If so, maybe that bothered your stomach, although I wonder if the diet would have prunes also? I love Dr. Pepper and it always bothers my stomach. I haven't tried the diet because diet drinks always taste terrible to me.

leonor Newbie
leonor
Posted

Hi,

I was cheking in the internet about dairy products (which I canno have...) and I foun a site that said that soy products (like yogurt, milk, cheese...) can be considered dairy... Does anyone knows if this is true?

Thanks.

Rusla Enthusiast
Rusla
Posted
What about Diet Sodas?

Coffee?

Tea?

Ive heard that some coffee and tea can have gluten. How? Why?

Any answers?????

:)

A lot of the teas that come in tea bags have gluten in them, something to do with the bag. If I drink tea it has to be leaf tea.

key Contributor
key
Posted

I don't know about IBC drinks for sure, but I read on them one time Modified FOOd starch and didn't buy then, because of that. WHy there would be wheat in a drink is beyond me. FOod starch in a soda! OUr world tries to sabotage us celiacs! No, really though, it could have gluten in it, so I would definitely call them or something before drinking anymore of it.

Monica

tarnalberry Community Regular
tarnalberry
Posted
A lot of the teas that come in tea bags have gluten in them, something to do with the bag. If I drink tea it has to be leaf tea.

it's something of a celiac urban legend that tea bags are held together with a wheat based glue. no company ever called has said that - and all the ones I've talked to have noted they are steam pressed. it doesn't even make much sense to use a wheat based glue, because it would dissolve in the water!

JessicaB Explorer
JessicaB
Posted

Cinda,

I was diagnosed last week, well actually my endoscopy and biopsy is this thursday, i have to start gluten-free after then, im starting tomorrow because my stomach hurts so much. Im new to this too. Print the forbidden and safe lists on this website. I found this soooooo helpfull. I went to the grocery store this weekend, so sad, and went throught that list and actually found alot of food i could cook. Email me and we can keep in touch, mckaylaslove@aol.com

Rusla Enthusiast
Rusla
Posted
it's something of a celiac urban legend that tea bags are held together with a wheat based glue. no company ever called has said that - and all the ones I've talked to have noted they are steam pressed. it doesn't even make much sense to use a wheat based glue, because it would dissolve in the water!

That is interesting so, I can go back to drinking my herbal teas. Like apple and cinnamon. It is nice that we have our own urban legends.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.