Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iding Intolerances-How And How Long Did It Take?


birdie22

Recommended Posts

birdie22 Enthusiast

I've posted before here about being blood test neg. Back in Oct I did a elim diet (chicken, rice, banana for a week, then added in other foods one food group at a time per my docs plan). Gluten somewhat stuck out to me then but not entirely, but nothing else stuck out at all as problematic. I went entirely gluten-free in November and have remained that way with the exception of one intentional and one accidental glutening. In that 3 months I've seen little if any improvement in symptoms (fatigue, headaches, thigh aches, bloating, distention, heartburn). So, I'm revisiting other possible intolerances but having a really hard time IDing if anything else is causing these problems. I've been keeping a food and symptom log for about 5 months now.

So I added some gluten back in the other day. Two days ago at dinner I had some cookies, bread, and scalloped potatoes all full of gluten. I had a bit of dizziness but no other symptoms. The next morning I had greek yogurt for breakfast and felt fine. At lunch I had a bagel w/ cream cheese. Bloated 30min later, heart felt like it was pounding hard. For snack I had a glass of skim milk and nut thins. Nothing. Felt fine. Dinner was baked chicken, plain white rice, and green beans. Felt bloated about 30min after. This morning I had gluten-free cereal and skim milk. Felt bloated and nauseated 30min later. Dinner tonight was ham, white rice, and corn. Bloating again.

As I type this out I see that what I probably need to do is go back to a more basic diet and just focus on adding one thing and give it a week. I guess I just thought with months worth of notes I'd be able to see a correlation. I just don't get why I sometimes feel bad after dairy, but not other times and why I feel bad sometimes after gluten, but not other times and especially confused when I feel bad after a gluten free dairy free meal. There doesn't seem to be a consistent "when I eat XXX then I feel XXX" pattern. I was also under the impression that lactose intolerance was more consistent in that the reaction was quick and cause gas, rumbling, diarrhea, etc...very noticeable reaction. Is that not the case?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Sometimes the reactions are not consistent. The reason I initially thought corn was my problem was because I reacted to it quicker than to gluten. And sometimes I didn't react to gluten at all - in fect, pizza used to be my comfort food. And at first I could eat non-GMO corn, but not tany more. Also, even with the same food, reaction times may vary, depending on what is eaten with it. Like all the cheese and sausage and mushrooms and olives seemed to nullify the effect of the gluten in the pizza. I found the way to tell if a food is a problem is to consume it by itself. And not have anything else for at least three hours. That way it reaches the small intestine alone and doesn't have any buffers.

Sounds to me like you should give dairy the boot for now. See if you are still having problems. If you are, I would give soy and corn the boot too (while, of course, remaining glutenfree. If none of these measures work you may have to go back and do the elimination all over again. Do you have in your previous notes when you first started reacting again? And did you note the times of your reactions? Sometimes you can see a time pattern, which may be after you have had additional food - like, say, 12 or 24 hours after corn you have a problem.

Sorry I don't have more to offer.

birdie22 Enthusiast

I have not been diligent with recording timing of symptoms. That's a great suggestion. I typically note something as 30min after lunch or immediately following dinner, but it'll be easy to start adding what time I ate something and what time I experience symptoms.

birdie22 Enthusiast

So if I ate a wheat bagel for lunch w/ pb&J on it and w/in 30min I was a tad bit dizzy feeling and w/in 1hr my heart was pounding (87bpm..so a bit faster than resting for me but really could just feel my heartbeat in my chest like crazy), would you assume gluten reaction? I purposefully didn't include cream cheese or other dairy topping. I'm guessing the other thought could be fructose (smuckers jelly). But, the amount of jelly was so miniscule...you know those tiny single servings they have on the table at a diner...barely enough to even taste it. I ate that on a pretty empty stomach (nothing for about 4hrs) and only with water to drink. The dizzy only last about 15min and the heart pounding lasted about 60min.

No bloating though and that's usually one of my biggest complaints.

mushroom Proficient

No, you still have three foods mixed in there. Just eat a couple of Ritz or other crackers, hold the cheese. Or drink a glass of milk or eat some ice cream. Cook some edamame beans and have nothing with them. And don't forget that any reaction could be from something you had eaten before you ate these things too, although if the reaction is within 30 mins. it is probably pretty clearly related to what you just ate. Most IgA reactions have a delay to them. I don't know about fructose. Lactose intolerance usually happened pretty quickly for me, at least.

birdie22 Enthusiast

I eat ice cream often, almost always a few hours after dinner. Never have a reaction. I had a glass of skim milk the other day with a handful of nut thins. Fine. So I'm thinking that lactose isn't a problem. I know people who have milk or ice cream and get gas and D pretty soon after. I don't get either. Gas is never my problem. Bloating yes, but burping or flatulence, never.

mushroom Proficient

I can't say as how I have ever had problems with bloating without gas :blink: What do you bloat from? Fluids? Serious question. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



birdie22 Enthusiast

I can't say as how I have ever had problems with bloating without gas :blink: What do you bloat from? Fluids? Serious question. :)

LOL well I'm guessing it is gas that is bloating me but I don't experience any burping or flatulence when that happens. Like zero, nada, which is probably why the bloating and distention is so uncomfortable. It bothers me most in the space between my breast bone and belly button, but mostly up high by my breast bone (I'm guessing diaphragm). I wish I could poke a whole in my abdomen and let the air out.

I'm actually feeling it right now. On an empty stomach. Haven't eaten since a snack of a mozarella cheese stick and nut thins at 4:30pm and a dasani flavored water at 5:45pm. It's 3hrs later, I'm STARVING for dinner and yet I'm bloated and uncomfortable so much that it almost makes me feel nauseous. And I get this sense of urgency like I must.eat.now to make it better. Why does this happen on an empty stomach?

mushroom Proficient

LOL well I'm guessing it is gas that is bloating me but I don't experience any burping or flatulence when that happens. Like zero, nada, which is probably why the bloating and distention is so uncomfortable. It bothers me most in the space between my breast bone and belly button, but mostly up high by my breast bone (I'm guessing diaphragm). I wish I could poke a whole in my abdomen and let the air out.

I'm actually feeling it right now. On an empty stomach. Haven't eaten since a snack of a mozarella cheese stick and nut thins at 4:30pm and a dasani flavored water at 5:45pm. It's 3hrs later, I'm STARVING for dinner and yet I'm bloated and uncomfortable so much that it almost makes me feel nauseous. And I get this sense of urgency like I must.eat.now to make it better. Why does this happen on an empty stomach?

I always call it the sensation of my stomach attempting to digest itself, and I have to eat frequently because I get that often, even if it's just a cracker or piece of cheese, to give it something to work on :lol:

Yes, it is when the gas doesn't want to come out that the problem is at its worst. You have to try to forcibly expel it (from either end ;) ) to relieve the pressure. (Best done in private - although a public toilet stall is okay - if you stay in there long enough :rolleyes::D )

birdie22 Enthusiast

I always call it the sensation of my stomach attempting to digest itself, and I have to eat frequently because I get that often, even if it's just a cracker or piece of cheese, to give it something to work on :lol:

Yes, it is when the gas doesn't want to come out that the problem is at its worst. You have to try to forcibly expel it (from either end ;) ) to relieve the pressure. (Best done in private - although a public toilet stall is okay - if you stay in there long enough :rolleyes::D )

I inhaled a few scoops of ice cream and feel a bit better already. I wish I could find a way to expel it. I never moves to my intestines. The bloat stays up by my ribs but doesn't cause burping either. I've tried different stretches, massaging my stomach, etc and nothing works. I can usually get relief from gas-x or phazyme.

I had an upper GI which didn't show reflux or ulcer or hernia, but I do have frequent, almost daily heartburn that flares on an empty stomach. I'm just so frustrated. I can eat a seemingly benign meal and get bloat, eat that same meal another time and be fine, eat nothing and bloat. There seems to be no rhyme or reason.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.