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Hidden Gluten In Drinks?

Billygoat

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pokey Newbie
pokey
Posted
hi all... i was offically diagnosed monday... andi am bummed... and overwhelmed.. my doc told me to see a nutritionst... which i will.. but in the mean time... this is a lot to take in.. i didn print the lists you suggested to billygoat.. and i am even more overwhelmed.. where do i start??? help..lol... i'm trying to suck it up .. but this sux!...

:unsure:

Don't be suprised if the nutritionist is a little lost. Lots of doctors are also lost when it come to celiac disease diet. You'll find as much info on the boards as anywhere but don't always trust that either. Check yourself when in doubt of an ingriedient. Just my experience.

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tarnalberry Community Regular
tarnalberry
Posted
That is interesting so, I can go back to drinking my herbal teas. Like apple and cinnamon. It is nice that we have our own urban legends.

hehe :-) yep. do check the ingredients, of course, particularly on herbals, as toasted barley appears in some teas. (it's flavorful - like toasted rice in asian tea.) but many are gluten free. (celestial seasonings will list "gluten free" on the bottom of the box, even!)

Guest BERNESES
Guest BERNESES
Posted

It is DEFINITELY possible to get glutened by drinks. My biggest beef is Tropicana. I got sick as a dog from drinking their lemonade and then did some research and found out that they use gluten (hidden under "natural flavors") in all but 2 of their US plants. That's when I crossed them off my shopping list FOREVER.

Celestial Seasonings will clearly label any gluten ingredients. I've had no problem with Tetley or Lipton. Sick as a dog from Yogi tea though.

Also, I now refrain from mixed drinks in bars because many of the frozen drink mixes use "natural flavors" and I got very sick from a margarita once. Sad... but if I want one I make it myself with fresh fruit and ice and know that I'm safe (and it tastes better anyway).

jnifred Explorer
jnifred
Posted

tea bags, tropicana?????? that is BAD. I didn't even think to look there. I have an entire shelf devoted to tea bags. And it does make sense re: tropicana, I always get sick from drinking it, thought it was the acid. And yet I am able to suck on lemons and limes iwthout a problem. duh!! This is crazy.

I got mad the other day and ate a store bought cookie, it wasn't even good as I like home baked much better, but I was mad and obviously not rational. I am soooo paying for it now.

The wining from the family is going to increase x10 if I cut out their Tropicana, any good brands that are ok???

mookie03 Contributor
mookie03
Posted
tea bags, tropicana?????? that is BAD. I didn't even think to look there. I have an entire shelf devoted to tea bags. And it does make sense re: tropicana, I always get sick from drinking it, thought it was the acid. And yet I am able to suck on lemons and limes iwthout a problem. duh!! This is crazy.

I got mad the other day and ate a store bought cookie, it wasn't even good as I like home baked much better, but I was mad and obviously not rational. I am soooo paying for it now.

The wining from the family is going to increase x10 if I cut out their Tropicana, any good brands that are ok???

Their OJ makes me a little sick too, ive never been an OJ drinker b/c of it, and like you i thought it was the acid! But it seems like most of their OJs are gluten-free b/c most dont have natural flavors-- is it the cross-contamination problem?

Guest BERNESES
Guest BERNESES
Posted

I'm not sure what the exact problem is BUT this is what i found from the Delphi list after I got sick from their lemonade:

Tropicana (800.237.7799) (Open Original Shared Link) (vp=7/23/04).

Only “Pure Premium” from certain facilities can be guaranteed gluten-free. The facility number is listed after the expiration date.

Tropicana (PepsiCo) (800.237.7799) (vp=07/24/02) (www.tropicana.com)

The following Tropicana Juices are gluten-free: Ruby Red Orange; Orange Banana; Orange Pineapple; Orange Tangerine; Orange Strawberry; and all 100% juices are gluten-free (as long as Natural Flavors is not listed). For those with natural flavors you should call the company. Some are gluten-free and some aren't. Some of those listed above might contain natural flavors but these have been verified as gluten-free.

I say call 'em and give em an earful! Minute Maid and Newman's own are gluten-free. You can access the Delphi list (invaluable resource) by going to:

Open Original Shared Link

and downloading the files. i have found their lists to be very reliable. Best, Beverly

jerseyangel Proficient
jerseyangel
Posted

Oh boy--I drink Trop. Pure Premium EVERY morning. Its my favorite. Now I wonder if when my stomach dosen't feel right during the day for no apparent reason, if thats it. What if I get a carton from the wrong facility? This never ends :( . Anyway, thanks Bev for bringing that to my attention. I did check with them early on and was told that packages with 48 as the first numbers in the code were gluten-free. That was before I learned about the dreaded cross contamination. Oy.

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Guest BERNESES
Guest BERNESES
Posted

Yeah- I know. It's a BIG beef with me. I wouldn't trust them but that's just my opinion. I buy Newman's. I trust Paul :D

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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