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Pale Stools?


Tamesis

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Tamesis Rookie

Hi everyone,

I kind of linger around here, and don`t really post a lot, because i`m still learning and not diagnosed. However, i`m starting to worry, with all i`m learning. I`m being screened, and looking at my toddler in a whole new way! Here`s her `symptoms`

-Irritability (She`s usually pretty happy go lucky, but sometimes is just a grouch. I haven`t done a food journal to see if there`s anything to it, however have trialed cutting out dairy to no avail.)

-Distended belly (She seriously looks like she has a beer belly! Cute, but worrisome)

-Greyish stools....This one is most concerning to me!

-slow weight gain as an infant...she`s in the 75% now and seems to be thriving...but.....

Let me know what you guys think! Again, I`m being screened, have had a negative biopsy x2, however am pretty convinced...and if she has it, i`ll be 100% convinced I do too! (My dad has Celiac)


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RiceGuy Collaborator

Well, if your father has Celiac, that alone is a red flag. So regardless of what tests say, I'd suggest trying a gluten-free diet. And as you may have already read on this forum, small children are most difficult to diagnose accurately, so I think the best test for her may be a gluten-free diet.

However, do keep in mind that other foods may be a problem, such as soy, corn, eggs, etc.

Hope you and you child get to feeling better soon!

GFSAHmom Rookie

My son also had he distended belly but he was losing weight very fast. Maybe she doesn't have Celiac and it's gluten intolerance?? My son also had White/cream/grey stool for 2 months! then finally the dr. ordered a celiac test. He was very very positive! BUT THAT COLOR STOOL IS NOT NORMAL and you should take a sample with you and take her to the pediatrician. Best of Luck!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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